Questions of Privilege

Most people on Earth are “better off” in some way than at least some other people. Some have access to more food. Others live in more secure or better shelter. The surroundings of some are more reliably safe. Others can depend on a healthier or safer food supply. Some people have more money to buy a more reliably secure lifestyle. Others live in the lap of luxury and never want for any basic needs. Some people are isolated from physical and emotional threats that plague others. Unfortunately, a significant number of people live in constant fear, not only for their own physical and emotional safety but in fear of inadequate or unsafe food and water and shelter.

For each of those people, where does society draw the line between having too little and too much, in comparison to others? Does the person with a barely adequate supply of safe and reliable food have an obligation to share with others whose supplies meet neither measures? Is the person fortunate enough to live in secure shelter obliged to share it with those whose shelter is worse or less secure?

In each case involving people more fortunate than others, we can say they are privileged in some form or fashion. They live more comfortably than others, at least along a single dimension. Does that good fortune carry with it an obligation to share? Or, if not, does that good fortune carry with it a moral obligation to at least feel guilt for undeservedly having “more” or living in better circumstances? For the sake of contemplation, let’s assume that no one along any continuum has “earned” his or her place. Everyone has worked hard to achieve whatever he has. The “luck of the draw” has enabled those with plenty to acquire more than they need. That same “luck” has withheld largess from people who suffer from paucity.

The point of these questions, and this contemplation, is to frame ideas of obligation. What are we obligated, as humans, to do? And, perhaps as importantly, to feel? Should I feel guilt at my good fortune in comparison to a poor beggar on the streets of a village in an impoverished country? Does feeling guilt count against any obligations I might have to share my largess? Does simply recognizing my privilege count in any way and, if so, how? Am I under any moral obligation to minimize the extent of my privilege so that someone else might rise part way toward that privilege I once enjoyed?

None of these questions have “correct” or “incorrect” answers. They are just questions that merit some attention. Yet they “feel” like they ought to have correct answers. They “feel” like we ought to know when we have too much and, therefore, should share without expecting anything in return. But we don’t know. And that’s the source of guilt; not knowing how much we should share or, knowing, not sharing.

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Film Nibbles

I watched The Angel the other night, the true story of Ashraf Marwan, who was President Nasser’s son-in-law. He was also a special adviser to Nasser’s successor, Anwar Sadat, at the same time he served as an asset to Israeli Intelligence. I found the film fascinating (though motivations were a bit confusing from time to time), up until near the end. Somehow, it sort of fell apart late in the game, but I’m glad I watched it nonetheless and I’d recommend it. The film is based on the New York Times bestselling book, The Angel: The Egyptian Spy Who Saved Israel, by Uri Bar-Joseph. The actor who briefly played Muammar Gaddafi, Tsahi Halevi, was a very visible cast member of Fauda, which I just finished watching a few days ago.

Speaking of Fauda, I found both seasons  absolutely riveting. I sort of wish I’d gone back to watch season 1 again before starting season 2, as I was confused for a while, but not irretrievably so. I can’t say enough about how well the subtitles were done; I simply forgot I wasn’t watching it in English.

Speaking of foreign television series, season 2 of The Break will be available on Netflix on February 9. Season 1 of this Belgian TV series was fantastic. I can hardly wait to see season 2.

 

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Trouble in Iceland

My affinity for, or interest in, things Icelandic is evident in the fact that sixteen posts on this blog mention Iceland (seventeen including this one). It’s a disease, I think, this longing for immersion in cultures to which I have absolutely no connection and for which my fascination has no reasonable explanation. Today, that fascination and interest, legitimate or not, are being tested.  You see, I learned today that the country has an official naming committee that determines the acceptability of names which may be given to children. Really! As I started to skim the Iceland Monitor, an article on the subject attracted my attention. Or, should I say, the article attracted my immediate disbelief and disdain (combined, in an odd sort of way, with appreciation).  I’ll quote from the article:

The famous Icelandic naming committee which decrees which new given names in Iceland are allowed or not have said no to names Carlsberg and Danski…The middle name Carlsberg, of Danish origins does not comply to Icelandic rules of grammar and neither does Danski…Boy’s name Javi and girl’s names Kolþerna, Einara, Ásynja, Elízabet, Emanúela, Baldína and Natalí were accepted however.

Can this be real? Yes, in fact, it can be and is. Iceland established the Naming Committee in 1991 to determine whether new given names not previously used in Iceland are suitable for integration into the country’s language and culture. Obviously, Icelanders are cultural purists, which in many respects I find patently offensive. On the other hand, I can appreciate the desire to preserve and protect one’s cultural legacies. But to control the names parents give to their children? Hmmm. My immediate reaction is negative, but I have to consider that negative reaction in the context of my own evaluation of the Icelandic culture…viewed through the prism of my own biases.

The relative offensiveness (or lack thereof) of Iceland naming restrictions depends to a great extent on whether the restrictions lead to corollary debasement or derision of other cultural naming conventions (or, for that matter, other elements unique to other cultures). If the Iceland conventions do not have the effect of either degrading other cultures or holding Icelandic culture as superior to them, then the practice would not be, in my book, offensive. Odd, perhaps, but not offensive. But if Icelanders (or a subset thereof who hold sway with the Naming Committee) viewed non-Icelandic names as inherently inferior to Icelandic names, then the troubles begin.

I have to wonder whether anyone else, outside of Iceland, finds this topic even mildly interesting? Maybe my strange fascination with arcane trivia explains my relative social isolation. It shouldn’t be too problematic, though, inasmuch as my interest is superficial and short-lived. It’s not as if I drone on and on about Icelandic naming conventions and the extent to which they might suggest either covert or overt xenophobia. Hmmm. If I were to pursue writing fiction again (which I think I suggested I might or might not), a story line involving a Colombian xenophobe who detests Apache and Icelandic cultures might be worth exploring. Or maybe not.

 

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Cancer Journal 24, 2019

My radiologist resumed my radiation treatments today. I didn’t expect that he would in light of the fact that the pain I feel when I swallow hasn’t receded at all. He said “I hope the pain goes away after we complete all the treatments.” Yeah, me, too.

I lost a meager 4 pounds since last week, which was 4 pounds more than they wanted me to lose. I would have preferred losing 24 pounds, but that’s probably really pushing it in a week. I just finished eating several cookies and a couple of pastries, which probably will put my weight loss in the negative column for next week. That, plus the ice cream and macaroni & cheese that’s easier to eat than most other stuff.

Pain seems to be on the increase in my gut and on my skin. I’ll have to explore than with a doctor next time I see one. I’m surprised the next blood draw won’t be until a week from today. That will make it thirteen days between blood draws. I think they forgot one, but even after inquiring of the nurse, I was assured that, no, the schedule was intended. Except their original schedule, which remains on my portal, disputes that. Even after I pointed that out, the “nurse navigator” insisted the original schedule was highly tentative. Hmmm.

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Mental Sprawl

According to a news story I read a day or two ago, scientists or physicians or some other academically qualified researchers have determined that anger can be a symptom of depression. As I recall, the piece suggested that people who easily erupt in anger may be depressed. That seems to be the case especially when displays of anger burst forth against those close to them. And, it seem, it may be true for those who have a “hair trigger” that causes them to explode, then quickly recover. Reading the article made me wonder whether my life-long tendency toward spontaneous, but short-lived, gusts of anger may be symptomatic of depression, rather than an emotional system that never developed beyond the juvenile stage. I’ve long suspected, for a variety of reasons, that I may suffer from a fairly mild form of depression. But I’ve never shared that suspicion with anyone; certainly not with a medical professional who might be able to determine whether my suspicion is well-founded and who might be able to help address it, if it is. As much as I’ve always thought myself more intelligent than to stigmatize mental illness, I’m not so advanced when it comes to considering that it might affect me. Maybe I’ll overcome that embarrassing character flaw and actually look into it. Next month, I have an appointment with my primary care doctor. If I can muster my courage, I’ll explore it with him. The brief visit with him could become more involved than either of us planned, if I actually pursue all my questions with him.

