Border Child

As a child, I never really understood how close to the border we lived. But Google Maps put it in perspective. We lived considerably less than a mile from the U.S.-Mexico border, defined by a river, the Rio Grande. Maybe the proximity to the border could explain, at least in part, my affinity and reverence for Mexican-American heritage (and my odd wish that it was my heritage). I lived at 1307 West Saint Charles Street in Brownsville, Texas for the first years of my life. I don’t know precisely when my parents decided to move away from Brownsville in favor of Corpus Christi, one hundred-sixty miles north. But it was around the time I was five years old. I don’t remember the move. In fact, I don’t remember much about my first few years of life. I’ve written many times before about the fact that I have very few memories of my childhood. That absence of childhood memories has always troubled me, though I can’t say just why. But it has. Perhaps it’s because, knowing that I have exceedingly few childhood memories, I question whether those few I have are real. They may, instead, be stories about certain circumstances I heard so many times that they evolved into artificial  “memories” I think are mine. My sparse recollections may well be accidents that emerged from family lore. But I do remember my childhood street address, though occasionally I’ll forget the street numbers for a short while, the way I did recently when a friend told me he and his wife planned to travel to Brownsville soon. I gave him the incorrect address, then corrected it moments later. I don’t know why I gave him the address, other than in the hope he’d drive by my childhood home. If he were to do it, he’d find a little house on the corner of West Saint Charles and Thirteenth Streets. A covered bus stop sits on the corner on the east side of the house. If memory serves, which it probably doesn’t, the bus stop wasn’t there when I was a child. Or, at least, it wasn’t covered. But maybe it was there all along. I doubt it. Public transportation in Brownsville may well have been years in the future when I was a child.

I’ve never had a particularly strong urge to know details about my childhood, even though the paucity of memories of that time of my life is disturbing. But, lately, I’ve become more curious. It occurs to me that, aside from family stories and photos and the like, I might learn more by doing some real research. For example, I might examine old newspaper stories about events that took place in the Rio Grande Valley during that time or, if I were to travel to Brownsville, I might look at Cameron County records available at the courthouse. And, if any of the people who knew me or my family from that period are still alive and willing, interviews might reveal bits and pieces of my past that family lore don’t. As much as I think family lore is a value source of information, I know with certainty that recollections bend and sometimes break with time. I know that memories bend toward truths we want to find rather than truths that don’t paint the past with such positive brush strokes.

Would it be possible, I wonder, to find relatives of Petra, the woman who looked out after me and cleaned house and otherwise kept the household operating well while my parents were away at work? Would those relatives know anything? Would they be willing to share anything? Would their memories be any more reliable than anyone else’s? I remember (or is the memory a “plant”?) Petra making leche quemada, a delicious sweet treat. And I remember (maybe) a time when a can of sweetened condensed milk exploded while she was making the treat. Are those memories real? I would have been five years old, maybe younger. Could I actually recall such stuff that far back? Sixty years ago

My life as a border child is a fuzzy, faded, incomplete memory. I want my own memories of that time, not recollections of my older brothers and sister. But perhaps it’s impossible to prime the pump at this late stage. Maybe even looking at old pictures and reading old accounts of visits to the pool El Rancho Grande Motel (was that the name of the place?), where my folks, I think, paid a membership for access to the pool, won’t work to get my memory working.

We’ll see. Perhaps. One day.

Posted in Memories, Mexico | 3 Comments

If I Were Younger

If I were younger, I might make a point of learning the Icelandic language. The vast majority of Icelanders speak the language and a tiny fraction speak English. So, to get along comfortably in the country, I would think it would pay to speak the native language. And, as you can see from the image, I could start the process for under $30. That’s a small price to pay for a modicum of comfort during a visit to the country. Which, by the way, could become more than a visit. Iceland could become a lifelong home. I haven’t extensively explored the relative ease or difficulty of immigrating to Iceland, though I gather from limited investigation that I’d have an easier time of it if I were European. The process involved in becoming European is probably not worth it, though, so I’ll just have to explore direct immigration to Iceland, without an intervening European re-homing.

Of course, the idea of immigrating to Iceland without first visiting the country and getting a feel for the “lay of the land” is absurd. Except people do it every day (not necessarily involving Iceland…but, you know, immigrating to countries in which they’ve never before set foot). But I’m not quite that adventurous. Though if I were younger, I might be. In fact, if I were younger, I might be a very different person compared to the person I was when I was younger the first time around. Yes, I’d be very different. More adventurous, less afraid, more willing to take existential risks. Not existential as in pole vaulting from the top of the highest peaks in the Himalayas, but existential in terms of considering the value of abandoning a culture that, as I aged, I discovered was flawed in ways that claws holes in one’s soul. That kind of existential risk.

Iceland’s population is only about 340,000. And its climate is quite interesting. The average high temperature in the hottest month, July, is 52F and the average low in the coldest month, January, is 32F. Sweater weather year-round!

If I were younger, I could live my life over again. (No kidding? That’s a stunning statement if I ever made one.) I could be the risk-taker that I never was. Well, I was. In a way. I started a business that turned into a reasonably successful one, in relative terms. But that’s not the kind of risk I’m talking about. I’m talking about risks that have the potential of changing one’s life in fundamental ways. Like trekking across India or moving to France or Spain or spending time in Uzbekistan doing research on the Great Bustards, like a couchsurfer we once hosted did. Those are the kinds of things that change one’s perspectives on the world in which we live. They broaden one’s understanding of cultures and help us understand that ours, the one in which we live in isolated, insulated, self-delusional pride, is not perfect. Nor is any culture. But I digress.

If I were younger, I might look ahead to becoming a volcanologist in Iceland. Or, perhaps, a tour guide in Reykjavík or a welder. Not everything in Iceland is golden glitter and friendly puppies, though. Iceland has crime, too. For example (speaking of welders and welding), I read this morning an article from a December 2015 issue of Iceland Magazine that reported the following:

Earlier today the District Court of Reykjavík sentenced Lárus Welding, the former CEO of failed bank Glitnir, to five years in prison, the Icelandic National Broadcasting Service reports. Jóhannes Baldursson, the former manager of capital markets at Glitnir, received a two year sentence while Þorvaldur Lúðvík Sigurjónsson, former CEO of investment bank Saga Capital received an eighteen month sentence.

These sobering realities brought home the fact that, if I were younger several years ago (I guess I was, but it’s different), I might have been caught up in the web of criminality that snared Lárus  and Jóhannes and Þorvaldur. That puts an entirely different complexion on the concept of risk. What if, I wonder, I had moved to Iceland as a brash twenty-something and had been foolish enough to run with the wrong crowd? I might have found myself in an Icelandic prison. Based on a little exploration this morning, I discovered it might not be so bad. I would have been one of only about 200 inmates in one of five prisons, two of which are “open” prisons without bars and walls and perimeter fences. Maybe the others are like that, too. I’m intrigued by Icelandic prisons. I may opt to travel to Iceland and break a law just so I can be incarcerated. But I probably don’t need to do that. I learned during my exploration that the prison authorities gladly accepted a writer’s request that he be allowed to spend a couple of weeks in prison just to see what it’s like on the inside. I am beginning to LOVE Iceland! The prison management thought that was an excellent, intriguing idea. I cannot imagine the response if I asked to spend two weeks in a Federal Correctional Institution in the United States.

If I were younger, I might explore the possibility of a career in prison management in Iceland. My brief foray into criminology and corrections in what was then the Texas Department of Corruption Corrections dissuaded me from pursuing a career in U.S. prisons. Perhaps, if I were younger, I might find a more appealing environment in which prisons actually helped reshape lives gone awry. Maybe.

Ach, this is all regret masquerading as fantasy. Regret has no place in early-onset old age, so I’ll throw it out into the woods behind the house and let it settle on decaying logs. But I’m still intrigued by Iceland.

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Cancer Journal 18, 2019

My radiologist called in two prescriptions for me yesterday in response to my recent issues with burning pain after swallowing. My regular pharmacy told me yesterday there were “issues” regarding the amount of time for which the drugs were prescribed. I opted to let the pharmacy work it out and pick them up today. Only one was ready today; the pharmacy was out of stock on the other. Fortunately, a nearby pharmacy had it in stock, so the prescription was transferred. The two prescriptions, coupled with another “prescribed” intake, aloe vera juice, make for a complicated regimen four times a day: drink aloe, wait twenty minutes, take drug 1, wait 20 minutes, take drug 2 (which is first crushed and mixed with 10cc of water), and wait 20 minutes. What a pain! It could be worse, though, so I’ll try not to complain. And if the regimen causes the swallowing-related pain to disappear, it’s most definitely worthwhile.  We’ll see.

