Cancer Journal 22, 2019

Apparently I misunderstood my doctor yesterday. He said, but I did not hear, that he wanted to postpone further radiation treatments until next Thursday. I went in for my treatment this morning and the radiation tech informed me that the doctor had delayed further treatments until a week from yesterday, thanks to my seared esophagus. So, I felt like a cretin, but actually was pleased. Even though this will delay completion of my radiation treatments by a week, I think I will be happier to know that my esophagus is healing. I’m continuing the medications he prescribed a week ago and I expect I’ll be fine a week from now. So goes cancer treatments.

With this delay, I have no treatments, no blood draws, NOTHING, until next Thursday. I may just relax and vegetate for the next several days. I felt absolutely drained this afternoon, so much so that I opted to let Janine go shopping, fill up the car with gas, and get the mail while I sat and relaxed in the car. And when we got home, I went to sleep in my recliner. I guess it’s either the radiation or the chemo or both, perhaps combined with stress of some sort caused by the whole cancer treatment process. I feel very much like I could sleep for two days right about now, but I won’t. I’ve made commitments. Though I realize I could, in a pinch, break them.

 

Posted in Cancer, Health | 2 Comments

Cancer Journal 21, 2019

The radiologist told me to keep following his drug regimen and to drink six bottles of Ensure a day. And to come back next Thursday and tell him whether the pain I experience while swallowing improves. Hmm. I was hoping for something a little more interventional and more likely to relieve the pain. But there you go.

Posted in Cancer, Health | 4 Comments

Cancer Journal 20, 2019

A week ago, I began experiencing pain when I swallow, thanks to (I assume) the effects of the radiation treatments on my esophagus. The radiologist prescribed some drugs that I take in succession following each meal: first an ounce of aloe vera juice, followed twenty minutes later by a teaspoon of Nystatin, followed twenty minutes later by a carafate tablet dissolved in 10 cc of water, followed by nothing by mouth for twenty minutes. I noticed no noticeable change until day before yesterday, when the pain got worse. Yesterday, it was much worse. I couldn’t finish lunch because of the pain, opting to choke down a bottle of Ensure, instead. Ditto for dinner. The pain is present event without swallowing; it burns in my chest, the level of pain changing depending on my position. Last night, I didn’t sleep especially well because the pain kept awakening me and/or keeping me awake.  As I type this, I’m taking a painful swallow of strawberry-flavored Ensure at a time for breakfast. No coffee, as the hot liquid hurts like the devil going down. Even the cold Ensure hurts with every swallow. Fortunately, today is the day for my weekly visit with the radiologist, so I hope he can offer options. Even swallowing water is hard and painful. This cannot go on for long or I’ll get dehydrated and starve. Thanks to my years of packing on excess weight, it will take far longer to starve than to become dehydrated.

Yesterday was my first phone call with the nurse navigator who was assigned to me to help me deal with cancer treatments. Despite the fact that the program kicked off more than half way through my treatments, perhaps the timing was good. I mentioned the swallowing issues and she said she would talk to the oncologist about them, though she advised me that the radiologist would be the first responder to that issue. She also said she would address the ongoing problem of schedules for my doctor visits, chemo treatments, and blood draws being shown on the portal calendar as “unscheduled.” We’ll see.

This business of pain in my chest while attempting to eat is bothersome. I guess I didn’t expect it, even though I knew it was one of the potential side-effects of radiation treatment. I hope today’s visit with the doctor gives me more than,”well, let’s see if this next options gives you any comfort.” I’m looking, of course, for certainty. I’m looking for results. I’m looking for things that probably are not guaranteed in the field of oncology treatment.

Posted in Cancer, Health | 1 Comment

Morning Babble

Our dinner last night met and exceeded our expectations. My dozen oysters on the half shell were enormous and very tasty. Janine’s dozen fried oysters were at least as good. The conversation with our friends was delightful and my Neulasta device did not intervene in any way. The New Orleans menu prompted me to suggest to Janine that we return next Tuesday so I can try some of the other items on the menu or, perhaps, the sampler plate that offers a little bit of everything (but not the oysters, if memory service me).

Learning a bit more about our friends through conversation caused me to recall an idea I had a while ago. That is, I’d like each member and friend of the church who’s willing to write and share a brief biography about themselves—where they grew up, what they did in their work lives, what made them decide to move to Hot Springs Village, what religious backgrounds they escaped from grew up with, how they define their political views (both from a social and a fiscal perspective), and any other interesting tidbits they think others might find interesting. I’m interested in this simply because I would find it intriguing to learn how people with quite different backgrounds happened to find themselves as part of a pocket of liberal and progressive people in the midst of the sea of rabid conservatives that is Hot Springs Village. I envision this collected biography to be available only to members and friends and, in some fashion that I’ve yet to clarify in my head, made private so that the identities of the writers would not be readily available if it were to be circulated outside the sphere of members and friends. That might be tough. I’ll have to give it some more thought.

I got up very early again this morning, even earlier than yesterday when I got up around 4:30. Today I sprang out of bed at 4:00, after having gone to be early, around 10:00 or just a bit thereafter. I’m not quite sure what’s  responsible for these earlier-than-usual arisings, but I rather like to be up and have leisurely time to explore the web, write a bit, collect my thoughts, and reheat the cooled coffee over and over again. I really should drink it while it’s hot, but the burning sensation in my esophagus is still with me so I let it cool, and then it’s too cool. But I’m up and thinking. That’s not always good, but today it is. Today’s thoughts are generally positive.

Shortly after I got up, I read that an Israeli company claims to be completing development of a cure for cancer that should be completed within a year. It sounds quite promising, but it also sounds like its availability in the general marketplace (if it’s really as claimed) will be years off. Oh well, if it’s real, in the years to come, many hundreds of thousands (or millions) of people my well live without cancer that they otherwise would have had to faced.

Last night, I watched several more episodes of Fauda, the Israeli-made drama depicting the two militaristic sides of the Israeli-Palestinian conflict. I’m addicted to it and, with every episode, I’m more comfortable that I’m watching a foreign language (Hebrew and Arabic) film that’s dubbed in English. Being able to watch multiple episodes, connected via Roku without interruption, is evidence that the problems I’ve had all along are, in fact, attributable to the Suddenlink-branded TiVo device. I’ll have that replaced in the near future (when I no longer have to deal with radiation treatment every weekday).  Oddly, I don’t recall what I had been watching before Fauda that, eventually, I just gave up on. I’ll have to probe my mind to recall it; I got so frustrated with Netflix stuttering and stopping that I limited my television viewing to news programs with Lester Holt and Judy Woodruff, supplemented by mindless home purchasing/improvement shows on HGTV. With Roku, I think I can return to some real variety, even before the TiVo device is replaced.

No long after I got up this morning, I whipped up a couple of servings of steel-cut oats that, I hope, will be ready, only needing to be warmed up, by the time Janine awakes sometime after 7:30 (my guess). It’s been ages since I made steel-cut oats for breakfast and I miss them, as does Janine. She’s the one who suggested it. I make mine with a mixture of water and almond milk (it does influence the flavor), along with a tad of olive oil in which to flavor and warm the oats, and dried cherries for flavor. I added a pinch of salt and about an equal amount of brown sugar, then brought the mix to a full boil, when I turned off the stove and covered it. Normally, I would do this the night before and let the oats “cook” overnight, but this time I didn’t, so they may not be truly cooked by the time Janine arises. No worries; I’ll just simmer them for 30 minutes or so and they will be ready. She’ll be happy with that.

Personally, when I cooked steel-cut oats more frequently, I enjoyed a savory and meaty version of my own design even more than the slightly sweet one. In the savory one, I omitted the almond milk in favor of water alone and did not use sugar or dried fruit. Instead, I used crumbled sausage (just a bit) and, sometimes, diced veggies (e.g., carrots, potatoes, whatever). When the oats and accompaniments were finished, I dressed my bowl with a bit of soy sauce and sambal ooleek. I guess it’s a riff on congee, using steel-cut oats in place of rice that’s cooked until it dissolves.