Of course, I may be suffering from nothing more than hypochondria. But, then again, if I were to learn that a prescription anti-depressant can reduce or eliminate my propensity to erupt in unjustified anger at the slightest provocation, I may get even more depressed for having waited forty-five years to investigate possible solutions. But that’s not true. I have investigated solutions. I’ve read books on anger management. I’ve tried meditation. I’ve done all sorts of things that can, ostensibly, address anger. Zip. Although, I think I’ve improved dramatically since I retired.

I was never suited for a career so utterly imbued with stress as the one into which I fell. I would have been far better off as an academic or an electrician or an organ-grinder. Those careers, I suspect, have their own unique stresses. I can’t undo what I did for a living and I shouldn’t regret the years I spent doing it. Shouldn’t. It had plenty of upsides. World travel. Lots of discretion over my time (but lots of absurd demands on it, as well). There must have been more. I look back on it, though, and have absolutely no regret that I got out early. Early retirement was, I think, one of the best decisions I’ve made. I’ve been able to spend eight years, up until the very recent past, carefree and relatively healthy, enjoying my free time. Good call, John. Actually, I can’t claim full credit. My wife had a lot to do with it. A lot.

Back to the issue at hand, though. In spite of the potential that I might be forced to kick myself repeatedly for having failed to act earlier, I would be absolutely delighted to learn that my life (but, more importantly, the lives of people with whom I interact) might improve immeasurably if I were to regularly take a simple pill (though I have no idea what pill that might be). And, again, it’s not just the matter of anger. It’s the sadness, the pessimistic sense that there’s no point in trying to change the world, the feeling that my life ultimately just doesn’t matter. Maybe those things contribute to my susceptibility to certain music causing a flood of tears to flow. Or maybe that’s natural, but most men have succeeded in learning to control the spigot.  I would just like to feel generally happy. I do, I suppose, most of the time. But there’s always this underlying sense that it’s temporary, that happiness is an artificial condition we strive to achieve but one that can never envelope us completely for long.

***

I’ve written so little fiction lately that I wonder whether I’ve truly lost interest in it. I haven’t had any real impetus to write fiction for months. Oh, I’ve written a little, but it has been weak and uninspired and generally substandard fare. Maybe fiction isn’t the escape it once was, though I don’t know how to quantify just how much of an escape it was before versus now.  I am not going to berate myself (much) for steering clear of fiction. I have other, more pressing, things on my mind. Like cancer and the potentially long-term side-effects of its treatment.

***

I hear the wind outside my window. It’s fierce. In the pre-dawn darkness that’s just now giving way to dull grey light, I can see the trees sway and bend. Though I haven’t seen them fall, I know the ground beneath the trees is littered with dead branches that weren’t there last night. Occasionally, the noise of the wind changes from a roar to a high-pitched howl. Suddenly, the cacophony morphs into an eerie silence, as if the wind senses that it’s being heard and watched and, in response, it reciprocates by watching and listening. Today’s weather will change drastically as the morning goes by. Forecasts call for a 50 degree drop in temperatures by early tomorrow. The temperature now is 72 degrees. By 11:00 a.m., we’ll see it drop to 50 or below. Steady 10 to 15 mile per hour winds from the west-northwest and northwest will bring colder air with them, so that we experience freezing temperatures by bedtime. In the morning, I can expect to awake to an outdoor temperature of about 22 degrees. Ach. I prefer warmer climes.

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Silence

No matter where I seek it, I cannot find it. Silence. The absence of sound. There was a time when I could find it. But no more. Not since my heartbeat, with its drumbeat in my ears, began interrupting my peace. For months and months, I’ve heard my heart beat. Perhaps it’s a matter of wax in my inner ear transmitting the vibration from each beat of my heart to the tiny bones in my ear that manifest as sound. Or it could be something else. I don’t know. But I do know it is beginning to drive me crazy. It’s on my list of things to address with my primary care doctor when I go in for an appointment in March. If I don’t lose my mind before then. If I don’t stab an ice-pick in each ear before then, trying to put an end to the pounding, pounding, pounding in my ears. I doubt I’ll do that. An ice-pick in my ear sounds painful. On the other hand, the absence of sound “sounds” delightful. Silence. The absence of noise. The absence of sound. The absence of aural interruption.

The constancy of noise is not new. I’ve noticed it for months, if not years. I’ve wished I could flip a switch to turn off the sound of my heartbeat, my breathing, the sounds made by my body when I move my neck. I detect noise even when I blink. My upper eyelids slam against their lower counterparts, creating tiny explosions of noise that I feel and hear. I wonder whether I am alone in noticing the cacophony or whether others, like me, are embarrassed and afraid to admit to hearing those noises because…we might be judged out of our minds. I suppose we are. I suppose we are dangers to ourselves, what with talk of stabbing ice-picks in our ears to silence to sounds of our heartbeats. Only madness can prompt such thoughts. Or, perhaps, incessant noise.

Silence would be frightening now, I think. It would seem utterly at odds with normalcy. Silence, now, would seem sinister, as if all the attention of the world were directed at me, with no distractions. Maybe noise is like a protective blanket made of horsehair. It keeps us warm but, at the same time, it irritates the skin with a painful, ever-present reminder that warmth comes with a price.

On the one hand, sound is precious. I wrote recently about the sound a guitarist’s fingers scraping against the strings makes. But even that sound, if ever-present, can be maddening. Sound needs its absence, if sound is to be valuable and beautiful. If sound is ever-present, it becomes a fiendish enemy bent on driving molten spikes into one’s brain. And, then, when the spikes quench in cold water, the sound of  steam and boiling water give way to the cracks of shrinking metal and, finally, silence. Silence. Beautiful silence.

Quiet is serene. Quiet is calm. Quiet is relaxing. Yet quiet is impossible to find. It escapes into the loud screeches of huge black birds and the rumble of trucks rolling up and down the street outside my window. It disappears into the thump-thump-thump of my heartbeat. It withdraws into the hum of refrigerators and computers and the buzz in my ears that sounds like layer upon layer of the noises made by crickets. Silence is imaginary. Quiet is a supernatural tale, just a fable with no basis in reality. Silence doesn’t exist.

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Cancer Mythology

I’ve slept more in the past week, I think, than I usually sleep in the course of a month. That may be an exaggeration, but not much. I am in bed by 8 or 9 in the evening, up around 4 or 5, and sleeping in my chair before sunrise. It’s now almost 11:30 in the morning and I’ve just now awakened again. I  haven’t been asleep every minute since sunrise. But most of them. I was awake long enough to drink bottle of Ensure and take my medications. But just barely. I loathe this sense of absolute weariness. It’s as if I am wearing out like a pair of ancient shoes, their leather so thin that a slight motion in the wrong direction will rip the leather into shreds so delicate that nails can’t bind them to the soles. I feel so tired that I must have been forced to stay awake for a month but I know that’s not true. I should feel utterly rested after all the sleep I’ve had. But I don’t.

The pain in my chest, caused by my burned esophagus, doesn’t seem to be getting any better. Instead, it seems to be spreading and going deeper, like my heart is in the grip of a vice that squeezes with each move I make. I spoke to my doctor’s nurse a while ago. She advised me to continue taking the drugs intended to address the pain and to come in half an hour early on Thursday, before the scheduled radiation treatment, for an assessment. Perhaps the pain will have disappeared, or become more tolerable, by then. Perhaps all will be well.