I spoke to my primary care doc today about my issues with my oncologist. He advised me to finish the basic treatment and, then, if I’m still having issues, ask him for another referral. He spoke to me for a good 15 minutes by phone and made some good points. I feel better simply for having had the conversation.

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Cancer Journal (more or less) 17 and Other Stuff

The bright sun and cerulean sky belie the frigid temperature this morning. According to my computer’s weather app, it’s 25 degrees outside. Last night’s weather forecast called for clear skies this morning but carried a warning: Though it might appear clear and sunny, watch for water on the road if you must drive in the morning; that won’t be water, it will be black ice.

I’ve had experience with black ice. It’s dangerous stuff, whether in a car or on foot. No matter a person’s driving experience, one has absolutely no control of their wheels or their feet over black ice. I avoid the stuff when I can. I hope the roads are clear and dry by the time I have to leave for my radiation treatment, but I suspect there will be places along my route that will remain dicey. The heavy rains night before last left several spots where water ran over the roadway and filled deep indentations in the pavement. Those spots might remain frozen and dangerous. I’ll just have to take longer to get to my appointment. Of course, as is usually the case, I’ll leave early and arrive VERY early. Better that than not arrive at all.

After my radiation treatment, I’ll go in for a blood draw. And then, depending on what time it is, I may go to Best Buy to buy a Roku Premiere. I’m investigating options for television reception. I’ve begun to look into SlingTV with Cloud DVR. The basic price for the two is $30 per month, but that doesn’t get the full range of channels. And there’s a long list of channels for an upcharge that does not permit recording, as I understand it. We’ll see. I could easily live without cable or, or that matter, any other service. I would like to keep Netflix or some service like it. But my wife has an affinity for a number of programs that require access to some form of  “TV” service. Again, we’ll see.

I have to be home before 2:00 p.m., when a “Nurse Navigator” from  my oncology provider’s corporate offices is to call me. The company apparently has developed a new program that assigns this person (or his/her colleagues) to be available 24/7 by phone. And they really insist that patients “accept” this service. Their insistence is such that, if the patient doesn’t, the patient must look for another provider. And it’s all at “no charge to you.” But Medicare is paying for it. Which, I suspect, is the reason it is mandatory. Though the services might be valuable, I’m annoyed at having them forced upon me so my oncologist’s corporate masters can make a buck (or ten thousand) off of my Medicare. I can already imagine how my 2:00 p.m. call is going to go; I don’t blame Phil (he’s the one to call me), but I’m not happy with his corporate overlords’ conspicuous greed and I’d like to let someone know. Of course, I may be making a lot of erroneous assumptions about this program. I’ll acknowledge that. But I suspect my fundamental assumption, that it’s designed to make money for the corporate master, is correct. As with everything we’ve not seen but someday will, we’ll see.

Yesterday’s radiation therapy was uneventful, the way I like it. I hope today’s, along with the blood draw, is the same.

Posted in Cancer, Health, Rant | 2 Comments

Cancer Journal 16, 2019

Part I

My wife reminded me to make a note of a new development. This morning, I notice a quite significant pain when I swallow hot coffee and cold water. And pain, though not so significant, accompanies swallowing anything else. The pain feels like it is in my chest, but obviously it must be in my esophagus. I assume it’s a side effect of the radiation treatment. I’ll have a word with the radiological oncologist tomorrow during my “meet the doctor” Thursday appointment.

Today (I’ll leave in just a few minutes), I go in for my 15th treatment, after which I will be half way through radiation. Celebrations are in order! I should have a nice, big shot of Maker’s Mark whiskey! Well, maybe not. But I want one. Instead, I’ll drink my aloe vera juice, which ostensibly should help minimize such things as the burning pain that accompanies swallowing coffee and everything else.

If, after my visit with the radiology techs this morning there’s anything else to report, I’ll continue with a Part II. If not, I won’t.

 

Posted in Cancer, Health | 1 Comment

Borrowing Money or Time

I’m sure I’ve written about it before, haven’t I? That I am the sixth of six children? That I was an unplanned intrusion into a family that was more than complete at five? That I was a mistake, probably discovered too late to be corrected? My parents never (that I recall) told me I was an uncorrected mistake, but I was not oblivious to the obvious financial strain that a sixth child had on the family. Not that I did anything to ameliorate the situation. I took far more than I ever gave, but that’s what children do, isn’t it? Yet the natural order usually gives them the opportunity to repay, in one form or another, the value of the investment over the course of the parents’ lives. Adult children can count on being given the opportunity to demonstrate to their parents that, regardless of the sacrifices their parents made, those sacrifices were worthwhile. But that’s not always the case. Parents die too early or children mature far too late or, as in my case, both. That’s the problem with unplanned children and parents who started late. My mother was thirty-one when her first child was born; my father was thirty-six. They didn’t stop having children until fourteen years later, when I showed up. And then, thirty-two years after that, they were both gone.

My folks taught me to be responsible with money. My mother, in particular, taught me that I should expect to earn interest on my money. In her later years, when she occasionally needed to borrow money from me for reasons I don’t recall, she expected to repay me with interest. And I didn’t object. I let her repay me with interest. If I had been the kind of son I wish I had been, I would have told her I would not let her repay the money, much less with interest. But I hadn’t matured enough to realize I should have made the money a gift to her or, in reality, a repayment of the investment she had made in me for almost thirty years. I can’t undo the fact that I actually kept a ledger of how much she owed me. It’s what she taught me to do, but I should have known better. I have no idea what she needed the money for, but I know with some certainty that it wasn’t for luxury items. It probably was to pay the mortgage or buy groceries or put gas in the car. With the exception of the mortgage, things she had paid for me over the years. And, in fact, my folks paid my rent during the lean years. Yet I didn’t reciprocate the way I should have done.

I doubt I’ll ever get over the guilt and regret I still feel for treating my parents’ need for money as just another financial transaction. I was unplanned, a mistake. And that mistake cost my folks the modicum of financial comfort they might otherwise have enjoyed in their retirement. I try to take some comfort in the fact that both my parents got some joy out of having the unplanned sixth child. They didn’t, as far as I know, ever openly express regret that I came along. But I can’t help but think that they would have led lives less burdened by financial concerns if they had just stopped at five. What’s done is done, of course. My regret and guilt won’t change a damn thing. Knowing that to be the case, I wish I could erase that regret and guilt. It’s not something I think about all the time, but when I do it consumes me. It will pass; it always does. I wonder whether it will ever disappear or, at least, recede into memory so deep that it doesn’t so openly intrude on my life.

Posted in Family | 3 Comments

Philosophizing in a Cold Room

Recently, I was thinking about good and evil (I use both words advisedly, as I do not attribute to them any religious significance) in humankind. I wondered why, when we as humans generally agree that good is the preferable of the pair, we have not collectively erased evil from the species. Perhaps the only way we can define any given condition in our experience is to contrast it with its opposite. For example, can we understand and appreciate the comfort of warmth as a pleasant experience only when we can compare it with the unpleasant experience of cold?  Neither warm nor cold nor good nor evil are precise. All occupy spaces along a spectrum with no endpoints.

But I don’t think that reason, even if it explains the survival of evil, has ever been made consciously and collectively. Yet people have long written about evil as the yardstick against which good is measured, so the idea is not new.

Shifting gears: would it be possible for us to “breed evil out of the species” through a program mimicking the way in which new breeds of dogs are bred to exhibit certain traits and eliminate others? The very idea of controlling human traits through breeding is anathema to us, thanks to monstrous experiments conducted by the Nazis in Germany and our own scientists in the forties and fifties. And others. But what if any such programs were made voluntary? Would selective breeding be so offensive then? The arguments against even allowing such an idea to enter my head are filling the streets of America even as I type this sentence. How dare I even entertain the idea?! I can hear the chants now: “People who allow their minds to go to THAT dark place should be shackled and chained in dungeons!”