After today, I will have only ten more radiation therapy sessions to go, assuming the doctor makes no adjustments, which I have not reason to believe he will. Two-thirds of the way through! My chemo session day before yesterday has not yet had any significant ill-effects (save, perhaps, for the extended sleep time that afternoon and evening). Knocking on wood that it will have none. We shall see. Only two more chemo treatments left. I’ll be done with them by mid-March. But there will be immediate follow-ups with blood tests, etc. By late March, perhaps, I’ll be free of this stuff and, with good fortune, will be able to start recovering my strength and abilities to do things more physical, like stripping and painting my deck. If the boards have not rotted by then.

I’m tired of writing meaningless drivel this morning. I’d rather write riveting fiction or non-fiction that a reader simply could not even consider putting down once he or she started reading it. But I’ll write neither. Instead, I’ll go check on the oats and will sneak in to take a shower before my wife awakes, hoping the light and the noise in the bathroom don’t waken her.

Posted in Uncategorized | 2 Comments

Putting Things in a Different Perspective

After my radiation treatment today, I visited a friend who’s in the hospital again after a couple of hospitalizations over the past year.

His first hospitalization came last February after a “routine” colonoscopy that wasn’t routine, after all. During the procedure, the surgeon perforated his bowel. My friend didn’t know anything was wrong until later than night when he felt pain that was anything but normal. Following emergency surgery, he was released a week later and recuperated at home over the course of several weeks.

In December, he was put in the hospital for what the doctors thought was pneumonia. They kept him there through Christmas; he was released, I think, on the 29th. He seemed to be improving over several days, but then had difficulties for several more days. After a period of steady deterioration, he was sent by ambulance back to the hospital on January 25. He doesn’t know how long he’ll be there, but it will be at least several days.

The problem isn’t simply pneumonia. It’s pneumonia resulting from complications with pulmonary fibrosis. That is the scary part. He doesn’t expect to be able to get off of oxygen. He has decided to abandon his plans to build a deck off the back of his house. He just seems really reconciled to the fact that his disease will severely restrict his activities and his comfort going forward. I don’t know enough to argue with him, nor would I even if I did. I don’t know when his pulmonary fibrosis was diagnosed, but I get the impression it was quite some time ago. I think he didn’t believe it would progress by this time.

When I got home from the visit, I looked up the prognosis for pulmonary fibrosis. The “typical” prognosis is that patients live on average of three to five years after diagnosis.

My diagnosis and treatments don’t seem nearly as onerous this afternoon as they did this morning.

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Cancer Journal 19, 2019 and Dinners and Netflix Entertainment

Yesterday, the second chemo treatment was administered. It’s a long process, beginning with “backwashing the chemo port,” as I call it. Actually, it’s just cleaning the port and, I guess, ensuring that the contents of the needle plunged into it will flow properly. I felt the nurse stab the needle into the port this time as if a carpenter’s trim nail had been hammered, somewhat gently, into my chest. It felt like the nail made it only part way into the two-by-four trim beneath. 😉 Actually, it wasn’t bad, just an unexpectedly sharp but quickly passing pain.

From there on, it was the “usual,” as if I know what usual is after only the first treatment three weeks ago. I took a pill, an anithistimine I think, and the nurse began the rather tedious process of preparing my body for the onslaught of poisonous chemicals.  I really should document each pouch of liquid they pour into me, but I did a poor job of it yesterday. Maybe next time.  To the best of my recollection, she pumped me full of saline solution first, followed by steroids, followed by something else, followed by something else, and then capping it off with a vile mixture of carboplatin and alimpta. She cleaned the stab wound in my chemo-port, covered it with a band-aid, and then went off to find the Neaulasta, the device attached to my body to deliver a dose of drugs that will fend off infection and boost the white blood cell count (that the chemo drugs reduce). This time, I opted to have it attached to my belly, making it easier for me to check to see what the blinking lights on the device are telling me, rather than asking Janine to stop what she’s doing to check. I was concerned about whether the removal of the Neulasta device would interfere with plans for the next night (tonight), when we plan to have dinner out with friends. Based on what the nurse told us, it shouldn’t. The device should inject me sometime well before 7 and I should be able to remove it afterward.

Our plan was, immediately after the chemo treatment, to go visit a friend who was just admitted to the hospital with pneumonia two night earlier on an emergency basis.  Before the treatment was complete, though, he sent me an email telling me it wasn’t a good time, courtesy of drugs he had been administered and the flurry of activities around his bed. We agreed I’d stop by the next morning (this morning) after my radiation treatment, if he was up to it.

Speaking of dinner, as I was a paragraph or so ago, we plan to go to dinner with friends this evening, early. These are the same friends with whom we had dinner a couple of nights ago (our minister and his wife and two other friends from church and the writers’ club). During that dinner, the male component of the nonministerial couple mentioned that a restaurant on the periphery of the Village is celebrating Mardis Gras with what he described as a spectacular Louisiana menu. Among the celebratory menu items, he explained, were ENORMOUS oysters on the half-shell, delivered daily as far as I can tell, from New Orleans and environs. I’ve very rarely (once) had oysters on the half-shell since moving from Dallas. I love oysters. And jambalaya. And gumbo. And all foods from in and around New Orleans. Before the conversation ended, all our calendars had been adjusted to account for our plan to eat dinner together tonight. It will be an early dinner (we’ll meet at 5:30), so we should be home by or around 7:00, when I will remove the Neulasta device from my gut and will dutifully take the drug regimen (a series of three drugs, separated in twenty-minute intervals) designed to minimize or eliminate the burning esophagyeal pain caused by my radiation treatments.

Yesterday afternoon, after we got home from the chemo treatments, I unpacked the Roku Premiere and set it up on the television I watch (my wife has her own in the room we call her “nest”). The purpose of buying the Roku was so I could (I hope) eliminate the stuttering and stopping of movies and series I want to watch on Netflix. I got Roku set up and working just fine, but either the chemo treatment or the fact that I didn’t sleep well the night before or both conspired to quell my television thirst. I went to sleep in my chair, awakened only to the call of dinner. After dinner, I tried again ever-so-briefly to watch television, only to awaken well after 10:30 to discover my wife had already gone to bed.

One day, though, either while I’m in the midst of cancer treatments or after I’m done and feeling “normal” again if that feeling ever returns, I’ll spend time watching films and series I think will appeal to me. I am not committed to watching anything all the way through, though. If I like it, I will watch it. If I find it boring or otherwise unappealing, I won’t. So there you go. As for what I plan to explore on Netflix in the not-too-distant future, they include:

Fauda (season 2), Breathe Normally, Black Earth Rising, Occupied (season 2), Borderliner, Ozark, Close, Deadwind, Minimalisim: A Documentary About the Important Things, 1983, Justice, Roma, When Heroes Fly, Innocent, The Paper, Trotsky, Tabula Rasa, El Ministerio del Tiempo, Peaky Blinders, Wild District, Mad Men, Weeds…there are more, dozens more.

Posted in Cancer, Film, Health, Television series | 2 Comments

Just Asking the Question

I read this morning that the Postmaster General blamed the massive and growing deficits of the U.S. Postal Service on a business model mandated by law.  Postmaster General Megan Brennan said. “The flawed business model imposed by law continues to be the root cause of our financial instability.” I think she has a very good point. She runs an organization that is restricted by law from adjusting to a rapidly changing business environment. Railroads suffered from operating as though their environment did not matter when, in fact, it did. They almost died as a result. Passenger rail, as much as I hate to say it, effectively did die in most places in the U.S.

I wonder what other institutions might be at risk of becoming archaic in the absence of change? I wonder whether, for example, the structure of our “democracy” in the U.S. might be at risk of succumbing to its own obsolescence if we, collectively, don’t make some hard decisions about its structure and operation? We treat the Constitution as if it is inviolable, a sacred text that is not subject to significant change. We’ve amended it, but we’ve never considered replacing it. Admittedly, the risks of replacing it or, even, subjecting it to massive revisions are great. Recent calls (that grow louder with every year) for a constitutional convention are based on making changes that would force the country on a radical shift to the right, removing many of the protections now in place. That’s dangerous. But is it possible that, even in the face of that risk, we need to consider looking at the rules that govern our country with a new set of eyes?