I am not comfortable with pain. I’ve always said I have an allergy to it; half joking, half serious. Some people can tolerate pain; some can’t. I can tolerate it, but only during the course of complaining bitterly about it and behaving as if the pain is attempting to kill me. I suppose I dramatize pain. But  try not to. I try to cope with it and accept that it is what it is. That rarely works. I whimper, silently or not so silently, wishing and hoping the pain will take pity on me and will leave me alone. It rarely does. I can’t imagine how I would react to excruciating pain. I might tear my eyes from their sockets in an effort to distract myself from the agony. I realize that sort of behavior flies in the face of reason, but I am nothing if not reasonable. See, the pain drives me to distraction. I try to laugh but cough convulsively instead.

Today is, as best as I can tell, a gorgeous day. Blue skies, painted with a few white clouds, invite people outside to enjoy the warm weather. The temperature has reached almost 70 degrees. It’s the sort of day that healthy people rush outdoors to enjoy. But I remain indoors, warming myself in a t-shirt and sweatshirt because I feel a little too cold. I wish I were outdoors, sitting in the sun, enjoying the heat and the fresh air. But I’m not. I’m inside, shivering on occasion and angry at the universe for treating me the way it’s treating me today. Bastard!

My sense of humor is attempting to break out of the hard, cast-iron shell wrapped around my body, but it’s having a hard time of it. Why is that, I wonder? Could it be that my sense of humor is reacting badly to the multiple wounds on my chest and back and side? Could it be that laughter is cursing loudly, pointing at evidence of drunken scalpels behaving badly after a night directed to do bad things by wayward anesthesia drugs?

I think I need to go back to sleep. But I’d like to eat, instead. I miss foods that I dare not eat for fear of making my esophageal pain worse: jalapeños, Tabasco sauce, salt, and lemon juice. Instead, I am relegated to drinking 350-calorie food-substitutes, slurries that ostensibly will keep me from losing weight. They (to doctors and nurses who occasionally look out after me) want me to drink six of them per day. There is no way in hell I’m going to drink six bottles of Ensure in a single day. I might go for three. And, if I do, I will agree to cap them off with a half gallon of orange sherbet every couple of days. They want calories, I’ll give them calories.

I’d like to have a shower servant today, someone to gently scrub my skin, just hard enough to remove the remnants of the lotion I’m required to use to battle the “sun burn” I’m getting from the radiation treatments. After my cleansing, I’d like my shower servant to give me a pedicure and, once I’m clean and dry, to rub healing lotion on my back and chest. Then, a wash of healing skin-cream all over my arms and legs would be nice to help ward off the dryness that seems to be getting more and more pronounced. After I’m dressed in a soft robe, a nice glass of red wine would be nice. I am, begrudgingly, permitted one glass of wine per week. Yesterday would have been one week since my last very small glass of wine. My wife won out, though, by telling me I should wait for wine until some unspecified time in the future.  Yes, I should wait until I’m older, that’s it. I don’t believe for a moment that a glass of wine each and every night would be problematic for me. I think the doctors demand wine be eliminated only because they can get away with it. Perhaps they are in favor of prohibition. Or, worse yet, they secretly admire Donald Trump and his lifestyle. If that, they deserve to be impaled on a spike in his bollard wall. I wonder whether my contemplation of wine is making me into an aggressive drunk? That would be an interesting research project, wouldn’t it? “An Investigation into the Physiological Changes Wrought on the Nervous System by Contemplating the Consumption of Alcohol.” The Blue Laws would have to be revised to prohibit even thinking about buying alcohol on Sundays.

I guess I’ve successfully stayed awake for most, if not all, of the time required to write this incoherent screed. I’ll assume the content of what I’ve written can be attributed to some odd form of cancer mythology. Another possible thesis for one of my many master’s degrees.

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Street Scene

Whispers. Strained voices. Anxious sighs. Stifled sobs. The sharp staccato raps of heels pounding on the cobblestone street, their echoes remaining long after the tear-drenched woman rounds the corner. Long after the dejected man shuffles away.

Who were they, that couple whose urgent matters spilled into the street and captured the ears of people sitting in cafés, leaning against balcony railings, and watching from the dark shadows beneath the clock tower? What private pain burst into such a public display of heartbreak, such a ruinous end to what might have been a lifetime of joy?

Every couple sitting in those cafés heard the message that their time, too, could come. The women leaning against the balconies sensed it, as well. And the people beneath the clock tower cringed at the evidence that their own lives could shatter against the hard cobblestones.

All of them listening to the couple’s dissolution were strangers with no bonds between them but in those moments, in that street scene, they felt their lives bound together with steel cables. They heard the sounds of their own hearbeats slamming their dreams against the walls of their chests and they felt the inexorable sense of loss that never departs.

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Cancer Journal 23, 2019

It’s Sunday morning. I slept/dozed most of the day yesterday, waking occasionally long enough to eat a bit or listen to the radio. Janine drove in to Benton to do some shopping while I rested. Rested isn’t the right word; I collapsed, that’s what I did. Even though I dozed most of the day, I still wasn’t able to stay awake long after she got home. We had an early dinner, after which I went through my post-meal medication routine and then took a shower and went to bed. I awoke before 2:00 a.m., feeling like I’d slept far too long; my bones ached the way they do after spending far too long in bed (though much of my day wasn’t in bed but, instead, in a recliner). But, I tried to sleep anyway. I finally got up around 4:30.

I attribute yesterday’s monstrous dose of fatigue to Monday’s chemo; I don’t know what else to blame. I hope one day will do it. We have dinner plans tonight with neighbors, so I really don’t want to deal with another day of fatigue and painful swallowing again. I didn’t experience too much pain with swallowing yesterday, at least not all day long. But late in the day the pain was back with a vengeance. I’m tempted to try my medication routine without eating first, but I’m not sure whether that would be a wise move, so I guess I’ll try to follow the instructions. Damn. Damn. Damn.

I wonder whether the chemo and radiation are doing more harm than good? Some of the side-effects of the two treatments can be permanent, according to the literature. Permanent side-effects are “rare,” but not unheard of. I considered, seriously, not having any treatment other than surgery. That might have been the best option. Surgery was bad enough, but I think its effects have been exacerbated by five-days-a-week radiation treatment and the injection of cell-killing drugs into my bloodstream.  I have a fear that I’ll find myself so badly incapacitated by my treatments that I’ll be unable to act for myself. Being locked in a body that won’t function the way it was intended is a terrifying thought. I’m not Stephen Hawking; I am not suited to living only through my brain.

Until just now, it hadn’t occurred to me that the temporary pause in my radiation treatments has given me an opportunity I haven’t had for several weeks. I could take a day-trip (or two) during the week. I am not restricted by visits to the doctor’s office until Thursday. If I can persuade Janine, I might get out of town for a day or two. That would be a welcome respite from being tied down to the house and my surroundings. The key, of course, is whether my fatigue and trouble swallowing will just cooperate by remaining at bay for a short while. I’ll explore that tomorrow. Maybe. If I can cope with rain showers and daytime high temperatures around 70, I should be fine. And I think I should be fine.