I suppose the idea of actually “breeding evil out of the species” is one for ethicists to debate. Given the entrenched attitudes about life, when it begins and ends, and the extent to which we (the collective we) should control it, the argument will never end. (We can’t even agree whether we ought to control diseases through vaccinations against them, for God’s sake.) But back to the original point. Not that it matters. Even if we could “breed evil out of the species,” would it last? Would the absence of evil make it, then, impossible to understand good, inasmuch as the concept would have no counterpart against which it could be compared? And would that, then, lead to humankind creating a counterpoint to our goodness? I think we would, indeed, figure out a way to manufacture “evil” as a means of assigning value to “good.” I believe that’s essentially what humankind has done over the eons in manufacturing gods. By creating gods who articulate what constitutes good and evil, we assure ourselves that the necessary contrasts will always be available to shore up the morality we can’t maintain on our own.

And that’s enough philosophizing in a cold room for this morning. I have yet to finish my now cold first cup of coffee, make breakfast, and shower, shave, and get dressed in preparation for my thirteenth radiation therapy session. Just two more sessions and I’ll be half way through radiation. And, after next Monday’s chemo session, I’ll be half way through chemotherapy. Even though I feel much less fatigue than I felt just a week ago, the minor but constant pain is beginning to wear on me mentally. Will it ever end? I worry that it won’t and that I’ll just have to get used to it. And that is a very depressing thought. In a Zen moment, though, I am telling myself to settle in to the experience and accept what is now and not worry what will be, for there is nothing but now which which to be engaged. The key to this conversation with myself is this: do I believe what I’m telling me?

 

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Real Life Lessons

Let me be unkind for a moment, if you don’t mind. I feel like expressing my perceptions of a guy with whom I’ve shared space in the waiting room while lingering in anticipation of my radiation therapy. Don’t assume I’m simply unloading, though. I learn from myself, even from the most base aspects of my personality.

The guy, who I’ll call Redneck Gorilla, accompanies a wheelchair-bound elderly man. I’ll assume the old man is a relative. Redneck Gorilla, who reeks of cigarette smoke, sprawls on the waiting room chair in a way that resembles, in my mind. an octopus filling every available space in a small jar. Surely you’ve seen videos of octopuses squeeze into jars far smaller than you thought possible, right? Well, Redneck Gorilla fills every available surface of the chairs and then some. He sits in the chair, leaking his cigarette-laced effluvium into its fabric, watching country music videos on his phone. I notice that much of the music seems to promote the “good ole Southern boy” persona, with an occasional reference to Neil Young and the fact that “Southern man don’t need him around anyhow.” I’ve seen this thirty-ish guy several times and, without fail, his demeanor is generally what I’d call macho-surly-unfriendly. His response to my “good morning,” twice, was to glance up and glare, then go back to his phone. I call him Redneck Gorilla out of pure, unmitigated bias. Redneck because of both his behavior and his appearance. He’s nearly bald, his remaining halo of hair shaved to the scalp, a perfectly respectable style; but, when coupled with his underslung jaw and his bloodshot eyes, he is, in my prejudiced eyes, the epitome of stupid and redneck, combined in one spherical package. I use the term Gorilla because I imagine his arms hanging down by his side, the hairy knuckles dragging the ground. Yes, I judged this character from his appearance and his willingness to share his stench with the rest of us in the waiting room. I am guilty. My judgment is unkind and reprehensible. Fortunately for me, the man he accompanied to the radiation center had his last treatment on Friday. Now, let me turn my harsh judgment of the guy on its head. Whether he wanted to be there or not, he was there for the old man. Despite my assessment that Redneck Gorilla is among those humans whose redeeming features number in the low single digits, the guy was there for someone else. Maybe his demeanor was shaped by the fact that he’s afraid of losing the guy who he accompanied to radiation. I’m trying to give him the benefit of the doubt. Maybe he is, at his core, a good person. Maybe. But he does a fine job of hiding it beneath a veneer that I find offensive. I try to be better than I am. Often, though, I fail miserably. How would I react, I wonder, if I learned Redneck Gorilla is facing his own cancer diagnosis, a far worse diagnosis than mine? I think I would even more embarrassed at my pettiness than I am.

Now, after going through the exercise of judging someone else on the merits of appearance, odor, and limited interactions, it’s only fair to consider how other people in the waiting room might judge me. I’m not very talkative, so I can see how my limited verbal responses to the few comments others have made might be considered unfriendly. I can envision a guy thinking to himself, “This guy acknowledged my comment, but that’s all. He seems to have made a point of letting me know he wasn’t interested in talking to me.” That’s not correct, but he might understandably think so. And he’s not alone. I’ve had very few conversations with others waiting for treatment. I’ve listened to a couple of them talk about their conditions and their treatment, but I’ve not shared much with them. Perhaps they find me stand-offish and unfriendly. I wonder what names they might have for me: “Aloof Goof.” “Silent Scumbag.” In reality, though, I doubt they have any names for me. I doubt they even paid much attention to me. It’s not about me. People in a waiting room are not placed there to scrutinize me and pass judgment on me. That’s my job. 😉 I’m the one who’s behaving like the jerk I am judging.

There’s an aphorism: “You never know what someone is going through. Be kind. Always.” It’s one I try to follow because I believe it merits a place in my consciousness. People can behave in ways that bother, offend, or otherwise annoy me/you for reasons beyond your capacity to comprehend. Yet try as I might, I fail to acknowledge that reality in my day-to-day life. By judging the guy who smells of cigarettes, I make all manner of assumptions about him, yet I know virtually nothing about him. It bothers me that, despite knowing how I should be and how I should behave, I nonetheless act in ways contrary to what’s “right.” I suppose regular self-reminders are in order.  Unfortunately, even with regular reminders, I keep running into people who challenge the generosity of the aphorism mentioned above. I keep encountering people who just seem to be pigs. And I react, at least mentally, accordingly. But, still, I have to remind myself that I don’t know what they’re dealing with. I have to try to be compassionate. I have to try to exercise some empathy for whatever plight they may be facing.

It’s easier to be judgmental than to be kind. It shouldn’t be. Spreading kindness by being kind is more likely to make a livable world than spreading judgement by being judgmental.

Posted in Cancer, Civility, Compassion, Empathy, Health | 4 Comments

Cancer Journal 15, 2019

This morning, as I was getting ready to take a shower, I noticed that the red area on the skin on the side of my chest, beneath my right arm, had grown in size. I looked closer and noticed a similar rough, red, patchy area on the underside of my arm. It was in an area that comes in contact with the original red splotch. And then I noticed a much smaller, but very similar pair of red splotches mirrored on my left side.  What I originally thought was a “burn” byproduct of my radiation treatment no longer seemed to make sense. I was getting a series of rashes that looked like they had developed, for the most part, overnight. I decided I needed to ask my health care team what gives.

And so I wrote my oncologist a note and left it with her office when I went for my radiation treatment. The note covered multiple issues. While I was in radiation, my wife texted a message that the oncologist’s office had called with answers to the questions I left for her.  I had already asked the radiologist’s nurse about it and she suggested I visit with him after treatment, which I did. He looked at the rashes and asked questions about whether I had changed deodorants or bath soaps. He then called the oncologist. They chatted, during which it was apparent neither of them had any idea what might be causing the rashes. They agreed I should see a dermatologist. The radiologist’s nurse called a dermatologist to make an appointment with a nurse practitioner. First available date: the afternoon of February 1. So I have an appointment. In the interim, I’ll try my own remedies, using cortisone creams and the like.

The oncologist’s response to my question about why she had asked Caris Life Sciences for “molecular intelligence.” It has nothing to do with current treatment. Instead, it was requested to provide data in the event my cancer recurs. If that were to happen, the data might suggest appropriate treatments from what might then be available.

Nothing else new for the time being.

 

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Thinking It Through

I don’t know precisely when it happened, but sometime within the past several months (or maybe the past few years) I seem to have lost the ability to sit at my computer and produce pleasing, mellifluous language. I think I really did have that “gift,” if that’s what it was, and it seems to have left me. Now, when I sit at my computer to write, language more befitting a technical journalist than a creative writer appears on the screen. I just don’t know what happened. I miss my ability to string language into sentences that, to me at least,  please the ear, as if they were carefully woven into rich tapestries of sound and meaning and emotion. Today, my words fall into chaotic mounds as if their context has been stripped from them and they have been left to decay into meaningless syllables.