Do we want to be in the position of looking back at our missed opportunities and saying, “The flawed business model imposed by our Constitution was the root cause of our  instability and ultimate demise.”?

Just asking the question.

 

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Bidirectional Exchange

Daybreak is a special time, but so is nightfall.
Both allow us to peer into the universe from
different angles, watching time unfold like
a flower blossom, unveiling secrets made visible
only to those who expend the energy to see them.

If something or someone is on the other side of daybreak
and nightfall, I wonder whether they, peering into
the secrets unveiled by unfolding time, see us and the
secrets we unwittingly share by revealing our curiosity
and opening ourselves to the unknown?

Posted in Poetry, Writing | 3 Comments

2800

Here is blog post 2800. The vast majority of my posts have been, in a sense, invisible. That is, no one but I ever saw them. Or, if they were seen, they were seen by people who were misdirected to my blog through online searches designed to find something else. During the recent few years, that may not necessarily have been the case, but in the early years virtually no one stumbled across my blog intending to read my posts. Even more recently, the extremely limited traffic has been, for the most part, accidental. Oh, occasionally, a few friends would make a point to stop by, but this blog has been decidedly schizophrenic from the start, so no one—not even friends—really wanted to read my stream of consciousness blather. For that reason—that I have always known my schizophrenic mode of writing would always be of extremely limited interest—I’ve never tried to develop a “following.” I’ve never tried to market this little spot on the internet.

But I continued and continue to write. I frequently flush the detritus out of my head and onto my blog posts. With 2800 posts under my belt on this blog, I think a committed investigator—a trained forensic psychologist with enormous patience—could read enough of my writing to determine what sort of person I am. I wish a committed investigator would do precisely that and would share the determination with me. I’d like to know more about the guy who writes this drivel.

Considering the sheer volume of stuff I’ve produced, I think it’s likely that I really could find enough material in what I’ve written to compile an anthology that might, just might, be worth reading. I’ve said that before, though. Several times. Despite my failure to act on the assertion thus far, I still believe it. I may be delusional, of course, but I think there’s enough decent writing, married to enough decent thought, to justify the effort necessary to make a book. The question, of course, is whether there are enough people who would be interested in it to make the effort worth my while. The bigger question is whether I’ll ever get off my duff and try to wade through what I’ve written, seeking the gems. Perhaps my failure to do it has been for a reason: that I’m afraid the “gems” I’m seeking aren’t really there. If that’s the case, it may be in my best interest not to push it. Who needs confirmation that a fear is justified? On the other hand, confronting one’s fears may be healing, in a sense.

But with good fortune, I’ll be able to write another 2800 posts in the coming few years, keeping my eyes open for the occasional gem. It’s taken me something over five years to get these first 2800 posts done. I’ll check back in a few years to see how I’m doing. And I’ll try to keep track of any gems I encounter along the way.

Posted in Writing | 4 Comments

Border Child

As a child, I never really understood how close to the border we lived. But Google Maps put it in perspective. We lived considerably less than a mile from the U.S.-Mexico border, defined by a river, the Rio Grande. Maybe the proximity to the border could explain, at least in part, my affinity and reverence for Mexican-American heritage (and my odd wish that it was my heritage). I lived at 1307 West Saint Charles Street in Brownsville, Texas for the first years of my life. I don’t know precisely when my parents decided to move away from Brownsville in favor of Corpus Christi, one hundred-sixty miles north. But it was around the time I was five years old. I don’t remember the move. In fact, I don’t remember much about my first few years of life. I’ve written many times before about the fact that I have very few memories of my childhood. That absence of childhood memories has always troubled me, though I can’t say just why. But it has. Perhaps it’s because, knowing that I have exceedingly few childhood memories, I question whether those few I have are real. They may, instead, be stories about certain circumstances I heard so many times that they evolved into artificial  “memories” I think are mine. My sparse recollections may well be accidents that emerged from family lore. But I do remember my childhood street address, though occasionally I’ll forget the street numbers for a short while, the way I did recently when a friend told me he and his wife planned to travel to Brownsville soon. I gave him the incorrect address, then corrected it moments later. I don’t know why I gave him the address, other than in the hope he’d drive by my childhood home. If he were to do it, he’d find a little house on the corner of West Saint Charles and Thirteenth Streets. A covered bus stop sits on the corner on the east side of the house. If memory serves, which it probably doesn’t, the bus stop wasn’t there when I was a child. Or, at least, it wasn’t covered. But maybe it was there all along. I doubt it. Public transportation in Brownsville may well have been years in the future when I was a child.

I’ve never had a particularly strong urge to know details about my childhood, even though the paucity of memories of that time of my life is disturbing. But, lately, I’ve become more curious. It occurs to me that, aside from family stories and photos and the like, I might learn more by doing some real research. For example, I might examine old newspaper stories about events that took place in the Rio Grande Valley during that time or, if I were to travel to Brownsville, I might look at Cameron County records available at the courthouse. And, if any of the people who knew me or my family from that period are still alive and willing, interviews might reveal bits and pieces of my past that family lore don’t. As much as I think family lore is a value source of information, I know with certainty that recollections bend and sometimes break with time. I know that memories bend toward truths we want to find rather than truths that don’t paint the past with such positive brush strokes.

Would it be possible, I wonder, to find relatives of Petra, the woman who looked out after me and cleaned house and otherwise kept the household operating well while my parents were away at work? Would those relatives know anything? Would they be willing to share anything? Would their memories be any more reliable than anyone else’s? I remember (or is the memory a “plant”?) Petra making leche quemada, a delicious sweet treat. And I remember (maybe) a time when a can of sweetened condensed milk exploded while she was making the treat. Are those memories real? I would have been five years old, maybe younger. Could I actually recall such stuff that far back? Sixty years ago

My life as a border child is a fuzzy, faded, incomplete memory. I want my own memories of that time, not recollections of my older brothers and sister. But perhaps it’s impossible to prime the pump at this late stage. Maybe even looking at old pictures and reading old accounts of visits to the pool El Rancho Grande Motel (was that the name of the place?), where my folks, I think, paid a membership for access to the pool, won’t work to get my memory working.

We’ll see. Perhaps. One day.

Posted in Memories, Mexico | 3 Comments

If I Were Younger

If I were younger, I might make a point of learning the Icelandic language. The vast majority of Icelanders speak the language and a tiny fraction speak English. So, to get along comfortably in the country, I would think it would pay to speak the native language. And, as you can see from the image, I could start the process for under $30. That’s a small price to pay for a modicum of comfort during a visit to the country. Which, by the way, could become more than a visit. Iceland could become a lifelong home. I haven’t extensively explored the relative ease or difficulty of immigrating to Iceland, though I gather from limited investigation that I’d have an easier time of it if I were European. The process involved in becoming European is probably not worth it, though, so I’ll just have to explore direct immigration to Iceland, without an intervening European re-homing.

Of course, the idea of immigrating to Iceland without first visiting the country and getting a feel for the “lay of the land” is absurd. Except people do it every day (not necessarily involving Iceland…but, you know, immigrating to countries in which they’ve never before set foot). But I’m not quite that adventurous. Though if I were younger, I might be. In fact, if I were younger, I might be a very different person compared to the person I was when I was younger the first time around. Yes, I’d be very different. More adventurous, less afraid, more willing to take existential risks. Not existential as in pole vaulting from the top of the highest peaks in the Himalayas, but existential in terms of considering the value of abandoning a culture that, as I aged, I discovered was flawed in ways that claws holes in one’s soul. That kind of existential risk.

Iceland’s population is only about 340,000. And its climate is quite interesting. The average high temperature in the hottest month, July, is 52F and the average low in the coldest month, January, is 32F. Sweater weather year-round!

If I were younger, I could live my life over again. (No kidding? That’s a stunning statement if I ever made one.) I could be the risk-taker that I never was. Well, I was. In a way. I started a business that turned into a reasonably successful one, in relative terms. But that’s not the kind of risk I’m talking about. I’m talking about risks that have the potential of changing one’s life in fundamental ways. Like trekking across India or moving to France or Spain or spending time in Uzbekistan doing research on the Great Bustards, like a couchsurfer we once hosted did. Those are the kinds of things that change one’s perspectives on the world in which we live. They broaden one’s understanding of cultures and help us understand that ours, the one in which we live in isolated, insulated, self-delusional pride, is not perfect. Nor is any culture. But I digress.