 

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Music and Words

When you hear, on a recording, the sound of a guitarist’s fingers scrape the strings, you’re hearing a sound unpurified to an extent that all of the reality of the musician’s engagement with the instrument remains. The connection between musician and guitar hasn’t been bleached out of the sound. At least that’s my opinion, as a person who’s never successfully played a guitar or any other musical instrument. This thought came to me after I listened to Terry Gross interview Nicholas Brittel, a composer who scored several recent films. I’ve always felt that sense of reality when I hear the “musician’s noise” that accompanies real music, but I’ve never really thought much about it until I heard the Brittel interview. He spoke of asking a violinist to play very lightly, but with enough energy to have “confidence.” And then he spoke of hearing the sounds of the instruments and the sound of air in the room. That’s what triggered my sense of liking the sound of a guitarist’s fingers as they scrape the strings. And that’s the sort of thing that translates well into scenes in writing. Little aspects of an experience that help paint a picture that, without those elements, would be bland or lacking in some fundamental way. It’s not just true of writing, though. It’s true of life. I think we enjoy life far more when we pay close attention to its smallest intrusions on our consciousness, like the scrape of a guitarist’s fingers on the strings. Or, more commonly perhaps, the sound of one’s spouse’s rhythmic breathing or the background noise of a clock ticking (though few do that anymore) or one’s own heartbeat. I hear my own heartbeat, pounding in my ear, especially early in the morning.

For months, I thought I was hearing some odd “house noise” like a furnace clicking as its heat dissipated. But finally, I realized it was my own heart. It’s probably not a good sign to hear my heartbeat so distinctly in my ear, but I really have no idea how to explain the noise to my doctor. He certainly cannot hear it; only I can. He might think I’m mad if I complain about a noise no one but I can hear. And maybe I am.

 

 

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Cancer Journal 22, 2019

Apparently I misunderstood my doctor yesterday. He said, but I did not hear, that he wanted to postpone further radiation treatments until next Thursday. I went in for my treatment this morning and the radiation tech informed me that the doctor had delayed further treatments until a week from yesterday, thanks to my seared esophagus. So, I felt like a cretin, but actually was pleased. Even though this will delay completion of my radiation treatments by a week, I think I will be happier to know that my esophagus is healing. I’m continuing the medications he prescribed a week ago and I expect I’ll be fine a week from now. So goes cancer treatments.

With this delay, I have no treatments, no blood draws, NOTHING, until next Thursday. I may just relax and vegetate for the next several days. I felt absolutely drained this afternoon, so much so that I opted to let Janine go shopping, fill up the car with gas, and get the mail while I sat and relaxed in the car. And when we got home, I went to sleep in my recliner. I guess it’s either the radiation or the chemo or both, perhaps combined with stress of some sort caused by the whole cancer treatment process. I feel very much like I could sleep for two days right about now, but I won’t. I’ve made commitments. Though I realize I could, in a pinch, break them.

 

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Cancer Journal 21, 2019

The radiologist told me to keep following his drug regimen and to drink six bottles of Ensure a day. And to come back next Thursday and tell him whether the pain I experience while swallowing improves. Hmm. I was hoping for something a little more interventional and more likely to relieve the pain. But there you go.

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Cancer Journal 20, 2019

A week ago, I began experiencing pain when I swallow, thanks to (I assume) the effects of the radiation treatments on my esophagus. The radiologist prescribed some drugs that I take in succession following each meal: first an ounce of aloe vera juice, followed twenty minutes later by a teaspoon of Nystatin, followed twenty minutes later by a carafate tablet dissolved in 10 cc of water, followed by nothing by mouth for twenty minutes. I noticed no noticeable change until day before yesterday, when the pain got worse. Yesterday, it was much worse. I couldn’t finish lunch because of the pain, opting to choke down a bottle of Ensure, instead. Ditto for dinner. The pain is present event without swallowing; it burns in my chest, the level of pain changing depending on my position. Last night, I didn’t sleep especially well because the pain kept awakening me and/or keeping me awake.  As I type this, I’m taking a painful swallow of strawberry-flavored Ensure at a time for breakfast. No coffee, as the hot liquid hurts like the devil going down. Even the cold Ensure hurts with every swallow. Fortunately, today is the day for my weekly visit with the radiologist, so I hope he can offer options. Even swallowing water is hard and painful. This cannot go on for long or I’ll get dehydrated and starve. Thanks to my years of packing on excess weight, it will take far longer to starve than to become dehydrated.

Yesterday was my first phone call with the nurse navigator who was assigned to me to help me deal with cancer treatments. Despite the fact that the program kicked off more than half way through my treatments, perhaps the timing was good. I mentioned the swallowing issues and she said she would talk to the oncologist about them, though she advised me that the radiologist would be the first responder to that issue. She also said she would address the ongoing problem of schedules for my doctor visits, chemo treatments, and blood draws being shown on the portal calendar as “unscheduled.” We’ll see.

This business of pain in my chest while attempting to eat is bothersome. I guess I didn’t expect it, even though I knew it was one of the potential side-effects of radiation treatment. I hope today’s visit with the doctor gives me more than,”well, let’s see if this next options gives you any comfort.” I’m looking, of course, for certainty. I’m looking for results. I’m looking for things that probably are not guaranteed in the field of oncology treatment.

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Morning Babble

Our dinner last night met and exceeded our expectations. My dozen oysters on the half shell were enormous and very tasty. Janine’s dozen fried oysters were at least as good. The conversation with our friends was delightful and my Neulasta device did not intervene in any way. The New Orleans menu prompted me to suggest to Janine that we return next Tuesday so I can try some of the other items on the menu or, perhaps, the sampler plate that offers a little bit of everything (but not the oysters, if memory service me).

Learning a bit more about our friends through conversation caused me to recall an idea I had a while ago. That is, I’d like each member and friend of the church who’s willing to write and share a brief biography about themselves—where they grew up, what they did in their work lives, what made them decide to move to Hot Springs Village, what religious backgrounds they escaped from grew up with, how they define their political views (both from a social and a fiscal perspective), and any other interesting tidbits they think others might find interesting. I’m interested in this simply because I would find it intriguing to learn how people with quite different backgrounds happened to find themselves as part of a pocket of liberal and progressive people in the midst of the sea of rabid conservatives that is Hot Springs Village. I envision this collected biography to be available only to members and friends and, in some fashion that I’ve yet to clarify in my head, made private so that the identities of the writers would not be readily available if it were to be circulated outside the sphere of members and friends. That might be tough. I’ll have to give it some more thought.

I got up very early again this morning, even earlier than yesterday when I got up around 4:30. Today I sprang out of bed at 4:00, after having gone to be early, around 10:00 or just a bit thereafter. I’m not quite sure what’s  responsible for these earlier-than-usual arisings, but I rather like to be up and have leisurely time to explore the web, write a bit, collect my thoughts, and reheat the cooled coffee over and over again. I really should drink it while it’s hot, but the burning sensation in my esophagus is still with me so I let it cool, and then it’s too cool. But I’m up and thinking. That’s not always good, but today it is. Today’s thoughts are generally positive.

Shortly after I got up, I read that an Israeli company claims to be completing development of a cure for cancer that should be completed within a year. It sounds quite promising, but it also sounds like its availability in the general marketplace (if it’s really as claimed) will be years off. Oh well, if it’s real, in the years to come, many hundreds of thousands (or millions) of people my well live without cancer that they otherwise would have had to faced.

Last night, I watched several more episodes of Fauda, the Israeli-made drama depicting the two militaristic sides of the Israeli-Palestinian conflict. I’m addicted to it and, with every episode, I’m more comfortable that I’m watching a foreign language (Hebrew and Arabic) film that’s dubbed in English. Being able to watch multiple episodes, connected via Roku without interruption, is evidence that the problems I’ve had all along are, in fact, attributable to the Suddenlink-branded TiVo device. I’ll have that replaced in the near future (when I no longer have to deal with radiation treatment every weekday).  Oddly, I don’t recall what I had been watching before Fauda that, eventually, I just gave up on. I’ll have to probe my mind to recall it; I got so frustrated with Netflix stuttering and stopping that I limited my television viewing to news programs with Lester Holt and Judy Woodruff, supplemented by mindless home purchasing/improvement shows on HGTV. With Roku, I think I can return to some real variety, even before the TiVo device is replaced.