When I make a concerted attempt to write “flowery” prose, I fail miserably, so much so that I delete entire pages filled with dead words dressed up to look alive, like a corpse in a casket prepared for viewing. Maybe I’m trying too hard, or maybe I’ve just lost what once was an innate ability to write. Good writing involves more than stringing words together in a pleasing way. It relies more on emotion than technical skill. Perhaps that’s what is missing. Perhaps the emotions that fueled my writing have withered or have been used so much that they’re covered with calluses.

Writing has become work. It was never work before. When it was joy, it flowed. But it’s work now and it no longer flows. I have to extract it from my brain with heavy equipment, breaking through the layers of rock in search of tiny veins of ore that might, if I’m lucky, contain enough value to make the exploration worthwhile. But there’s never enough value to warrant the effort. Only when it flowed freely, without being coaxed or forced, was it valuable.

I don’t even know if I want to write. That could be the problem. Maybe I’m writing because I think that’s what I want to do when, instead, I’d rather be fishing or cooking or searching the back roads of country for the kid I used to be. That’s the key.

Mining the emotion without the tools, that’s it. That enables me to feel it and, when I feel it, it breaks my heart. That’s what will enable me to not only want to write but write the way I used to write. I feel it well up in me when something triggers an emotion too intense to ignore. When my eyes begin to brim with tears, that’s when I need to put words down. Not when I’m starched and dry and satisfied. I guess I need to peel back the protective layers I’ve intentionally wrapped around myself. I thought they were protecting me but, instead, I suppose they may have been smothering me.

Posted in Writing | 4 Comments

Cancer Journal 14, 2019

Thursdays are “talk with the doctor” days after radiation treatment. First, a nurse weighs the patient, then another nurse queries the patient about any problems or questions, then a dietitian asks probing questions about the patient’s appetite and discusses his weight loss, and then the doctor comes in for a brief visit. At least that’s the way it works with me. I don’t know if the same protocol is followed with other patients, but I suspect so; that, or something very close.

Today, I was advised that I’d lost three pounds since last week. For me, that was a positive. For the dietitian, not so much. She wants me to drink a “Boost” a day. I told her I am eating quite well, better in fact than I should. The weight loss, I told her, probably is attributable to the utter absence from my diet of alcohol. I tend to enjoy my wine with a vengeance, which tends to wreak havoc on my mid-section, making it impossible to button my pants over my belly. Instead, I wear them low, over my hips. It has always been thus, though, so it’s not a new development. The dietitian—Jennifer is her name, I think—was unmoved by my effort to blame the absence of red wine from my diet. I promised I would consider adding Boost or Ensure to my diet, a lie that seemed to sufficiently satisfy her and cause her to bid me adieu. The doctor’s visit was short and perfunctory. When he asked if I had any questions, I asked whether, after completing my 30 radiation treatments, I would need to see him again periodically. He said I would need to see someone, probably my oncologist, every three months for five years, at which time, if all goes according to plan, I can be considered “cured” of cancer. Every three months for five years. That will involve, at least to some extent, blood work, CT scans, and other such invasive or intrusive or just plain annoying medical processes.

Other than the gloomy prospect of at least quarterly doctor visits for five years (that’s at least twenty visits, in case I’m counting), my news is good (knock on wood). My fatigue seems to have diminished considerably and my general state of feeling reasonably well has stabilized for now. I’m not particularly peppy, but neither am I spending most of my time in a recliner or heading toward one.

Just nineteen more radiation treatments. Hallelujah! I just wish the pains in my gut would disappear. And I’m occasionally finding that I have “stuff” in my windpipe that “rattles” each time I inhale and exhale until I manage to force it out with earthshaking coughs. I failed to mention that to the doctor. I probably should. There’s next week for that.

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Still Walking Each Other Home

A quote from Ram Dass is on my mind this morning. “After all, we’re just walking each other home.” Those words often find their way to my consciousness, but I never seem to be able to fathom precisely why they pop into my mind. I recall once reading them in a message from a friend, who quoted a Mary Gauthier tune whose lyrics included them as “Ain’t about the money, ain’t about who’s right or wrong. We’re all just walking each other home.” When I read the message that quoted the lyrics, I felt extremely close to my friend, as if the words bound us in a way that exceeded my capacity to understand but, still, felt somehow sacred, spiritual…almost holy. I welcomed those feelings, foreign though they were to an avowed atheist. I’ve since come to appreciate that a sense of awe and wide-eyed wonder at the world and the relationships we experience in it are not reserved for the religious.

At any rate, the words were on my mind this morning. So I used my computer to explore a little, trying to uncover a few more bits and pieces about them that might explain their appeal to me in general and in particular why they resonate with me this morning. I came upon a blog post by an Episcopal priest, Linda Taylor, who said this about those words:

We’re all going to the same place, and we’re all on a path. Sometimes our paths converge. Sometimes they separate, and we can hardly see each other, much less hear each other. But on the good days, we’re walking on the same path, close together, and we’re walking each other home.

Her comments triggered a thought about something I recently wrote about friend versus acquaintance. The difference, I think, is that friends are on the same path, close together, and we are, indeed, walking each other home. Acquaintances may be on the same path, but we’re not walking together. Somehow, writing those words just now seems trite, on the one hand, but utterly profound on the other. I can live with passing trite as long as profundity remains, as solid as a rock.

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Cancer Journal 13, 2019

Just twenty more radiation treatments to go. I’ve completed one third of them. The skin on my chest and back can attest to the fact that I’ve had treatments. It’s tender and, in a place or two, slightly inflamed as if I’ve been sunburned. I gather it will intensify. I’ve been less “beat” for the last two days, but past performance is no guarantee of future results. We shall see.

The possibility of switching oncologists got a bit more complex today. I got a phone call from Caris Life Sciences, which called to get help confirming my supplemental insurance information so they can call for pre-approval of a “molecular intelligence” assessment of the tissue taken from my biopsy. Apparently, based on what I’ve read on the company’s website, the assessment was ordered by my oncologist. The assessment is, as I understand it, undertaken to determine options with regard to immune checkpoint inhibitors. I gather, from this information alone, that my oncologist is exploring possibilities beyond the chemo-therapy and may be considering immunotherapy (which I gather can be both expensive and potentially dangerous with respect to side effects). At any rate, before I boot her from my care team, I want to ask her some more questions: 1) What is this Caris Life Sciences issue all about? 2) Was there any reason I was unaware of it and learned it from Caris instead of my health care team? 3) Am I the only patient you’ve had who has experienced serious problems in communications in both directions?  My next visit with her won’t be until my next chemo treatment, January 28. I guess it will wait.

I got my hair cut yesterday. Not bald by any stretch, but short enough (on the sides) that shaving won’t be particularly noticeable if my hair begins to fall out. But I couldn’t bring myself to cut the top that short. No big deal, but just another thing on my list of things to think about.

 

 

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Cancer Journal 11 and 12 in Two Parts, 2019

January 14, 2019
I didn’t realize until today that I never bothered posting yesterday’s “Cancer Journal.” No matter, it wasn’t particularly insightful. I’ll include it with today’s, just for the record.

I woke late again today, thanks in large part to a continuing wake-pee-sleep cycle overnight. I don’t think it was quite as active as the two prior nights, though. I felt adequate this morning, well enough that I felt comfortable driving myself to my radiation session and the blood work/doc visit that followed. I got in early to the radiation session and, consequently, I was out early, so I went to the oncologist’s office (almost 20 minutes early) and waited. Thirty minutes after my appointment time, I was called back for blood work. The tech asked me to roll up my sleeve. I said I have a port. “We prefer to use needles in the arm to minimize the risk of infection.” I responded that I got the port specifically to use for both chemo and blood draws. She didn’t insist, but close. I agreed. And when I met with the doctor, I expressed my anger. She recommended, after all, that I get the port. She mentioned that it could be used to administer chemo, to draw blood, and for transfusions if the need arose. She apologized that I misunderstood. Misunderstood bullshit! This is about the fourth time I’ve “misunderstood” this doctor, along with my wife, when we’re sitting in the same room. And I let her know I was not happy about it. Ultimately, I said I would accept blood draws from my arms, but I expressed my serious annoyance that I was advised to get a port that would, in all probability, be used for only four chemo treatments. Tomorrow, I’m exploring my options to switch to another oncologist. I am so pissed off I could spit nails, as the saying goes.