If I were younger, I might look ahead to becoming a volcanologist in Iceland. Or, perhaps, a tour guide in Reykjavík or a welder. Not everything in Iceland is golden glitter and friendly puppies, though. Iceland has crime, too. For example (speaking of welders and welding), I read this morning an article from a December 2015 issue of Iceland Magazine that reported the following:

Earlier today the District Court of Reykjavík sentenced Lárus Welding, the former CEO of failed bank Glitnir, to five years in prison, the Icelandic National Broadcasting Service reports. Jóhannes Baldursson, the former manager of capital markets at Glitnir, received a two year sentence while Þorvaldur Lúðvík Sigurjónsson, former CEO of investment bank Saga Capital received an eighteen month sentence.

These sobering realities brought home the fact that, if I were younger several years ago (I guess I was, but it’s different), I might have been caught up in the web of criminality that snared Lárus  and Jóhannes and Þorvaldur. That puts an entirely different complexion on the concept of risk. What if, I wonder, I had moved to Iceland as a brash twenty-something and had been foolish enough to run with the wrong crowd? I might have found myself in an Icelandic prison. Based on a little exploration this morning, I discovered it might not be so bad. I would have been one of only about 200 inmates in one of five prisons, two of which are “open” prisons without bars and walls and perimeter fences. Maybe the others are like that, too. I’m intrigued by Icelandic prisons. I may opt to travel to Iceland and break a law just so I can be incarcerated. But I probably don’t need to do that. I learned during my exploration that the prison authorities gladly accepted a writer’s request that he be allowed to spend a couple of weeks in prison just to see what it’s like on the inside. I am beginning to LOVE Iceland! The prison management thought that was an excellent, intriguing idea. I cannot imagine the response if I asked to spend two weeks in a Federal Correctional Institution in the United States.

If I were younger, I might explore the possibility of a career in prison management in Iceland. My brief foray into criminology and corrections in what was then the Texas Department of Corruption Corrections dissuaded me from pursuing a career in U.S. prisons. Perhaps, if I were younger, I might find a more appealing environment in which prisons actually helped reshape lives gone awry. Maybe.

Ach, this is all regret masquerading as fantasy. Regret has no place in early-onset old age, so I’ll throw it out into the woods behind the house and let it settle on decaying logs. But I’m still intrigued by Iceland.

Posted in Absurdist Fantasy | Leave a comment

Condolences to the Parents of Julen Roselló

I remember the saga of Baby Jessica, the child who fell into a well in her aunt’s yard in Midland, Texas in the late 1980s. It seemed like every person in the U.S. and perhaps around the world held our collective breaths as the searchers worked for more than two days to find and free her. And when she was brought out, the world heave a sigh of relief. It was a beautiful story. But, I think, the story quickly fled from our collective conscience and we moved on to other things. Many of the people involved in the incident, though, were not so fortunate to let the trauma simply fade away. More on that in a moment, but first I’d like to consider a much more recent incident of a child who fell into a well.

Unlike the story of Baby Jessica, the media’s coverage of the story of Julen Roselló, who fell into a borehole in Totalán, Spain (which I believe is several miles outside Malaga) was not so extensive. The child’s plight did not capture the headlines in the same way Jessica McClure grabbed the world’s attention. There were stories about Julen, but they were occasional and updates lacked the frenetic pace that Jessica’s story did. Why? Who knows? Maybe it was because we’ve become more accustomed to tragedy. Perhaps the constant flood of “news” has made us immune to the horror such a story generates. Or it might be because the child’s predicament was foreign to us. He was, after all, a Spanish child, not an American, so the world might not value his story as much as it would an American. I’ve admittedly a cynic; I have no evidence that the world’s consciousness has become accustomed to treating American tragedies with greater solemnity than it treats tragedies that take place in other places.

The bottom line is that two-year-old Julen Roselló died. His body was retrieved from the borehole last Saturday, thirteen days after he fell in. Spanish Prime Minister Pedro Sanchez said, “All of Spain shares in the infinite sadness of Julen’s family.” The rest of the world seemed either to take no notice of the outcome of the search or to treat it as a footnote, buried beneath stories about Venezuela’s political chaos or Washington’s political madness.  U.S. media covered the tragedy and its outcome, although not in a particular visible way. Only in passing, from what I could see, did the media take note of the fact that the experience for Julen’s parents was the second such heart-wrenching tragedy, the Associated Press noting that “El Pais reported that the couple had lost Julen’s older brother, Oliver, when the 3-year-old suffered a heart attack during a walk on the beach two years ago.”

I wonder how Julen’s parents will cope over the long haul? I wonder whether, indeed, they will ever be able to adjust to a life of perpetual grief and the stress such an emotional weight must carry with it? Baby Jessica’s parents divorced a few years after her rescue. Did the ordeal they faced during their daughter’s rescue have anything to do with it? I can’t say. But I suspect it couldn’t have contributed in a positive way to their relationship. The paramedic who inched his way into the tunnel to rescue Jessica battled posttraumatic stress disorder as a result of what was called the “arduous rescue effort.” Later reports say he struggled to cope with the decline of the recognition that came after his heroic act and he committed suicide in 1995. I don’t know who was involved in finding and removing Julen’s body from the Spanish borehole, but I gather the media attention on the rescuers hasn’t been nearly as intense as it was during Baby Jessica’s ordeal. Perhaps that lack of attention will save their lives.

Julen’s parents, I suspect, have no interest in fame or recognition that might follow the death of their child. But I hope, at least, they can depend on an outpouring of support from around the world. It won’t be as intense as the worldwide support that Baby Jessica’s parents felt. That’s obvious. But I hope it will be enough. Whatever “enough” is. But, of course, it can never be enough. Not after a tragedy that ripped one’s world into impossibly painful pieces.

 

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Cancer Journal 18, 2019

My radiologist called in two prescriptions for me yesterday in response to my recent issues with burning pain after swallowing. My regular pharmacy told me yesterday there were “issues” regarding the amount of time for which the drugs were prescribed. I opted to let the pharmacy work it out and pick them up today. Only one was ready today; the pharmacy was out of stock on the other. Fortunately, a nearby pharmacy had it in stock, so the prescription was transferred. The two prescriptions, coupled with another “prescribed” intake, aloe vera juice, make for a complicated regimen four times a day: drink aloe, wait twenty minutes, take drug 1, wait 20 minutes, take drug 2 (which is first crushed and mixed with 10cc of water), and wait 20 minutes. What a pain! It could be worse, though, so I’ll try not to complain. And if the regimen causes the swallowing-related pain to disappear, it’s most definitely worthwhile.  We’ll see.

I spoke to my primary care doc today about my issues with my oncologist. He advised me to finish the basic treatment and, then, if I’m still having issues, ask him for another referral. He spoke to me for a good 15 minutes by phone and made some good points. I feel better simply for having had the conversation.

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And the Bible Said

I read a reference yesterday to a bumper sticker. It read as follows: “Pray for Trump—Psalm 109:8.” My biblical illiteracy being what it is, I had to look it up. It reads:

8 Let his days be few; and let another take his office.

Though I appreciated the humor, the reference meant nothing to me, so I looked up the context. I started a few chapters earlier, to no avail. I have to admit, I found reading Psalm neither interesting nor coherent. I suspect I’d have to do a lot more reading to make sense of it.

My continued exploration of this “imprecatory prayer” revealed that its use in this context is not a creative new spin of the Bible by brilliant liberal thinkers to condemn an occupant of the White House. Not even close. Pastor Wiley Drake, a  right-wing minister and radio host used it in reference to President Barack Obama. Kansas Speaker of the House Michael O’Neal sent an email to his Republican colleagues that said, “At last — I can honestly voice a Biblical prayer for our president! Look it up — it is word for word! Let us all bow our heads and pray. Brothers and Sisters, can I get an AMEN? AMEN!!!!!!