No long after I got up this morning, I whipped up a couple of servings of steel-cut oats that, I hope, will be ready, only needing to be warmed up, by the time Janine awakes sometime after 7:30 (my guess). It’s been ages since I made steel-cut oats for breakfast and I miss them, as does Janine. She’s the one who suggested it. I make mine with a mixture of water and almond milk (it does influence the flavor), along with a tad of olive oil in which to flavor and warm the oats, and dried cherries for flavor. I added a pinch of salt and about an equal amount of brown sugar, then brought the mix to a full boil, when I turned off the stove and covered it. Normally, I would do this the night before and let the oats “cook” overnight, but this time I didn’t, so they may not be truly cooked by the time Janine arises. No worries; I’ll just simmer them for 30 minutes or so and they will be ready. She’ll be happy with that.

Personally, when I cooked steel-cut oats more frequently, I enjoyed a savory and meaty version of my own design even more than the slightly sweet one. In the savory one, I omitted the almond milk in favor of water alone and did not use sugar or dried fruit. Instead, I used crumbled sausage (just a bit) and, sometimes, diced veggies (e.g., carrots, potatoes, whatever). When the oats and accompaniments were finished, I dressed my bowl with a bit of soy sauce and sambal ooleek. I guess it’s a riff on congee, using steel-cut oats in place of rice that’s cooked until it dissolves.

After today, I will have only ten more radiation therapy sessions to go, assuming the doctor makes no adjustments, which I have not reason to believe he will. Two-thirds of the way through! My chemo session day before yesterday has not yet had any significant ill-effects (save, perhaps, for the extended sleep time that afternoon and evening). Knocking on wood that it will have none. We shall see. Only two more chemo treatments left. I’ll be done with them by mid-March. But there will be immediate follow-ups with blood tests, etc. By late March, perhaps, I’ll be free of this stuff and, with good fortune, will be able to start recovering my strength and abilities to do things more physical, like stripping and painting my deck. If the boards have not rotted by then.

I’m tired of writing meaningless drivel this morning. I’d rather write riveting fiction or non-fiction that a reader simply could not even consider putting down once he or she started reading it. But I’ll write neither. Instead, I’ll go check on the oats and will sneak in to take a shower before my wife awakes, hoping the light and the noise in the bathroom don’t waken her.

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Putting Things in a Different Perspective

After my radiation treatment today, I visited a friend who’s in the hospital again after a couple of hospitalizations over the past year.

His first hospitalization came last February after a “routine” colonoscopy that wasn’t routine, after all. During the procedure, the surgeon perforated his bowel. My friend didn’t know anything was wrong until later than night when he felt pain that was anything but normal. Following emergency surgery, he was released a week later and recuperated at home over the course of several weeks.

In December, he was put in the hospital for what the doctors thought was pneumonia. They kept him there through Christmas; he was released, I think, on the 29th. He seemed to be improving over several days, but then had difficulties for several more days. After a period of steady deterioration, he was sent by ambulance back to the hospital on January 25. He doesn’t know how long he’ll be there, but it will be at least several days.

The problem isn’t simply pneumonia. It’s pneumonia resulting from complications with pulmonary fibrosis. That is the scary part. He doesn’t expect to be able to get off of oxygen. He has decided to abandon his plans to build a deck off the back of his house. He just seems really reconciled to the fact that his disease will severely restrict his activities and his comfort going forward. I don’t know enough to argue with him, nor would I even if I did. I don’t know when his pulmonary fibrosis was diagnosed, but I get the impression it was quite some time ago. I think he didn’t believe it would progress by this time.

When I got home from the visit, I looked up the prognosis for pulmonary fibrosis. The “typical” prognosis is that patients live on average of three to five years after diagnosis.

My diagnosis and treatments don’t seem nearly as onerous this afternoon as they did this morning.

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Cancer Journal 19, 2019 and Dinners and Netflix Entertainment

Yesterday, the second chemo treatment was administered. It’s a long process, beginning with “backwashing the chemo port,” as I call it. Actually, it’s just cleaning the port and, I guess, ensuring that the contents of the needle plunged into it will flow properly. I felt the nurse stab the needle into the port this time as if a carpenter’s trim nail had been hammered, somewhat gently, into my chest. It felt like the nail made it only part way into the two-by-four trim beneath. 😉 Actually, it wasn’t bad, just an unexpectedly sharp but quickly passing pain.

From there on, it was the “usual,” as if I know what usual is after only the first treatment three weeks ago. I took a pill, an anithistimine I think, and the nurse began the rather tedious process of preparing my body for the onslaught of poisonous chemicals.  I really should document each pouch of liquid they pour into me, but I did a poor job of it yesterday. Maybe next time.  To the best of my recollection, she pumped me full of saline solution first, followed by steroids, followed by something else, followed by something else, and then capping it off with a vile mixture of carboplatin and alimpta. She cleaned the stab wound in my chemo-port, covered it with a band-aid, and then went off to find the Neaulasta, the device attached to my body to deliver a dose of drugs that will fend off infection and boost the white blood cell count (that the chemo drugs reduce). This time, I opted to have it attached to my belly, making it easier for me to check to see what the blinking lights on the device are telling me, rather than asking Janine to stop what she’s doing to check. I was concerned about whether the removal of the Neulasta device would interfere with plans for the next night (tonight), when we plan to have dinner out with friends. Based on what the nurse told us, it shouldn’t. The device should inject me sometime well before 7 and I should be able to remove it afterward.

Our plan was, immediately after the chemo treatment, to go visit a friend who was just admitted to the hospital with pneumonia two night earlier on an emergency basis.  Before the treatment was complete, though, he sent me an email telling me it wasn’t a good time, courtesy of drugs he had been administered and the flurry of activities around his bed. We agreed I’d stop by the next morning (this morning) after my radiation treatment, if he was up to it.

Speaking of dinner, as I was a paragraph or so ago, we plan to go to dinner with friends this evening, early. These are the same friends with whom we had dinner a couple of nights ago (our minister and his wife and two other friends from church and the writers’ club). During that dinner, the male component of the nonministerial couple mentioned that a restaurant on the periphery of the Village is celebrating Mardis Gras with what he described as a spectacular Louisiana menu. Among the celebratory menu items, he explained, were ENORMOUS oysters on the half-shell, delivered daily as far as I can tell, from New Orleans and environs. I’ve very rarely (once) had oysters on the half-shell since moving from Dallas. I love oysters. And jambalaya. And gumbo. And all foods from in and around New Orleans. Before the conversation ended, all our calendars had been adjusted to account for our plan to eat dinner together tonight. It will be an early dinner (we’ll meet at 5:30), so we should be home by or around 7:00, when I will remove the Neulasta device from my gut and will dutifully take the drug regimen (a series of three drugs, separated in twenty-minute intervals) designed to minimize or eliminate the burning esophagyeal pain caused by my radiation treatments.

Yesterday afternoon, after we got home from the chemo treatments, I unpacked the Roku Premiere and set it up on the television I watch (my wife has her own in the room we call her “nest”). The purpose of buying the Roku was so I could (I hope) eliminate the stuttering and stopping of movies and series I want to watch on Netflix. I got Roku set up and working just fine, but either the chemo treatment or the fact that I didn’t sleep well the night before or both conspired to quell my television thirst. I went to sleep in my chair, awakened only to the call of dinner. After dinner, I tried again ever-so-briefly to watch television, only to awaken well after 10:30 to discover my wife had already gone to bed.