In addition to that little fiasco, I mentioned that I have a persistent cough that seems to result from a roughness or rawness in my throat. She immediately assumed it was acid reflux. I told her I didn’t think so. She decided it probably was, so she prescribed a drug to deal with acid reflux.

Then, she asked if I’d seen Dr. Pruitt (the radiation oncologist) yet. “Yes, I’ve seen him several times and have had my seventh radiation treatment.” Oh, she had forgotten I was already getting radiation treatment. She asked the same question last week on the day of my chemo (after which I asked my wife whether the doctor seemed completely disconnected from my case and utterly unable to stay focused on a specific patient’s situation). Does this woman ever make notations in her patients’ medical charts? Is she high on something? And then she suggested my cough and raw throat might have something to do with the radiation therapy. Yes, tomorrow I’m going to explore my options. I’m fatigued, but angry.
January 13, 2019

Today seems to be starting moderately better than yesterday, though the first taste of coffee was only marginally better than yesterday’s disaster, which I threw out. It’s a shame that one of the day’s delights, freshly-brewed coffee, is subject to the nasty effects of chemo-therapy. I’m surprised that, after only a single chemo treatment one week ago, my taste buds are subject to such an assault. Fortunately, as of yesterday at least, avocado and bacon tortas and stuffed bell peppers still taste wonderful. I wouldn’t mind having them again today. But I won’t.

I made the mistake of looking at the weather forecast a few moments ago. It’s much of the same as yesterday in terms of temperatures. I don’t know yet whether yesterday’s bleakness will return. Yesterday, fog enshrouded the house all day. The weather was a perfect parallel for the way I felt; dull, grey, confined, ugly, miserable. I hope today’s weather and my sense of self won’t be as gloomy.

The third sip of coffee showed an improvement. But the aches from spending too much time in bed remain.

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Friends versus Acquaintances

Last night, the concepts of “friend” versus “acquaintance” spun through my mind. I won’t try to explain why, because I think the explanation would only serve to erroneously paint me as a depressed skeptic. I’d rather think of myself as a disappointed realist. According to an online dictionary upon which I tend to rely when I’m not particularly fussy, here are the definitions:

Friend:”a person attached to another by feelings of affection or personal regard.”

Acquaintance: “a person known to one, but usually not a close friend.”

Admittedly, the definitions could be more precise, but they serve the purpose of comparison. The core differences are the “feelings of affection or personal regard.” What’s missing in both definitions is the concept of reciprocity. So, I may consider a person—for whom I have feelings of affection and personal regard—a friend while that person may consider me only an acquaintance. Questions then arise.  Are the two of us friends or merely acquaintances? Is it possible for one of us to be a friend and the other simply an acquaintance? Of course it is. And then there’s the degree of affection and personal regard involved between friends. Again, differences may well exist between the two parties to friendship, wherein one is highly invested in the well-being and happiness of the other while the other’s stake in his friend’s welfare measures far lower on the scale.

My definition of friendship differs from the dictionary definition in that I consider factors beyond affection and personal regard in the “equation” that defines friendship. In my romantic world, there would be two levels of friendship. At the first level, friends would have feelings of affection and personal regard for one another, but those feelings would translate into only a moderate willingness to sacrifice one’s comfort or convenience for the well-being of the other. For example, if that “first level friend” were to call me to ask me to come help push his car to a gas station, I might be willing to do it if I had nothing pressing on my schedule and I had to drive no more than twenty miles to reach him (obviously, there’s no fixed distance involved here…only an arbitrary and abstract measure). If those limits were exceeded, I might offer to call someone else for whom the endeavor would be less inconvenient.

But a “close friend” could expect far more from me. I would readily adjust my commitments so that I could go to my friend’s aid. It’s probable that I would be willing to drive to the next town or even the next state to help, if that’s what it took. A close friend can absolutely depend on me to go to great lengths to help.   A close friend is, in many respects, like a member of one’s family, in that the relationship suggests a willingness to commit to a person’s well-being, even at the risk of doing damage to one’s own. And it’s not just willingness, either. It’s the sense that one wants to be there for a friend and that the inconvenience or discomfort that might accompany the act are irrelevant and, in the final analysis, negligible.  Perhaps “love” is not too strong a word to describe the bond involved in true, close friendship.

So, my romantic definitions of friendship suggest that these relationships exist in the real world. And I’m sure they do. But, in my experience, they are rare, Neither “first level” nor “close” friendships have been common in my life. Acquaintances are far more common than friends and far less fulfilling. The paucity of friends, regardless of “level,” leaves big, aching, empty vacuums in one’s heart, or wherever one chooses to suggest emotional attachments reside. The absence of knowing there’s someone who’s available and willing to come to your aid, whether physical or emotional, at any time, anywhere, creates a painful, tender place in one’s psyche. I suppose the best way to describe it would be to call it the embodiment of loneliness.

I’ve written so many times about friendship and what it means, or might mean, that it’s obvious to me that the idea of friendship or the absence thereof has left a raw spot inside me. I wonder how many people feel they are sufficiently close to me that they could call me, day or night, and ask me for help and expect to get it? I suspect the number is considerably lower than the number of people who could actually make the call and get the help they need. And maybe that’s true of me, too. Perhaps there are more people who would be readily available for that midnight call from me than I think.  If either is the case, I wonder why the sense of closeness isn’t more obvious? A sense of commitment differs from a sense of appreciative obligation. I wonder how the disparity between those two concepts fits into friendship?

One day, if life is long enough, I shall explore all I’ve written about friendship and try to make some sense out of what I feel, what I think, and what I believe friendship is. And, if I can make sense of it, I’ll commit to writing my final assessment of the matter. Ultimately, though, a written assessment, based on extensive study, cannot possibly be as meaningful as deeply experiencing the real thing. While I’m philosophizing on the subject, I’ll go on record to say that it’s bloody hard to have even a surface conversation, much less one that digs beneath the surface, about friendship with most men. I think masculinity has been twisted and disfigured so damn much that emotions have almost been completely wrung out of it. I won’t go down that rabbit hole this morning. I’ve done that enough already.

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Cancer Journal 10, 2019 – Lost Day

Today might as well have been a fleeting idea, an ephemeral abstraction that never solidified into reality. Today is now lost to a fog, for me. I hope days like today are few and far between. Not only because they rob me of time that’s due me, but because they take my wife’s time with them. I’ll try to explain.

Last night, I awoke at least a dozen times to pee. When I went back to bed each time, sleep was slow to come and when it did, short-lived. I got up well after sunrise and made a cup of coffee. Though it was the same coffee I always drink, it tasted awful. I threw it out. I poured a glass of water, nursed it for a while, and took my morning pills. And I sat, like a zombie, in my recliner for a while. Sometime before 8, I decided I simply didn’t have enough energy to get up and go to a meeting I had committed to attend, so I dashed off apologies and went back to my recliner. My wife awoke later than usual, after 9, and asked me about breakfast. I had planned on making pigs in a blanket, but I didn’t have the energy. She offered to make me some toast and I accepted. After I had breakfast, I sat, again, in a vegetative state until sometime around noon, when my wife made a wonderful meal of avocado, bacon, and cheese tortas. She put forth considerable effort to make a nice meal for me, and I appreciated it, but I was not much company; I sat and ate in silence.

A bright spot for my wife came when her sister sent a message, asking about playing Mexican Dominoes. My wife asked if I would mind having her sister over, considering how low and drained I felt. I knew the break would do her a lot of good and I told her she should do it. We talked a bit and she suggested having her sister stay for dinner; my wife had decided to make stew. I responded to her sister on her behalf, inviting her for both. My wife brightened even more.

After lunch, I went back to the recliner. Still drained and empty. And I felt regular stabbing pain in my gut, as it stung repeatedly by a bee. It was not new, but more frequent than I’m used to. I watched television. I vegetated. My wife told me her sister sent her a message, saying she had forgotten about another commitment and wouldn’t be coming over, after all. And so the brightness dimmed. And I could do nothing about it. I just didn’t have the energy to do more than sit in the recliner with my eyes closed. Finally, I felt sufficiently energetic to get up and record the day for this journal. As I wrote, my wife came in to ask if I would mind leftovers instead of the planned stew. Of course not. I could feel that her energy was ebbing, too. And I’m sure it’s because she’s in my presence. I know how it is to be in the presence of someone whose energy level is so low that it drains the energy of people around them. And today I am the one doing it.