In THAT context, I find it less humorous. Especially in light of the fact that Obama was, in my opinion, one of the most dignified, intelligent, and graceful leaders the U.S. has ever had. Compared to the world-record-holder liar whose self-love is so over the top that it’s embarrassing to watch him repeatedly attempt to achieve auto-erotic orgasm through self-congratulatory strokes.

I realize, of course, finding humor in the verse is sinister. But, given the miserable bastard to whom the original quote I read applies, apropos. You know, there are people who are just beyond “redemption” in the human sense and, I suspect, in the biblical sense. Some people have practiced their egotism and disdain for others to so great an extent that they are incapable of recovering from their monstrous selves. A person who throws his own supporters under the bus in favor of his own self-interests, while assuring them he is looking out after their interests. is a special kind of demon.

According to Wikipedia, Psalm 109 is “a psalm noted for containing some of the most severe curses in the Bible.” Ya think? Well, it gets even more severe. As I read Psalm 109 and read past 109:8, I hit upon something I found even more darkly humorous. Here’s Psalm 109:9:

9 Let his children be fatherless, and his wife a widow.

The lesson in this idiocy is that anyone can mine the world’s literature (much of which owes its existence to biblical passages, I think), including the bible, for clever phrases that support a particular point of view. The fact that a phrase can be lifted and placed in a context that suggests it was written specifically to be placed in that context is evidence that we’re all thieves and plagiarists, not to mention hard-hearted bastards who don’t have a single compassionate bone in our bodies. Well, that may be a bit overstated and unnecessarily harsh. In fact, it’s simply evidence that we have not yet achieved a state in which we are “a finished version of our better selves,” as someone I know might say.

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Cancer Journal (more or less) 17 and Other Stuff

The bright sun and cerulean sky belie the frigid temperature this morning. According to my computer’s weather app, it’s 25 degrees outside. Last night’s weather forecast called for clear skies this morning but carried a warning: Though it might appear clear and sunny, watch for water on the road if you must drive in the morning; that won’t be water, it will be black ice.

I’ve had experience with black ice. It’s dangerous stuff, whether in a car or on foot. No matter a person’s driving experience, one has absolutely no control of their wheels or their feet over black ice. I avoid the stuff when I can. I hope the roads are clear and dry by the time I have to leave for my radiation treatment, but I suspect there will be places along my route that will remain dicey. The heavy rains night before last left several spots where water ran over the roadway and filled deep indentations in the pavement. Those spots might remain frozen and dangerous. I’ll just have to take longer to get to my appointment. Of course, as is usually the case, I’ll leave early and arrive VERY early. Better that than not arrive at all.

After my radiation treatment, I’ll go in for a blood draw. And then, depending on what time it is, I may go to Best Buy to buy a Roku Premiere. I’m investigating options for television reception. I’ve begun to look into SlingTV with Cloud DVR. The basic price for the two is $30 per month, but that doesn’t get the full range of channels. And there’s a long list of channels for an upcharge that does not permit recording, as I understand it. We’ll see. I could easily live without cable or, or that matter, any other service. I would like to keep Netflix or some service like it. But my wife has an affinity for a number of programs that require access to some form of  “TV” service. Again, we’ll see.

I have to be home before 2:00 p.m., when a “Nurse Navigator” from  my oncology provider’s corporate offices is to call me. The company apparently has developed a new program that assigns this person (or his/her colleagues) to be available 24/7 by phone. And they really insist that patients “accept” this service. Their insistence is such that, if the patient doesn’t, the patient must look for another provider. And it’s all at “no charge to you.” But Medicare is paying for it. Which, I suspect, is the reason it is mandatory. Though the services might be valuable, I’m annoyed at having them forced upon me so my oncologist’s corporate masters can make a buck (or ten thousand) off of my Medicare. I can already imagine how my 2:00 p.m. call is going to go; I don’t blame Phil (he’s the one to call me), but I’m not happy with his corporate overlords’ conspicuous greed and I’d like to let someone know. Of course, I may be making a lot of erroneous assumptions about this program. I’ll acknowledge that. But I suspect my fundamental assumption, that it’s designed to make money for the corporate master, is correct. As with everything we’ve not seen but someday will, we’ll see.

Yesterday’s radiation therapy was uneventful, the way I like it. I hope today’s, along with the blood draw, is the same.

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Cancer Journal 16, 2019

Part I

My wife reminded me to make a note of a new development. This morning, I notice a quite significant pain when I swallow hot coffee and cold water. And pain, though not so significant, accompanies swallowing anything else. The pain feels like it is in my chest, but obviously it must be in my esophagus. I assume it’s a side effect of the radiation treatment. I’ll have a word with the radiological oncologist tomorrow during my “meet the doctor” Thursday appointment.

Today (I’ll leave in just a few minutes), I go in for my 15th treatment, after which I will be half way through radiation. Celebrations are in order! I should have a nice, big shot of Maker’s Mark whiskey! Well, maybe not. But I want one. Instead, I’ll drink my aloe vera juice, which ostensibly should help minimize such things as the burning pain that accompanies swallowing coffee and everything else.

If, after my visit with the radiology techs this morning there’s anything else to report, I’ll continue with a Part II. If not, I won’t.

 

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Borrowing Money or Time

I’m sure I’ve written about it before, haven’t I? That I am the sixth of six children? That I was an unplanned intrusion into a family that was more than complete at five? That I was a mistake, probably discovered too late to be corrected? My parents never (that I recall) told me I was an uncorrected mistake, but I was not oblivious to the obvious financial strain that a sixth child had on the family. Not that I did anything to ameliorate the situation. I took far more than I ever gave, but that’s what children do, isn’t it? Yet the natural order usually gives them the opportunity to repay, in one form or another, the value of the investment over the course of the parents’ lives. Adult children can count on being given the opportunity to demonstrate to their parents that, regardless of the sacrifices their parents made, those sacrifices were worthwhile. But that’s not always the case. Parents die too early or children mature far too late or, as in my case, both. That’s the problem with unplanned children and parents who started late. My mother was thirty-one when her first child was born; my father was thirty-six. They didn’t stop having children until fourteen years later, when I showed up. And then, thirty-two years after that, they were both gone.

My folks taught me to be responsible with money. My mother, in particular, taught me that I should expect to earn interest on my money. In her later years, when she occasionally needed to borrow money from me for reasons I don’t recall, she expected to repay me with interest. And I didn’t object. I let her repay me with interest. If I had been the kind of son I wish I had been, I would have told her I would not let her repay the money, much less with interest. But I hadn’t matured enough to realize I should have made the money a gift to her or, in reality, a repayment of the investment she had made in me for almost thirty years. I can’t undo the fact that I actually kept a ledger of how much she owed me. It’s what she taught me to do, but I should have known better. I have no idea what she needed the money for, but I know with some certainty that it wasn’t for luxury items. It probably was to pay the mortgage or buy groceries or put gas in the car. With the exception of the mortgage, things she had paid for me over the years. And, in fact, my folks paid my rent during the lean years. Yet I didn’t reciprocate the way I should have done.

I doubt I’ll ever get over the guilt and regret I still feel for treating my parents’ need for money as just another financial transaction. I was unplanned, a mistake. And that mistake cost my folks the modicum of financial comfort they might otherwise have enjoyed in their retirement. I try to take some comfort in the fact that both my parents got some joy out of having the unplanned sixth child. They didn’t, as far as I know, ever openly express regret that I came along. But I can’t help but think that they would have led lives less burdened by financial concerns if they had just stopped at five. What’s done is done, of course. My regret and guilt won’t change a damn thing. Knowing that to be the case, I wish I could erase that regret and guilt. It’s not something I think about all the time, but when I do it consumes me. It will pass; it always does. I wonder whether it will ever disappear or, at least, recede into memory so deep that it doesn’t so openly intrude on my life.