One day, though, either while I’m in the midst of cancer treatments or after I’m done and feeling “normal” again if that feeling ever returns, I’ll spend time watching films and series I think will appeal to me. I am not committed to watching anything all the way through, though. If I like it, I will watch it. If I find it boring or otherwise unappealing, I won’t. So there you go. As for what I plan to explore on Netflix in the not-too-distant future, they include:

Fauda (season 2), Breathe Normally, Black Earth Rising, Occupied (season 2), Borderliner, Ozark, Close, Deadwind, Minimalisim: A Documentary About the Important Things, 1983, Justice, Roma, When Heroes Fly, Innocent, The Paper, Trotsky, Tabula Rasa, El Ministerio del Tiempo, Peaky Blinders, Wild District, Mad Men, Weeds…there are more, dozens more.

Posted in Cancer, Film, Health, Television series | 2 Comments

Just Asking the Question

I read this morning that the Postmaster General blamed the massive and growing deficits of the U.S. Postal Service on a business model mandated by law.  Postmaster General Megan Brennan said. “The flawed business model imposed by law continues to be the root cause of our financial instability.” I think she has a very good point. She runs an organization that is restricted by law from adjusting to a rapidly changing business environment. Railroads suffered from operating as though their environment did not matter when, in fact, it did. They almost died as a result. Passenger rail, as much as I hate to say it, effectively did die in most places in the U.S.

I wonder what other institutions might be at risk of becoming archaic in the absence of change? I wonder whether, for example, the structure of our “democracy” in the U.S. might be at risk of succumbing to its own obsolescence if we, collectively, don’t make some hard decisions about its structure and operation? We treat the Constitution as if it is inviolable, a sacred text that is not subject to significant change. We’ve amended it, but we’ve never considered replacing it. Admittedly, the risks of replacing it or, even, subjecting it to massive revisions are great. Recent calls (that grow louder with every year) for a constitutional convention are based on making changes that would force the country on a radical shift to the right, removing many of the protections now in place. That’s dangerous. But is it possible that, even in the face of that risk, we need to consider looking at the rules that govern our country with a new set of eyes?

Do we want to be in the position of looking back at our missed opportunities and saying, “The flawed business model imposed by our Constitution was the root cause of our  instability and ultimate demise.”?

Just asking the question.

 

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Bidirectional Exchange

Daybreak is a special time, but so is nightfall.
Both allow us to peer into the universe from
different angles, watching time unfold like
a flower blossom, unveiling secrets made visible
only to those who expend the energy to see them.

If something or someone is on the other side of daybreak
and nightfall, I wonder whether they, peering into
the secrets unveiled by unfolding time, see us and the
secrets we unwittingly share by revealing our curiosity
and opening ourselves to the unknown?

Posted in Poetry, Writing | 3 Comments

2800

Here is blog post 2800. The vast majority of my posts have been, in a sense, invisible. That is, no one but I ever saw them. Or, if they were seen, they were seen by people who were misdirected to my blog through online searches designed to find something else. During the recent few years, that may not necessarily have been the case, but in the early years virtually no one stumbled across my blog intending to read my posts. Even more recently, the extremely limited traffic has been, for the most part, accidental. Oh, occasionally, a few friends would make a point to stop by, but this blog has been decidedly schizophrenic from the start, so no one—not even friends—really wanted to read my stream of consciousness blather. For that reason—that I have always known my schizophrenic mode of writing would always be of extremely limited interest—I’ve never tried to develop a “following.” I’ve never tried to market this little spot on the internet.

But I continued and continue to write. I frequently flush the detritus out of my head and onto my blog posts. With 2800 posts under my belt on this blog, I think a committed investigator—a trained forensic psychologist with enormous patience—could read enough of my writing to determine what sort of person I am. I wish a committed investigator would do precisely that and would share the determination with me. I’d like to know more about the guy who writes this drivel.

Considering the sheer volume of stuff I’ve produced, I think it’s likely that I really could find enough material in what I’ve written to compile an anthology that might, just might, be worth reading. I’ve said that before, though. Several times. Despite my failure to act on the assertion thus far, I still believe it. I may be delusional, of course, but I think there’s enough decent writing, married to enough decent thought, to justify the effort necessary to make a book. The question, of course, is whether there are enough people who would be interested in it to make the effort worth my while. The bigger question is whether I’ll ever get off my duff and try to wade through what I’ve written, seeking the gems. Perhaps my failure to do it has been for a reason: that I’m afraid the “gems” I’m seeking aren’t really there. If that’s the case, it may be in my best interest not to push it. Who needs confirmation that a fear is justified? On the other hand, confronting one’s fears may be healing, in a sense.

But with good fortune, I’ll be able to write another 2800 posts in the coming few years, keeping my eyes open for the occasional gem. It’s taken me something over five years to get these first 2800 posts done. I’ll check back in a few years to see how I’m doing. And I’ll try to keep track of any gems I encounter along the way.

Posted in Writing | 4 Comments

Border Child

As a child, I never really understood how close to the border we lived. But Google Maps put it in perspective. We lived considerably less than a mile from the U.S.-Mexico border, defined by a river, the Rio Grande. Maybe the proximity to the border could explain, at least in part, my affinity and reverence for Mexican-American heritage (and my odd wish that it was my heritage). I lived at 1307 West Saint Charles Street in Brownsville, Texas for the first years of my life. I don’t know precisely when my parents decided to move away from Brownsville in favor of Corpus Christi, one hundred-sixty miles north. But it was around the time I was five years old. I don’t remember the move. In fact, I don’t remember much about my first few years of life. I’ve written many times before about the fact that I have very few memories of my childhood. That absence of childhood memories has always troubled me, though I can’t say just why. But it has. Perhaps it’s because, knowing that I have exceedingly few childhood memories, I question whether those few I have are real. They may, instead, be stories about certain circumstances I heard so many times that they evolved into artificial  “memories” I think are mine. My sparse recollections may well be accidents that emerged from family lore. But I do remember my childhood street address, though occasionally I’ll forget the street numbers for a short while, the way I did recently when a friend told me he and his wife planned to travel to Brownsville soon. I gave him the incorrect address, then corrected it moments later. I don’t know why I gave him the address, other than in the hope he’d drive by my childhood home. If he were to do it, he’d find a little house on the corner of West Saint Charles and Thirteenth Streets. A covered bus stop sits on the corner on the east side of the house. If memory serves, which it probably doesn’t, the bus stop wasn’t there when I was a child. Or, at least, it wasn’t covered. But maybe it was there all along. I doubt it. Public transportation in Brownsville may well have been years in the future when I was a child.

I’ve never had a particularly strong urge to know details about my childhood, even though the paucity of memories of that time of my life is disturbing. But, lately, I’ve become more curious. It occurs to me that, aside from family stories and photos and the like, I might learn more by doing some real research. For example, I might examine old newspaper stories about events that took place in the Rio Grande Valley during that time or, if I were to travel to Brownsville, I might look at Cameron County records available at the courthouse. And, if any of the people who knew me or my family from that period are still alive and willing, interviews might reveal bits and pieces of my past that family lore don’t. As much as I think family lore is a value source of information, I know with certainty that recollections bend and sometimes break with time. I know that memories bend toward truths we want to find rather than truths that don’t paint the past with such positive brush strokes.