This lost day will be replaced by one that’s better, one in which my energy helps frame the day in a better light. But today feels utterly lost and useless. I hope I don’t have many more of these days, not only for my sake, but for my wife’s.

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Cancer Journal 9, 2019

There’s evidence that the chemo may be ready to cause nausea. Yesterday, even before the seventh radiation treatment, I felt a tiny hint of nausea, enough that I decided to take the nausea pills with me to the session. I didn’t use them, though. But I left them in the console of the Subaru. I feel like I might need them now. Or soon.

My sleep last night was, in a word, awful. I was awake much of the night, thanks in part to an ongoing need to go to the bathroom to pee. I slipped off to sleep each time I went back to bed, but only for a short while. I feel drained right now. Tired beyond description. I want to sleep, but I know I can’t. So I’ll try coffee. And after coffee, I’ll wander into the garage to seek out the nausea pills, just in case I need them.  God, I just had a taste of coffee. It is awful! I hope the taste changes haven’t begun.

I’m writing this unpleasant post not to ruin a reader’s day, but to record what I’m experiencing. Just for the record.

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Wrestling with Myself

Despite the radiologist’s suggestion that the regimen of radiology will eliminate any remaining cancer, the sense of hopefulness that I expected would come over me hasn’t quite enveloped me the way I anticipated. It’s as if I “know” that neither the radiologist nor the oncologist nor anyone else really “knows” whether the cancer will disappear. And no one knows with any degree of certainty whether it will reappear. Having read quite a lot about lung cancer, I understand that its recurrence is common; far more common than to make survivors of one bout with the disease feel confident that another won’t follow on its heels. I realize that line of thinking will take me no place but down, yet I can’t seem to shake it. It’s not that I’m afraid of dying, it’s more than I’m afraid of living with the uncertainty and the possibility that my life and my wife’s life will be subject to being turned upside down. Even though it’s been just under two months since my surgery, I feel like I’ve been living within unpleasant physical limits for months and months and months. On November 18, I felt fine. On November 19, my surgery changed that. It may have saved my life, but it changed irrevocably changed it, as well. I realize I’m still relatively early in the recovery stage made less natural through the insertion of chemotherapy and radiation therapy, but even with that realization, it’s impossible to overlook the reality that my life has changed.

Yet, as I go for my chemotherapy and radiation therapy, I see people whose lives have been altered far more significantly by cancer than mine, at least so far. I see people who depend on others for motion of any kind, whether moving a wheelchair from one room to the next or moving from a gurney to a treatment table. The lives of those people have changed far more drastically than mine, but it seems to me (from my limited vantage point) that they have either accepted the permanence of those limiting changes or are valiantly fighting their way through. So, I think to myself, given the relatively greater challenges they face I should be less…what? I should be more brave. No, bravery isn’t it. I should just suck it up and live with what life has dealt me. But I am unwilling to do that, at least not yet. I’m angry, but I can’t seem to find an object of my anger toward which to direct my rage. So I just feel like screaming at myself.

After ventilating like I’ve done in the previous paragraphs, I feel stupid and small, like I’ve just completed a temper tantrum about something over which neither I nor anyone else has control. Recovering from both moods is like pulling teeth; if I could slap myself into good sense I would. It’s odd that I feel that I can look at myself as if I were a dispassionate observer and can make rational observations about my emotions and my behavior, but I can’t seem to transform those rational observations into rational experiences of the observed. I’m not even sure what I’m saying to myself here. I’m unclear as to what I think I’m doing by writing rationally through emotion that, obviously, colors the observation and thus the writing about it.

Perhaps I’m going through phases of health-related experience. Maybe like the stages of grief, but I’m not sure grief applies to my situation. Does one grieve over the loss, whether temporary or permanent, of one’s health? I suppose it’s possible. And, if so, can the stages of grief that I remember very vaguely from reading Elizabeth Kubler Ross apply? Maybe the problem with me this morning is that I’m trying to be rational and emotional at once. Maybe it’s difficult or impossible to look at one’s emotions dispassionately while they simultaneously rage and parade through one’s brain.

I wonder what I’ll think when I read this months or years hence? I’ll laugh at myself and be ashamed that I was so utterly unable to control what ought to be nothing more than a passing thought. I wonder how I’d react if, instead of being told the cancer will be conquered, I were told the cancer is terminal? I’d probably be serene and accepting. I don’t think I’d be crazy, because I’d know there’s an end to the engagement, whereas I don’t have a timeline for being “back to normal.” Maybe because “normal” won’t be what it once was.

Enough of this crap. Even if I have to break my fingers, I’m going to stop typing this drivel.

 

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Cancer Journal 8, 2019

Yesterday’s sixth radiation treatment preceded a brief visit with the radiologist. The only discussion centered around the fact that I’ve been quite fatigued, off and on. His advice was to push it. Walk. More. A lot more. On the one hand, that seems perfectly reasonable. On the other, during the past couple of weeks, I’ve become winded and incredibly tired just walking (make that shuffling) through the grocery store. So, I’ll have to think on it. And, of course, I must give it a try. Perhaps I’m allowing myself to lose my energy simply by letting it slip away as I sit and think about it. We’ll see. I seriously don’t want to find myself unable to stand, and then unable to get up, from fatigue. I’ll include this matter with my conversation with the oncologist next Monday morning. In the interim, I’ll try to push myself a tad. The much cooler weather of the last few days doesn’t help, in that I find it hard to recover from getting cold; once cold, it seems I’m permanently cold. Ach. Stop griping. Try.

 

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Cancer Journal 7, 2019

Radiation treatment number five is now history, with only twenty-five of the scheduled thirty left. As I sat waiting to be called in for my treatment yesterday, a nurse wheeled in a very frail, old man to the waiting room. A few minutes later, a thirty-ish guy and a twenty-ish woman joined him to wait, even though the waiting room is for patients only. The two of them reeked of cigarette smoke. If the old man was being treated for lung cancer, the two people with him are slow on the uptake. As was I, of course; Dad died of lung cancer. That should have triggered my “cease and desist” reflex, but didn’t.  Maybe thirty-somethings are just not sufficiently wise to understand the realities of cause and effect. Maybe I wasn’t smart enough at thirty-one, when my father died, to take the long view forward. But, it’s not always smokers who get lung cancer. But that’s no excuse for ignoring the obvious. Oh, well, I cannot change history. At least it only took me twenty more years to stop, when I was fifty-one.

Last night, for the first time, my wife and I rubbed salve on my chest and back in an effort to minimize the effects of the radiation treatment on my skin. The radiation technicians and nurses told me I can expect to start feeling the burning discomfort on my skin after around two weeks of treatment; the thick, clear salve should (I hope) minimize that. At about the same time, I gather, I might start feeling more and more fatigue from the radiation. I do not look forward to that. As it is, ever since my surgery in mid-November, I’ve had regular cycles of fatigue. One day I’m fine, the next I’m beat and want to do nothing but sit in a chair or sleep.

Our neighbors came over, at my invitation, yesterday afternoon for hors d’ouevres and wine. I had invited them several days ago. By the time they arrived, I was feeling myself spin down toward fatigue. I put on a brave face until they left, though, and then collapsed in my chair. I had asked my oncologist’s office if I could have an “occasional” glass of wine during chemo. The word came back: VERY occasional, not daily, not necessarily even weekly. I drank a glass yesterday. Maybe that contributed to my fatigue. Well, no more wine for a while yet.

Today, after radiation, I meet with the radiological oncologist for a few minutes. I’m not sure what to expect; maybe an update on what, if anything, the X-rays reveals. The techs shoot two X-rays every visit, along with the focused radiation beam regimen. I should be more interested to know exactly what is happening to my body during this process. I wonder why I’m not as curious as normally I would be?

Yesterday was an odd day in that I felt considerably more pain in my chest and side than usual. It was the stabbing, throbbing pain that causes me to twitch and makes my wife think I have the hiccups. It’s not severe, but sufficiently disruptive to interrupt my routine and cause others (occasionally) to notice. I don’t think the radiologist is the one to ask. It’s the surgeon. I may send him an email today. He’s the only doctor who has given me both his email address and his cell phone number and who told me to feel free to contact him with any questions. And he responded to the few I sent him. I respect and appreciate him for that.