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I Want a Dog

I have not had a pet since I was a high school kid. The last dog I had wasn’t really my dog. It was my brother’s dog, I guess. Or maybe it belonged to my parents. The last dog I considered mine was Buck, a fawn-colored pit bull that was about as friendly a dog as I’ve known. Unlike the breed’s reputation would suggest, Buck was about as aggressive as a pillow. He was friendly with people and with other dogs and even cats, as I recall. He got excited around other dogs, but it wasn’t aggression. It was just excitement. Buck was big, but not huge. If memory serves me, he was about seventy or eighty pounds. Maybe less. Maybe more. Buck died after being struck by a car in front of our house. Somehow, he got out of the house or out of the back yard and wandered across the street just as a car, driven by a high school cheerleader a year or two older than me, zoomed by. I was out in front of the house, calling Buck back home, when I saw him get hit. The car slammed into him as he was crossing the street and propelled him in front of the car, his two front legs pushed back under the rest of his body and his chest and neck sliding along the pavement. He got up and seemed okay. The girl stopped and apologized profusely. Because Buck seemed okay, we sent her on her way and led Buck inside the house. He was fine for a while, but it wasn’t long before he seemed to just collapse. My brother or my mother called the veterinarian, who told us to bring him in. My brother drove and I went along. I don’t remember much about the events leading up to our return home, but I know Buck wasn’t with us. The veterinarian said Buck was in shock and wouldn’t make it. I think he put Buck to sleep, or maybe he died before the vet could do anything. We left Buck’s body there and went home. I was crushed. When I saw the cheerleader at school a few days later, she asked how my dog was. I think I was a sophomore in high school at the time. When she asked, I couldn’t hold it together. I dissolved into sobs. She was embarrassed. She seemed not to know what to do or say. I felt like a fool, sobbing and telling her it wasn’t her fault. I think that was the only time I spoke to her about Buck. Or anything, for that matter. I avoided her. I knew what would happen if I spoke to her again—I would dissolve and embarrass myself with my tears and my uncontrollable sobs.

So, with that as a backdrop, how is it that—almost fifty years later—I really, really want a dog? When we moved from Dallas in 2014, my wife relented when I said I wanted a dog. I’d been saying that for years, but she argued against it because she would have been the one looking out after it much of the time, thanks to my travel schedule. And she wasn’t crazy about dog hair around the house. And the unmistakable smell of a dog, even a clean dog. She is not a dog person.  Anyway, she relented with the caveat that I and I alone would be responsible for the dog’s upkeep. And I agreed. But then we bought a house with shiny wood floors, wood floors that would be subject to being scratched by a dog’s nails (do you call them toe nails on a dog?). She didn’t renege on her agreement to allow a dog in the house, but she suggested I might want to rethink the idea. And, by the way, we had talked about spending quite a bit of time “on the road.” Would I be comfortable boarding a dog for weeks at a time? She was right. Maybe. But now, I don’t really care whether the floor has a few scratches. It has more than a few, anyway. And I know how to find pet-friendly motels. But, still, there are plenty of reasons having a dog would not be a good idea. But, I’m coming around to the conclusion that the benefits of having a companion dog might outweigh the “costs.”

When I was younger, I envisioned having a big dog, a dog that would take up the entire passenger seat in my car when we’d go for a drive—dog right-sized for its companion-master. Somewhere in my assessment of “right-sizing” a dog during those younger years, vanity played a significant role. I don’t know just how, but I recognize that I envisioned a medium-to-large dog as a complement to my appearance. I know, it’s vain and more than a little creepy. But there it was.  But now that I’m older and I can freely acknowledge that I’m too far gone for a dog to make me look attractive, I’m rethinking what “right-sized” means. And I’m thinking a lap dog is right-sized for me. A fairly small dog that I can easily cradle in the crook of my elbow. Size, of course, is only one of many considerations. Demeanor is another. And energy level. And the dog’s level of “attachment” to its master(s). Yes, it has to be attached both to me and to my wife. More on her dog attachment in a minute. I want a dog that’s not going to bark incessantly and that won’t insist on running around the house like it’s chasing a murderous rat. I’m not looking for a watch dog, nor a protector. I want a friend. That’s it. A friend who will always be there for me. A friend who will recognize when I’m down and will try to comfort me. And who will sense when I’m happy and will help me celebrate. And I want to reciprocate. We’ll be an inseparable pair. Well, not really. I don’t want to become the sort of person who throws a tantrum because I can’t take my dog with me when I go to see the doctor or when I’m buying meat at the butcher shop.

All of this talk of getting a dog is, I’m afraid, pure fantasy. Our planned 18-day trip later this year argues against it. And at the moment, my daily visits to the radiologist argue against it. And the thousands of other little pieces of my life that were built around a dogless existence argue against it But, damn, I sense an almost palpable “need” to have a furry little companion. Not a cat. A dog. A dog that will lick my face and that will demonstrate how incredibly excited he or she is when I come home from being away. It’s all a fantasy, though. I can’t even allow myself to consider that I could really get a dog. My wife would not be thrilled if I were to get one. And that’s putting it mildly. But, guess what? If I were to get a little dog, a friendly little critter who showed her as much love as I envision it will show me, she would be utterly smitten. She would become just as attached to it as would I. How do I know this? I just do. I’ve seen her around other little dogs. As long as they are not too friendly (that is, as long as they offer their affection rather than energetically force it upon her), but are friendly enough, she like them. She’s attracted to them. I think she would like the dog I envision I would choose. But, again, it’s a fantasy. She would not renege on her willingness to accept a dog, but she wouldn’t like it. Until she did. But in the interim, she wouldn’t. And maybe I’m wrong. Maybe she would never warm up to the idea. And dogs eventually die. And I know how I react when dogs die. Maybe it’s not such a good idea, after all. But at least I got it out of my system for at least a few minutes. But it’s not really out of my system, is it? No. But on top of being a dreamer and an idealist and a romantic and a fantasizer, I’m a realist. A dog just isn’t in my future. Unless, maybe, it is. My wife would kill me. And, as much as I sometimes think otherwise, I don’t want to die.

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Philosophizing in a Cold Room

Recently, I was thinking about good and evil (I use both words advisedly, as I do not attribute to them any religious significance) in humankind. I wondered why, when we as humans generally agree that good is the preferable of the pair, we have not collectively erased evil from the species. Perhaps the only way we can define any given condition in our experience is to contrast it with its opposite. For example, can we understand and appreciate the comfort of warmth as a pleasant experience only when we can compare it with the unpleasant experience of cold?  Neither warm nor cold nor good nor evil are precise. All occupy spaces along a spectrum with no endpoints.

But I don’t think that reason, even if it explains the survival of evil, has ever been made consciously and collectively. Yet people have long written about evil as the yardstick against which good is measured, so the idea is not new.

Shifting gears: would it be possible for us to “breed evil out of the species” through a program mimicking the way in which new breeds of dogs are bred to exhibit certain traits and eliminate others? The very idea of controlling human traits through breeding is anathema to us, thanks to monstrous experiments conducted by the Nazis in Germany and our own scientists in the forties and fifties. And others. But what if any such programs were made voluntary? Would selective breeding be so offensive then? The arguments against even allowing such an idea to enter my head are filling the streets of America even as I type this sentence. How dare I even entertain the idea?! I can hear the chants now: “People who allow their minds to go to THAT dark place should be shackled and chained in dungeons!”

I suppose the idea of actually “breeding evil out of the species” is one for ethicists to debate. Given the entrenched attitudes about life, when it begins and ends, and the extent to which we (the collective we) should control it, the argument will never end. (We can’t even agree whether we ought to control diseases through vaccinations against them, for God’s sake.) But back to the original point. Not that it matters. Even if we could “breed evil out of the species,” would it last? Would the absence of evil make it, then, impossible to understand good, inasmuch as the concept would have no counterpart against which it could be compared? And would that, then, lead to humankind creating a counterpoint to our goodness? I think we would, indeed, figure out a way to manufacture “evil” as a means of assigning value to “good.” I believe that’s essentially what humankind has done over the eons in manufacturing gods. By creating gods who articulate what constitutes good and evil, we assure ourselves that the necessary contrasts will always be available to shore up the morality we can’t maintain on our own.