Would it be possible, I wonder, to find relatives of Petra, the woman who looked out after me and cleaned house and otherwise kept the household operating well while my parents were away at work? Would those relatives know anything? Would they be willing to share anything? Would their memories be any more reliable than anyone else’s? I remember (or is the memory a “plant”?) Petra making leche quemada, a delicious sweet treat. And I remember (maybe) a time when a can of sweetened condensed milk exploded while she was making the treat. Are those memories real? I would have been five years old, maybe younger. Could I actually recall such stuff that far back? Sixty years ago

My life as a border child is a fuzzy, faded, incomplete memory. I want my own memories of that time, not recollections of my older brothers and sister. But perhaps it’s impossible to prime the pump at this late stage. Maybe even looking at old pictures and reading old accounts of visits to the pool El Rancho Grande Motel (was that the name of the place?), where my folks, I think, paid a membership for access to the pool, won’t work to get my memory working.

We’ll see. Perhaps. One day.

Posted in Memories, Mexico | 3 Comments

If I Were Younger

If I were younger, I might make a point of learning the Icelandic language. The vast majority of Icelanders speak the language and a tiny fraction speak English. So, to get along comfortably in the country, I would think it would pay to speak the native language. And, as you can see from the image, I could start the process for under $30. That’s a small price to pay for a modicum of comfort during a visit to the country. Which, by the way, could become more than a visit. Iceland could become a lifelong home. I haven’t extensively explored the relative ease or difficulty of immigrating to Iceland, though I gather from limited investigation that I’d have an easier time of it if I were European. The process involved in becoming European is probably not worth it, though, so I’ll just have to explore direct immigration to Iceland, without an intervening European re-homing.

Of course, the idea of immigrating to Iceland without first visiting the country and getting a feel for the “lay of the land” is absurd. Except people do it every day (not necessarily involving Iceland…but, you know, immigrating to countries in which they’ve never before set foot). But I’m not quite that adventurous. Though if I were younger, I might be. In fact, if I were younger, I might be a very different person compared to the person I was when I was younger the first time around. Yes, I’d be very different. More adventurous, less afraid, more willing to take existential risks. Not existential as in pole vaulting from the top of the highest peaks in the Himalayas, but existential in terms of considering the value of abandoning a culture that, as I aged, I discovered was flawed in ways that claws holes in one’s soul. That kind of existential risk.

Iceland’s population is only about 340,000. And its climate is quite interesting. The average high temperature in the hottest month, July, is 52F and the average low in the coldest month, January, is 32F. Sweater weather year-round!

If I were younger, I could live my life over again. (No kidding? That’s a stunning statement if I ever made one.) I could be the risk-taker that I never was. Well, I was. In a way. I started a business that turned into a reasonably successful one, in relative terms. But that’s not the kind of risk I’m talking about. I’m talking about risks that have the potential of changing one’s life in fundamental ways. Like trekking across India or moving to France or Spain or spending time in Uzbekistan doing research on the Great Bustards, like a couchsurfer we once hosted did. Those are the kinds of things that change one’s perspectives on the world in which we live. They broaden one’s understanding of cultures and help us understand that ours, the one in which we live in isolated, insulated, self-delusional pride, is not perfect. Nor is any culture. But I digress.

If I were younger, I might look ahead to becoming a volcanologist in Iceland. Or, perhaps, a tour guide in Reykjavík or a welder. Not everything in Iceland is golden glitter and friendly puppies, though. Iceland has crime, too. For example (speaking of welders and welding), I read this morning an article from a December 2015 issue of Iceland Magazine that reported the following:

Earlier today the District Court of Reykjavík sentenced Lárus Welding, the former CEO of failed bank Glitnir, to five years in prison, the Icelandic National Broadcasting Service reports. Jóhannes Baldursson, the former manager of capital markets at Glitnir, received a two year sentence while Þorvaldur Lúðvík Sigurjónsson, former CEO of investment bank Saga Capital received an eighteen month sentence.

These sobering realities brought home the fact that, if I were younger several years ago (I guess I was, but it’s different), I might have been caught up in the web of criminality that snared Lárus  and Jóhannes and Þorvaldur. That puts an entirely different complexion on the concept of risk. What if, I wonder, I had moved to Iceland as a brash twenty-something and had been foolish enough to run with the wrong crowd? I might have found myself in an Icelandic prison. Based on a little exploration this morning, I discovered it might not be so bad. I would have been one of only about 200 inmates in one of five prisons, two of which are “open” prisons without bars and walls and perimeter fences. Maybe the others are like that, too. I’m intrigued by Icelandic prisons. I may opt to travel to Iceland and break a law just so I can be incarcerated. But I probably don’t need to do that. I learned during my exploration that the prison authorities gladly accepted a writer’s request that he be allowed to spend a couple of weeks in prison just to see what it’s like on the inside. I am beginning to LOVE Iceland! The prison management thought that was an excellent, intriguing idea. I cannot imagine the response if I asked to spend two weeks in a Federal Correctional Institution in the United States.

If I were younger, I might explore the possibility of a career in prison management in Iceland. My brief foray into criminology and corrections in what was then the Texas Department of Corruption Corrections dissuaded me from pursuing a career in U.S. prisons. Perhaps, if I were younger, I might find a more appealing environment in which prisons actually helped reshape lives gone awry. Maybe.

Ach, this is all regret masquerading as fantasy. Regret has no place in early-onset old age, so I’ll throw it out into the woods behind the house and let it settle on decaying logs. But I’m still intrigued by Iceland.

Posted in Absurdist Fantasy | Leave a comment

Condolences to the Parents of Julen Rosello

I remember the saga of Baby Jessica, the child who fell into a well in her aunt’s yard in Midland, Texas in the late 1980s. It seemed like every person in the U.S. and perhaps around the world held our collective breaths as the searchers worked for more than two days to find and free her. And when she was brought out, the world heave a sigh of relief. It was a beautiful story. But, I think, the story quickly fled from our collective conscience and we moved on to other things. Many of the people involved in the incident, though, were not so fortunate to let the trauma simply fade away. More on that in a moment, but first I’d like to consider a much more recent incident of a child who fell into a well.

Unlike the story of Baby Jessica, the media’s coverage of the story of Julen Rosello, who fell into a borehole in Totalán, Spain (which I believe is several miles outside Malaga) was not so extensive. The child’s plight did not capture the headlines in the same way Jessica McClure grabbed the world’s attention. There were stories about Julen, but they were occasional and updates lacked the frenetic pace that Jessica’s story did. Why? Who knows? Maybe it was because we’ve become more accustomed to tragedy. Perhaps the constant flood of “news” has made us immune to the horror such a story generates. Or it might be because the child’s predicament was foreign to us. He was, after all, a Spanish child, not an American, so the world might not value his story as much as it would an American. I’ve admittedly a cynic; I have no evidence that the world’s consciousness has become accustomed to treating American tragedies with greater solemnity than it treats tragedies that take place in other places.

The bottom line is that two-year-old Julen Rosello died. His body was retrieved from the borehole last Saturday, thirteen days after he fell in. Spanish Prime Minister Pedro Sanchez said, “All of Spain shares in the infinite sadness of Julen’s family.” The rest of the world seemed either to take no notice of the outcome of the search or to treat it as a footnote, buried beneath stories about Venezuela’s political chaos or Washington’s political madness.  U.S. media covered the tragedy and its outcome, although not in a particular visible way. Only in passing, from what I could see, did the media take note of the fact that the experience for Julen’s parents was the second such heart-wrenching tragedy, the Associated Press noting that “El Pais reported that the couple had lost Julen’s older brother, Oliver, when the 3-year-old suffered a heart attack during a walk on the beach two years ago.”