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What I’ve Written

From time to time, as I thumb through my writing I stumble across pieces of which I am especially proud. Those pieces capture what I believe to be my inner self, the person for whom I’ve been searching my entire life. But they are incomplete, each of them. They serve to point only at a piece of me, a shred of my humanity that can’t be fully understood without knowing how they are connected to the other shards of my self that usually remain hidden. I wonder why I am proud of those pieces, even the ones that paint pictures of someone who seems to be, at his core, fundamentally flawed and irredeemable. I suppose my pride arises from the writing, as much as the substance of what I wrote. Or perhaps it’s the simple fact that, on reading them, they bring tears to my eyes with their ability to extract an emotional response with each reading. One day, I’ll figure it out. And, one day, I’ll have the good sense to marks those pieces in some way so that I can, when the mood strikes me, assemble them all together and attempt to make some sense of them. I get angry with myself when I try to find one of those pieces and realize that, again, I don’t recall enough specifics about it to know where to look. I don’t recall any more about it than it again brought tears to my eyes. Yesterday, or perhaps the day before, I came across one such short…essay, I suppose I’d call it…that affected me in that way. I thought about marking is, but didn’t. And this morning, I can’t find it. It’s “here,” but I don’t know where. Maybe I should make a New Year’s resolution: to get better organized, so I know what I’ve written and where to find it.

Edit: I found the piece I wanted to find. My Sovereign Sky. It won’t bring tears to your eyes the way it did to mine, but that’s all right; that’s not what I was trying to do.

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Cancer Journal 6, 3029

Yesterday, I had my fourth radiation treatment, which went without a hitch. I told the technicians about my conversations with the center staff (both chemo and radiation nurses) and they seemed to know nothing about the discussions. They seemed unfamiliar with the Neulasta device on my arm, but were unphased that it was there and went about their business of doing X-rays (2 each radiation session), followed by directed radiation beams at the cancer.

I got back home in ample time to change into a short-sleeved shirt so my wife could monitor the Neulasta device for leakage, etc. As scheduled, it started beeping about 5:15 and two minutes later, it began a 45 minute slow-speed delivery of the drug into my arm. No leaks, no problems. When it was time to remove it, my wife spent several minutes working on the adhesive around the edges to remove it. We followed the step-by-step instructions to get it off my arm. One of the last instructions said to “call your healthcare provider immediately” if the needle that delivered the Neulasta was visible. It was. So I called the by now closed office, explained the situation to the answering service, and left my phone number. Shortly thereafter, the doctor on all called me. She asked me a few questions and assured me that all was well. She asked if I had been given a sharps container to discard the device and I said I had not. She asked me to put the  device in a container, careful to cover the needle so it would not stick anyone, and return it to the office on my next visit. And that was that.

So far, I have no evidence of any greater fatigue than before, no nausea, and no other symptoms. Still some pain related to surgery, etc. but nothing untoward.

Today, I’ll go in for my fifth radiation session and drop off the Neulasta device while I’m at it.

I still have no stamina and get short of breath with only minimal exertion. I do not like that in the least. But I assume that, once all this treatment crap is over, I’ll be able to rebuild my strength and stamina and life will return to some semblance of normal.  That’s my hope and my plan.

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Nordic Dreams

Some of my stories, or maybe they are dreams, have delved into Nordic characters with whom I feel deeply connected, despite having no demonstrable physical or ancestral connection to the Nordic world. I attribute some of my proclivities toward rather unusual gastronomic delights (gravlaks, pickled herring, salted torsk, fårikål, etc.) to an unknowable link between me and Norwegian elements adrift in the universe. I imagine that my culinary interest in Norwegian delights owes its origins to a single strand of DNA from the corpse of an old Nordic sailor that made its way through the universe from the old man’s final resting place, into the soil, up through the roots of an edible vegetable, and finally wound up in a bowl of stew in front of me. When I lifted a spoon to my mouth, the man’s entire experience flooded through the nutrients in that root vegetable concoction and through my  cellular structure, creating an ironclad connection between me and Nordic culture in general and Kolbjørn Landvik in particular. Thanks to that chance of nature, from time to time Kolbjørn’s dreams fill my brain and his emotions flood my memories. If you’ve read what I’ve written about Kolbjørn Landvik, you’ll know almost nothing about him and, consequently, very little about me; only that there’s a connection. Kolbjørn Landvik was Norwegian. My memories of his youth and his later years I attribute to my DNA recollections of my time in Norway.  I learned a few days ago, thanks almost entirely to a chance landing of a randomly thrown dart that landed in a village in Manitoba, Canada, that I also have connections through Kolbjørn, to Iceland. Let me explain.

As I was exploring the world one recent morning from the comfort of my study, spinning a colorful old cork globe with my fingers, I threw a dart at random at the whirling sphere. The tip of the missile landed on Gimli, Manitoba on the shores of Lake Winnipeg. Curious about the place I was about to explore, I sought information from Mother Google about the lakeside village. She informed me that a group of Icelanders, running from famine and volcanic horrors in their home country, settled Gimli in the latter quarter of the nineteenth century. The community, with a small population of only around 2300 today, maintains a fierce pride in its Icelandic heritage, even hosting an annual Icelandic Festival in late summer. Well, at any rate I was wondering why I felt a connection with Gimli, Manitoba and why, suddenly, I sensed a connection with Iceland. The answer came as quickly as the question. I felt a surge of memories erupt in my brain, a torrent that took me back to Kolbjørn’s last departure from the coast of Norway on his barnacle-crusted fishing boat. He left the village of Bremanger, intending to fill the holds of his boat with a catch of fresh herring. But a series of fierce storms commandeered his vessel, their odd west-bound winds taking him 2000 km to the shores of Iceland. There, he found famine, fear, a monstrous volcanic disaster in the form of a volcano called Askja, and a cadre of Icelanders determined to flee the horrors of 1875 Iceland. They made their way to Canada, and then across land to Manitoba, where they settled on the shores of Lake Winnipeg, where they built an Icelandic community. Though he was a proud Norwegian, Kolbjørn was among those settlers whose homage to Iceland led to the creation of an Icelandic village in Canada, the country hosting the world’s largest Icelandic community outside of Iceland.

The Icelandic connection to North America is far older, though. The Icelandic Askja diaspora of 1875 came more than 800 years after the first Icelandic Norsemen ventured onto the edges of the continent somewhere a few years either side of 1005. Snorri Thorfinnsson is said to have been the first non-indigenous child born in what is now North America, probably at L’Anse aux Meadows in what is present day Newfoundland. But I have no direct link to Snorri, nor to Snorri’s birthplace, so you’ve caught me going off on a tangent. I came here to talk about Kolbjørn Landvik, Norway, and our joint Icelandic connection.

If you question the validity of anything I’ve told you here, I encourage you to look up Gimli or Snorri Thorfinnsson or L’Anse aux Meadows. You need not look up Kolbjørn Landvik, though, for I’ve scrubbed the internet of his existence, save for a few snippets I’ve written about him, some of which I may have stolen to write what I’ve written here.

I deviated from my intended path, so I now must return to a cup of hot coffee and meditate on the matter for a while. I promise to return, one day, to Kolbjørn and  Gimli and the manner in which my own affinity for things Norwegian and, indeed, Scandinavian in general, arose from ingesting, quite by chance, ancient Norwegian DNA. I’ll tell you stories about what life was like for Kolbjørn Landvik while he was growing up and how, over the years, he came to be a fisherman and a father and a widower and a grandfather and a recluse and a very good man who did very bad things.

 

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Cancer Journal 5, 2019

Yesterday’s treatment regimen began with radiation therapy at 10:30 a.m., my third session. As I waited to be called in for the session, a guy came into the waiting room and sat down near me. He introduced himself as Terry (I think…that’s what I’ll call him) and told me he was being treated for throat cancer. He’s a farmer from Dumas Arkansas who, if his circle of friends is any indication of his financial state, is doing reasonably well. He said a good friend from high school, who lives in Houston, is a well-to-do lawyer who has a “extra” house in Houston and who owns a plane. The guy offered Terry a place to stay in Houston and round-trip transportation from Arkansas to Houston if Terry would agree to treatment at M.D. Anderson. Terry’s sister is a nurse at UAMS and she insisted he be treated in Little Rock by the cancer specialists there. Terry said he once owned a house in Hot Springs and spent racing season here, regularly going to the race track and betting on horses with a group of well-off friends who frequently ate at Oak Lawn restaurants and drank top shelf liquor. He stopped going to the races when he stopped drinking alcohol about three years ago. Terry felt like he was getting advice from too many sources. He went out to his hunting blind and sat and thought. He decided to stick with getting his treatment done in Hot Springs.