And that’s enough philosophizing in a cold room for this morning. I have yet to finish my now cold first cup of coffee, make breakfast, and shower, shave, and get dressed in preparation for my thirteenth radiation therapy session. Just two more sessions and I’ll be half way through radiation. And, after next Monday’s chemo session, I’ll be half way through chemotherapy. Even though I feel much less fatigue than I felt just a week ago, the minor but constant pain is beginning to wear on me mentally. Will it ever end? I worry that it won’t and that I’ll just have to get used to it. And that is a very depressing thought. In a Zen moment, though, I am telling myself to settle in to the experience and accept what is now and not worry what will be, for there is nothing but now which which to be engaged. The key to this conversation with myself is this: do I believe what I’m telling me?

 

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Slinking Back

Twice since I deactivated my Facebook account a week ago, I absent-mindedly clicked on the Facebook logo on my desktop, then clicked again when the pre-populated login screen popped up. Instantly, I was on Facebook.

When I decided to deactivate, I made a point of removing the login from my phone because I learned during previous Facebook vacations that my phone did not require my intervention to log in. But my fingers’ automatic behaviors require more training than a simple; I guess they require clunky gloves that restrict their movement.

Except for those mindless logins, which I quickly corrected by deactivating my account again, I’ve been off Facebook for about a week. And that may be enough. I’ve realized during that time that making contact with companies to complain about products or services is, apparently, far easier through Facebook than through the old tried-and-true mans of going to company websites. What ever happened to websites as prime elements of company communications with customers? Or, for that matter, telephones?  Everyone says some variation of “contact us on Facebook for more details or to reach our customer care team.” Ach. That shift to Facebook for customer service flies in the face of social media Luddites like me. I suppose I can’t legitimately claim social media Luddism, given that I’m writing a blog post.

I’ve especially missed the regular interaction I enjoyed with a group of “old fashioned” bloggers. I’ve been delighted, though, that some of them have made their way here to comment (pre-Luddism, comments on our respective blog posts were made to our Facebook group, though I was inconsistent and commented both places from time to time).

An interesting aspect of my admitted very brief week-long departure from Facebook is that I’ve noticed that I felt that ties to other people, as well as my lifeline group, seems to have been severed. People I followed just to see what’s up in their lives disappeared. Facebook, it seems, was the only contact I had with some people, even people who live near me. Suddenly, there was nothing. No telephone contact, no email, nothing. That shouldn’t have surprised me, because the only regular contact beforehand had been Facebook. But I had imagined we were in regular touch by virtue of posts, in both directions, on Facebook. Yet these were posts directed not specifically from me to them or them to me but to “everyone out there.” So, it seems, we (or at least I) thought we were communicating, but that was an illusion. Facebook, it seems to me, provides an acceptable stand-in for real interaction. It offers of a means of convincing ourselves and those with whom we “interact” that we are engaging with one another. But are we?

Sometimes. When members of my blogger group on FB engage with one another, we really engage. Our Facebook posts and comments generate conversations the way blog posts once did (and, I admit, still do on occasion). Facebook provides us with a single place to gather, the value of which cannot be overstated. Without a single meeting point, I doubt we would engage the way we do. Facebook, I should add, didn’t create our group to provide that meeting point; it’s simply the tool used by the group’s founder (thank you, Chuck!) to form a cohesive group of like-minded (in many respects) bloggers.

I left Facebook a week ago with the intent to take a break for a while. I didn’t know if it would be a month or a quarter. It turned out, I think, that it will be only a week. It’s now up to me to filter out the crap that made me decide to take a break and, instead, focus only on the very positive aspects of the platform. Later today, I’ll intentionally log in to Facebook to see what I missed. But rather than scroll through the feed, I’ll go directly to my blogger group to see what’s new there. I’ve visited members’ blogs during the last week, so if I missed anything I’ve missed conversations. I feel refreshed.

One thing I accomplished during the last week, despite my break from Facebook, was to contact Lowe’s customer service by email to lodge a complaint about what I considered miserable customer service. My wife ordered a washing machine in October (with a promised mid-November delivery date). When the delivery date came, so did an email saying the delivery had been delayed until the end of the month. And then announcements of more delays, with no explanations. Finally, it was delivered last week, with some quirks in the process. I complained, via email, that a two month delay without even a phone call or an apology was unacceptable. The outcome was an offer of a twenty-percent discount on the machine, refunded to our credit card. I was pleased. Even without going through Facebook to reach customer care, I got some satisfaction. There’s hope for us, still.

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Real Life Lessons

Let me be unkind for a moment, if you don’t mind. I feel like expressing my perceptions of a guy with whom I’ve shared space in the waiting room while lingering in anticipation of my radiation therapy. Don’t assume I’m simply unloading, though. I learn from myself, even from the most base aspects of my personality.

The guy, who I’ll call Redneck Gorilla, accompanies a wheelchair-bound elderly man. I’ll assume the old man is a relative. Redneck Gorilla, who reeks of cigarette smoke, sprawls on the waiting room chair in a way that resembles, in my mind. an octopus filling every available space in a small jar. Surely you’ve seen videos of octopuses squeeze into jars far smaller than you thought possible, right? Well, Redneck Gorilla fills every available surface of the chairs and then some. He sits in the chair, leaking his cigarette-laced effluvium into its fabric, watching country music videos on his phone. I notice that much of the music seems to promote the “good ole Southern boy” persona, with an occasional reference to Neil Young and the fact that “Southern man don’t need him around anyhow.” I’ve seen this thirty-ish guy several times and, without fail, his demeanor is generally what I’d call macho-surly-unfriendly. His response to my “good morning,” twice, was to glance up and glare, then go back to his phone. I call him Redneck Gorilla out of pure, unmitigated bias. Redneck because of both his behavior and his appearance. He’s nearly bald, his remaining halo of hair shaved to the scalp, a perfectly respectable style; but, when coupled with his underslung jaw and his bloodshot eyes, he is, in my prejudiced eyes, the epitome of stupid and redneck, combined in one spherical package. I use the term Gorilla because I imagine his arms hanging down by his side, the hairy knuckles dragging the ground. Yes, I judged this character from his appearance and his willingness to share his stench with the rest of us in the waiting room. I am guilty. My judgment is unkind and reprehensible. Fortunately for me, the man he accompanied to the radiation center had his last treatment on Friday. Now, let me turn my harsh judgment of the guy on its head. Whether he wanted to be there or not, he was there for the old man. Despite my assessment that Redneck Gorilla is among those humans whose redeeming features number in the low single digits, the guy was there for someone else. Maybe his demeanor was shaped by the fact that he’s afraid of losing the guy who he accompanied to radiation. I’m trying to give him the benefit of the doubt. Maybe he is, at his core, a good person. Maybe. But he does a fine job of hiding it beneath a veneer that I find offensive. I try to be better than I am. Often, though, I fail miserably. How would I react, I wonder, if I learned Redneck Gorilla is facing his own cancer diagnosis, a far worse diagnosis than mine? I think I would even more embarrassed at my pettiness than I am.

Now, after going through the exercise of judging someone else on the merits of appearance, odor, and limited interactions, it’s only fair to consider how other people in the waiting room might judge me. I’m not very talkative, so I can see how my limited verbal responses to the few comments others have made might be considered unfriendly. I can envision a guy thinking to himself, “This guy acknowledged my comment, but that’s all. He seems to have made a point of letting me know he wasn’t interested in talking to me.” That’s not correct, but he might understandably think so. And he’s not alone. I’ve had very few conversations with others waiting for treatment. I’ve listened to a couple of them talk about their conditions and their treatment, but I’ve not shared much with them. Perhaps they find me stand-offish and unfriendly. I wonder what names they might have for me: “Aloof Goof.” “Silent Scumbag.” In reality, though, I doubt they have any names for me. I doubt they even paid much attention to me. It’s not about me. People in a waiting room are not placed there to scrutinize me and pass judgment on me. That’s my job. 😉 I’m the one who’s behaving like the jerk I am judging.