I wonder how Julen’s parents will cope over the long haul? I wonder whether, indeed, they will ever be able to adjust to a life of perpetual grief and the stress such an emotional weight must carry with it? Baby Jessica’s parents divorced a few years after her rescue. Did the ordeal they faced during their daughter’s rescue have anything to do with it? I can’t say. But I suspect it couldn’t have contributed in a positive way to their relationship. The paramedic who inched his way into the tunnel to rescue Jessica battled posttraumatic stress disorder as a result of what was called the “arduous rescue effort.” Later reports say he struggled to cope with the decline of the recognition that came after his heroic act and he committed suicide in 1995. I don’t know who was involved in finding and removing Julen’s body from the Spanish borehole, but I gather the media attention on the rescuers hasn’t been nearly as intense as it was during Baby Jessica’s ordeal. Perhaps that lack of attention will save their lives.

Julen’s parents, I suspect, have no interest in fame or recognition that might follow the death of their child. But I hope, at least, they can depend on an outpouring of support from around the world. It won’t be as intense as the worldwide support that Baby Jessica’s parents felt. That’s obvious. But I hope it will be enough. Whatever “enough” is. But, of course, it can never be enough. Not after a tragedy that ripped one’s world into impossibly painful pieces.

 

Posted in Uncategorized | 2 Comments

Cancer Journal 18, 2019

My radiologist called in two prescriptions for me yesterday in response to my recent issues with burning pain after swallowing. My regular pharmacy told me yesterday there were “issues” regarding the amount of time for which the drugs were prescribed. I opted to let the pharmacy work it out and pick them up today. Only one was ready today; the pharmacy was out of stock on the other. Fortunately, a nearby pharmacy had it in stock, so the prescription was transferred. The two prescriptions, coupled with another “prescribed” intake, aloe vera juice, make for a complicated regimen four times a day: drink aloe, wait twenty minutes, take drug 1, wait 20 minutes, take drug 2 (which is first crushed and mixed with 10cc of water), and wait 20 minutes. What a pain! It could be worse, though, so I’ll try not to complain. And if the regimen causes the swallowing-related pain to disappear, it’s most definitely worthwhile.  We’ll see.

I spoke to my primary care doc today about my issues with my oncologist. He advised me to finish the basic treatment and, then, if I’m still having issues, ask him for another referral. He spoke to me for a good 15 minutes by phone and made some good points. I feel better simply for having had the conversation.

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And the Bible Said

I read a reference yesterday to a bumper sticker. It read as follows: “Pray for Trump—Psalm 109:8.” My biblical illiteracy being what it is, I had to look it up. It reads:

8 Let his days be few; and let another take his office.

Though I appreciated the humor, the reference meant nothing to me, so I looked up the context. I started a few chapters earlier, to no avail. I have to admit, I found reading Psalm neither interesting nor coherent. I suspect I’d have to do a lot more reading to make sense of it.

My continued exploration of this “imprecatory prayer” revealed that its use in this context is not a creative new spin of the Bible by brilliant liberal thinkers to condemn an occupant of the White House. Not even close. Pastor Wiley Drake, a  right-wing minister and radio host used it in reference to President Barack Obama. Kansas Speaker of the House Michael O’Neal sent an email to his Republican colleagues that said, “At last — I can honestly voice a Biblical prayer for our president! Look it up — it is word for word! Let us all bow our heads and pray. Brothers and Sisters, can I get an AMEN? AMEN!!!!!!

In THAT context, I find it less humorous. Especially in light of the fact that Obama was, in my opinion, one of the most dignified, intelligent, and graceful leaders the U.S. has ever had. Compared to the world-record-holder liar whose self-love is so over the top that it’s embarrassing to watch him repeatedly attempt to achieve auto-erotic orgasm through self-congratulatory strokes.

I realize, of course, finding humor in the verse is sinister. But, given the miserable bastard to whom the original quote I read applies, apropos. You know, there are people who are just beyond “redemption” in the human sense and, I suspect, in the biblical sense. Some people have practiced their egotism and disdain for others to so great an extent that they are incapable of recovering from their monstrous selves. A person who throws his own supporters under the bus in favor of his own self-interests, while assuring them he is looking out after their interests. is a special kind of demon.

According to Wikipedia, Psalm 109 is “a psalm noted for containing some of the most severe curses in the Bible.” Ya think? Well, it gets even more severe. As I read Psalm 109 and read past 109:8, I hit upon something I found even more darkly humorous. Here’s Psalm 109:9:

9 Let his children be fatherless, and his wife a widow.

The lesson in this idiocy is that anyone can mine the world’s literature (much of which owes its existence to biblical passages, I think), including the bible, for clever phrases that support a particular point of view. The fact that a phrase can be lifted and placed in a context that suggests it was written specifically to be placed in that context is evidence that we’re all thieves and plagiarists, not to mention hard-hearted bastards who don’t have a single compassionate bone in our bodies. Well, that may be a bit overstated and unnecessarily harsh. In fact, it’s simply evidence that we have not yet achieved a state in which we are “a finished version of our better selves,” as someone I know might say.

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Cancer Journal (more or less) 17 and Other Stuff

The bright sun and cerulean sky belie the frigid temperature this morning. According to my computer’s weather app, it’s 25 degrees outside. Last night’s weather forecast called for clear skies this morning but carried a warning: Though it might appear clear and sunny, watch for water on the road if you must drive in the morning; that won’t be water, it will be black ice.

I’ve had experience with black ice. It’s dangerous stuff, whether in a car or on foot. No matter a person’s driving experience, one has absolutely no control of their wheels or their feet over black ice. I avoid the stuff when I can. I hope the roads are clear and dry by the time I have to leave for my radiation treatment, but I suspect there will be places along my route that will remain dicey. The heavy rains night before last left several spots where water ran over the roadway and filled deep indentations in the pavement. Those spots might remain frozen and dangerous. I’ll just have to take longer to get to my appointment. Of course, as is usually the case, I’ll leave early and arrive VERY early. Better that than not arrive at all.

After my radiation treatment, I’ll go in for a blood draw. And then, depending on what time it is, I may go to Best Buy to buy a Roku Premiere. I’m investigating options for television reception. I’ve begun to look into SlingTV with Cloud DVR. The basic price for the two is $30 per month, but that doesn’t get the full range of channels. And there’s a long list of channels for an upcharge that does not permit recording, as I understand it. We’ll see. I could easily live without cable or, or that matter, any other service. I would like to keep Netflix or some service like it. But my wife has an affinity for a number of programs that require access to some form of  “TV” service. Again, we’ll see.

I have to be home before 2:00 p.m., when a “Nurse Navigator” from  my oncology provider’s corporate offices is to call me. The company apparently has developed a new program that assigns this person (or his/her colleagues) to be available 24/7 by phone. And they really insist that patients “accept” this service. Their insistence is such that, if the patient doesn’t, the patient must look for another provider. And it’s all at “no charge to you.” But Medicare is paying for it. Which, I suspect, is the reason it is mandatory. Though the services might be valuable, I’m annoyed at having them forced upon me so my oncologist’s corporate masters can make a buck (or ten thousand) off of my Medicare. I can already imagine how my 2:00 p.m. call is going to go; I don’t blame Phil (he’s the one to call me), but I’m not happy with his corporate overlords’ conspicuous greed and I’d like to let someone know. Of course, I may be making a lot of erroneous assumptions about this program. I’ll acknowledge that. But I suspect my fundamental assumption, that it’s designed to make money for the corporate master, is correct. As with everything we’ve not seen but someday will, we’ll see.

Yesterday’s radiation therapy was uneventful, the way I like it. I hope today’s, along with the blood draw, is the same.

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