Terry blamed his throat cancer on a combination of things, include his smoking (he just stopped) and all the chemicals he has to use on his farm (I didn’t ask him what he produced). “Hell, I used 800 gallons of Round-Up just last year. I’m breathing in the fumes from the tractors and the mist of the chemicals. It’s no wonder I’ve got this bullshit.” Terry said cancer is epidemic in and around southeast Arkansas where farming requires enormous volumes of chemicals to generate sufficient crops to make a living. I got the impression that Terry would have rather avoid the chemicals but he couldn’t produce enough to make a living without them.

And then Terry was called in to the treatment room next to mine. He doesn’t know much about me, other than I am being treated for lung cancer and I’m a willing listener.

My treatment was, as promised, quick. From the time I was called in, right on time, until the time I was ready to leave was fifteen or sixteen minutes. And that included a minute or two for one of the techs, Dan, to add touch-up paint to a red cross on my chest. The paint, or whatever it is, has a distinct, pungent odor like a combination of oil and melted crayon (I should say the odor reminds me of melted crayon, as I imagined melted crayon would smell). I think the cross is a target for Dan and his partner to use in aiming the radiation beams.

I allow myself forty-five minutes just to get there from home. I’m tempted to rent an apartment for five days a week. No really. But, maybe.

From my radiation therapy, my wife (who had been waiting patiently in the lobby) trekked to the other side of the building for my first chemo treatment. I was called back and weighed, then taken to an examination room. A few minutes later, Dr. Chen came in, asked a few perfunctory questions, and led us back to the chemo infusion room. The room is filled with chrome-plated metal framed recliners, topped with blue plastic built-in cushions. I was told to take any open spot, which I did. A nice guy named Bob, who I presume worked there, offered me snacks and soft drinks and a blanket, etc. He asked about my cancer. I told him. He said he had lung cancer eight years go. His upper left lobe was removed. He feels fine now. He was given Alimpta, which he said was new then, and a carboplatin. I settled in to my recliner.

A while later, my assigned nurse/tech came over and attempted to insert an access needle into my newly-installed chemo port. Apparently, the needle was too short. Another tech offered advice (“a number 1) and access was granted! The process took longer than I expected, just to get the killer-chemicals dripping. First, for about 20 minutes, a drip bag of anti-nausea drugs was placed on the pole next to my recliner and dripped into me. Then, some other “pre-treatment” drugs were dripped in. Several bags of who-knows-what…she told me, but it didn’t register…were dripped in. Each time a bag emptied, the device from which the drip bags were hung on the pole beeped to alert staff to make a change.

When, finally, the chemo treatment was finished, the tech attached a Neulasta on-body-injection device on my upper left arm. Neulasta is a drug that helps boost the white blood count to reduce the risk of infection. The device attached to my arm was programmed to give me an automatic injection of the drug about 27 hours after the conclusion of my chemo treatment.

What I did not know about the device and the drug until I got home and read the literature is a little disturbing. For example:

  • I should not be exposed to X-rays, MRI CT scan, etc.
  • I should not drive between 26 and 29 hours after installation of the device;
  • A caregiver should be present to monitor whether the device is leaking and take appropriate action;
  • If there is evidence of allergic reaction, the caregiver is to contact the healthcare provide immediately and/or seek emergency treatment;
  • etc.

I called about the X-rays, etc. The tech said not to worry, just tell them I have a Neulasta device. What about me driving, etc., I asked? No, you should have someone monitor you and you shouldn’t travel during the “active” time for the device.

I then contacted a friend who had offered to give me a ride for my morning treatment, (before I read about some of the more intrusive and demanding aspects of the device), to let her know that the time had changed and to inquire as to whether she could still do it. She could, but would prefer I accept another person’s offer for a ride; but she would do it if that fell through.

The schedule of my radiation treatment coincides with the beginning of the “monitoring” period for the device. So, I shouldn’t be driving or traveling and should have a caregiver present to do all these caregiver deeds…all the while hanging around a parking lot in Hot Springs, I suppose, until the danger is passed.

The more I read about the constraints, the more I decided I could not ask anyone to take it upon themselves to do what was required, even though the offer was serious and I’m sure the time and energy would have been given freely if the schedule worked…monitor leakage of the device, take appropriate action, rush me to ER, etc. etc. if things went haywire.

So, this morning I called the radiation folks to try to get an early-in-the-day appointment or to skip today’s treatment. No, no, no. We’ll talk with the techs and the doctor and get back to you. We do not want you to skip a treatment.

The call came back. Go to radiation treatment. You can drive home. We’ve never had any issues with Neulasta. And, so, I will do as the healthcare experts say.  I should be home by the time the injection begins, anyway, so my wife should be able to monitor the device and follow directions on the paperwork if anything looks amiss.

 

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Forgiveness, Gratitude, and Regret

Forgiveness does not excuse a person from having done wrong, nor is it a gift of redemption one gives to someone else. Forgiveness is not extended to another person for the other person’s benefit. It is a gift to oneself to achieve a measure of peace. That’s a lesson I’ve taken the better part of sixty-five years to learn. And I’m still learning it, still trying to internalize it so it becomes second  nature. Though not truly a resolution, I decided a few days ago that I would begin 2019 by forgiving all the wrongs, real or imagined, done to me or to my sensibilities. That includes forgiving even myself for what I’ve done to myself and to others. I can’t “fix” all the damage, but I can make an effort to avoid creating more. At the moment, perhaps one of the most difficult things I’m finding to forgive is what I did to myself and to my wife by smoking for so many years. All I can do is to my damnedest to overcome the consequences. And I can be grateful I stopped smoking when I did; things could have been worse. Interesting, forgiveness and gratitude seem intertwined for some reason. I see that as a positive. But with forgiveness, especially forgiveness extended to oneself, there’s another sense that’s extremely hard to overcome and that interferes with forgiveness. That sense is regret. I regret having been a smoker. And the harm caused by smoking is hard to forgive. Yet the fact that there’s nothing I can do to change the past, and the need to achieve some measure of peace in spite of it, leaves me no choice but to try to forgive myself. The reality is that I can’t “unsmoke” all those cigarettes I smoked, so I can’t “make it right.” The alternative to forgiving myself and to letting the regret slip away is to permit myself to suffer for past mistakes that I’ve long since corrected. If I hadn’t corrected them, the story might be different. But I did. So…so…so what? Perhaps the lesson is that regret is impossible to dissolve with forgiveness, but it can be minimized by paying a price. And that price is forgiveness.

The next lesson, perhaps, is how can one be forgiven by others? The answer is straightforward. One can be forgiven by others only when they are ready to give themselves that gift. I think I’m writing in circles. I know I’m thinking in circles. I sound like I’m thinking in clichés. But these subjects and the aphorisms that arise around them (and cling to them like barnacles to a sunken ship’s hull, to use an odd, out of place simile) intrigue me and help shape the way I think.

When I think of the things I’ve regretted doing, or not doing, I realize I’ve created a very, very long list over the course of my sixty-five years. The process of minimizing the sense of regret for all those acts and omissions will involve enormous volumes of self-forgiveness, the capacity for which I seriously doubt I have. I suppose a place to start may be with the “big” things, the stuff that caused the most hurt. Even the formidable task of whittling the list down in such a way overwhelms me. From what I’ve written, one might get the idea that I feel like I’m a pretty miserable human being, having done so much harm and having so much to regret; yes and no. I don’t feel that I’ve engaged in significantly more or less hurtful acts or omissions than the average person, but I think I may tend to be more conscious of them. Or maybe not. I don’t know what other people think. I only know I don’t see as much evidence of regret in others as I feel in myself. Others may feel the same. But I have, for much of my life, tended to document (not necessarily publicly) things I’ve done or said about which I regret. I haven’t seen so much in others. Yet they, too, simply may not share their most private thoughts with the world at large. Reading my blog, one might assume I share ALL of mine; I don’t.

 

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