There’s an aphorism: “You never know what someone is going through. Be kind. Always.” It’s one I try to follow because I believe it merits a place in my consciousness. People can behave in ways that bother, offend, or otherwise annoy me/you for reasons beyond your capacity to comprehend. Yet try as I might, I fail to acknowledge that reality in my day-to-day life. By judging the guy who smells of cigarettes, I make all manner of assumptions about him, yet I know virtually nothing about him. It bothers me that, despite knowing how I should be and how I should behave, I nonetheless act in ways contrary to what’s “right.” I suppose regular self-reminders are in order.  Unfortunately, even with regular reminders, I keep running into people who challenge the generosity of the aphorism mentioned above. I keep encountering people who just seem to be pigs. And I react, at least mentally, accordingly. But, still, I have to remind myself that I don’t know what they’re dealing with. I have to try to be compassionate. I have to try to exercise some empathy for whatever plight they may be facing.

It’s easier to be judgmental than to be kind. It shouldn’t be. Spreading kindness by being kind is more likely to make a livable world than spreading judgement by being judgmental.

Posted in Cancer, Civility, Compassion, Empathy, Health | 4 Comments

Cancer Journal 15, 2019

This morning, as I was getting ready to take a shower, I noticed that the red area on the skin on the side of my chest, beneath my right arm, had grown in size. I looked closer and noticed a similar rough, red, patchy area on the underside of my arm. It was in an area that comes in contact with the original red splotch. And then I noticed a much smaller, but very similar pair of red splotches mirrored on my left side.  What I originally thought was a “burn” byproduct of my radiation treatment no longer seemed to make sense. I was getting a series of rashes that looked like they had developed, for the most part, overnight. I decided I needed to ask my health care team what gives.

And so I wrote my oncologist a note and left it with her office when I went for my radiation treatment. The note covered multiple issues. While I was in radiation, my wife texted a message that the oncologist’s office had called with answers to the questions I left for her.  I had already asked the radiologist’s nurse about it and she suggested I visit with him after treatment, which I did. He looked at the rashes and asked questions about whether I had changed deodorants or bath soaps. He then called the oncologist. They chatted, during which it was apparent neither of them had any idea what might be causing the rashes. They agreed I should see a dermatologist. The radiologist’s nurse called a dermatologist to make an appointment with a nurse practitioner. First available date: the afternoon of February 1. So I have an appointment. In the interim, I’ll try my own remedies, using cortisone creams and the like.

The oncologist’s response to my question about why she had asked Caris Life Sciences for “molecular intelligence.” It has nothing to do with current treatment. Instead, it was requested to provide data in the event my cancer recurs. If that were to happen, the data might suggest appropriate treatments from what might then be available.

Nothing else new for the time being.

 

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Thinking It Through

I don’t know precisely when it happened, but sometime within the past several months (or maybe the past few years) I seem to have lost the ability to sit at my computer and produce pleasing, mellifluous language. I think I really did have that “gift,” if that’s what it was, and it seems to have left me. Now, when I sit at my computer to write, language more befitting a technical journalist than a creative writer appears on the screen. I just don’t know what happened. I miss my ability to string language into sentences that, to me at least,  please the ear, as if they were carefully woven into rich tapestries of sound and meaning and emotion. Today, my words fall into chaotic mounds as if their context has been stripped from them and they have been left to decay into meaningless syllables.

When I make a concerted attempt to write “flowery” prose, I fail miserably, so much so that I delete entire pages filled with dead words dressed up to look alive, like a corpse in a casket prepared for viewing. Maybe I’m trying too hard, or maybe I’ve just lost what once was an innate ability to write. Good writing involves more than stringing words together in a pleasing way. It relies more on emotion than technical skill. Perhaps that’s what is missing. Perhaps the emotions that fueled my writing have withered or have been used so much that they’re covered with calluses.

Writing has become work. It was never work before. When it was joy, it flowed. But it’s work now and it no longer flows. I have to extract it from my brain with heavy equipment, breaking through the layers of rock in search of tiny veins of ore that might, if I’m lucky, contain enough value to make the exploration worthwhile. But there’s never enough value to warrant the effort. Only when it flowed freely, without being coaxed or forced, was it valuable.

I don’t even know if I want to write. That could be the problem. Maybe I’m writing because I think that’s what I want to do when, instead, I’d rather be fishing or cooking or searching the back roads of country for the kid I used to be. That’s the key.

Mining the emotion without the tools, that’s it. That enables me to feel it and, when I feel it, it breaks my heart. That’s what will enable me to not only want to write but write the way I used to write. I feel it well up in me when something triggers an emotion too intense to ignore. When my eyes begin to brim with tears, that’s when I need to put words down. Not when I’m starched and dry and satisfied. I guess I need to peel back the protective layers I’ve intentionally wrapped around myself. I thought they were protecting me but, instead, I suppose they may have been smothering me.

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Cancer Journal 14, 2019

Thursdays are “talk with the doctor” days after radiation treatment. First, a nurse weighs the patient, then another nurse queries the patient about any problems or questions, then a dietitian asks probing questions about the patient’s appetite and discusses his weight loss, and then the doctor comes in for a brief visit. At least that’s the way it works with me. I don’t know if the same protocol is followed with other patients, but I suspect so; that, or something very close.

Today, I was advised that I’d lost three pounds since last week. For me, that was a positive. For the dietitian, not so much. She wants me to drink a “Boost” a day. I told her I am eating quite well, better in fact than I should. The weight loss, I told her, probably is attributable to the utter absence from my diet of alcohol. I tend to enjoy my wine with a vengeance, which tends to wreak havoc on my mid-section, making it impossible to button my pants over my belly. Instead, I wear them low, over my hips. It has always been thus, though, so it’s not a new development. The dietitian—Jennifer is her name, I think—was unmoved by my effort to blame the absence of red wine from my diet. I promised I would consider adding Boost or Ensure to my diet, a lie that seemed to sufficiently satisfy her and cause her to bid me adieu. The doctor’s visit was short and perfunctory. When he asked if I had any questions, I asked whether, after completing my 30 radiation treatments, I would need to see him again periodically. He said I would need to see someone, probably my oncologist, every three months for five years, at which time, if all goes according to plan, I can be considered “cured” of cancer. Every three months for five years. That will involve, at least to some extent, blood work, CT scans, and other such invasive or intrusive or just plain annoying medical processes.

Other than the gloomy prospect of at least quarterly doctor visits for five years (that’s at least twenty visits, in case I’m counting), my news is good (knock on wood). My fatigue seems to have diminished considerably and my general state of feeling reasonably well has stabilized for now. I’m not particularly peppy, but neither am I spending most of my time in a recliner or heading toward one.

Just nineteen more radiation treatments. Hallelujah! I just wish the pains in my gut would disappear. And I’m occasionally finding that I have “stuff” in my windpipe that “rattles” each time I inhale and exhale until I manage to force it out with earthshaking coughs. I failed to mention that to the doctor. I probably should. There’s next week for that.

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Still Walking Each Other Home

A quote from Ram Dass is on my mind this morning. “After all, we’re just walking each other home.” Those words often find their way to my consciousness, but I never seem to be able to fathom precisely why they pop into my mind. I recall once reading them in a message from a friend, who quoted a Mary Gauthier tune whose lyrics included them as “Ain’t about the money, ain’t about who’s right or wrong. We’re all just walking each other home.” When I read the message that quoted the lyrics, I felt extremely close to my friend, as if the words bound us in a way that exceeded my capacity to understand but, still, felt somehow sacred, spiritual…almost holy. I welcomed those feelings, foreign though they were to an avowed atheist. I’ve since come to appreciate that a sense of awe and wide-eyed wonder at the world and the relationships we experience in it are not reserved for the religious.

At any rate, the words were on my mind this morning. So I used my computer to explore a little, trying to uncover a few more bits and pieces about them that might explain their appeal to me in general and in particular why they resonate with me this morning. I came upon a blog post by an Episcopal priest, Linda Taylor, who said this about those words:

We’re all going to the same place, and we’re all on a path. Sometimes our paths converge. Sometimes they separate, and we can hardly see each other, much less hear each other. But on the good days, we’re walking on the same path, close together, and we’re walking each other home.

Her comments triggered a thought about something I recently wrote about friend versus acquaintance. The difference, I think, is that friends are on the same path, close together, and we are, indeed, walking each other home. Acquaintances may be on the same path, but we’re not walking together. Somehow, writing those words just now seems trite, on the one hand, but utterly profound on the other. I can live with passing trite as long as profundity remains, as solid as a rock.

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