Too Tired to Care?

I read an online article from Maclean’s Magazine (a left-center leaning Canadian news magazine) yesterday that moved me to rage. The article dealt with a decision by a local police department to issue an “Amber Alert” in the middle of the night a few nights ago about a missing Brampton, Ontario girl. As a result of the alert, someone spotted her father’s car, leading to the man’s arrest. But it was too late for the 11-year-old girl; she was found dead.

The next morning, social media was abuzz with complaints about the late-night alert that awakened people. The police department logged 383 calls, mostly complaints, about the alert. People complained, among other things, that they were too far away from the crime to have done anything or that they were awakened even though their phones had been put on “do not disturb.” One man complained that “We do not work for [the police].” The complainers were angry about their interrupted sleep.  They were upset that they were being asked to contribute to work that they believed the police should do, with no public involvement. The article’s writer, Scott Gilmore, was rightfully indignant. Here’s some of what he wrote in response to the complaints made about the alert.

This is a comfortable land. Our cars have heated seats. Our winter coats have Bluetooth. Our hot dinners come right to our door. Life expectancy is higher than it has ever been, and crime is lower than we ever could have hoped.

How did this happen? Mostly because we as a society figured out how to move forward together. Collectively, we agreed to a mostly unspoken social compact: if we look after each other, we will all be looked after. There’s nothing particularly unique about this; it’s a variation of the “Golden Rule” which has been the bedrock of every civilization since Ur.

But we have grown so entitled to our comforts, we’ve forgotten that we have to pay for them, that we bear collective responsibilities. We can’t be bothered to vote. We resent paying taxes for public goods. We volunteer in our community less and less. And now we even begrudge having to help save the life of a child.

That is what citizens are complaining about today. They were asked to help save a child and this irritated them. In small towns, when a child goes missing everyone knocks on doors and wakes each other up and searches all night. Because in a community people look out for each other, they understand the duty we owe our neighbours. They recognize that if you want to live in a town that protects its children, occasionally you have to get up, go outside, and help.

In my opinion, the indignation expressed by the people who complained about the late-night alert is a symptom of a social illness that, if left untreated, will destroy decent society. If people are permitted to behave in such self-centered ways without being called to account for it, we will slip into the gutters, never to climb out. I am grateful that Scott Gilmore used his media platform to lambaste those who complained. I learned, from another Maclean’s article, that the Amber Alert was only the second ever to be sent to Ontario cellphones since the system was implemented last April. But the fact that it awoke people on a work night was an outrage.

Gilmore’s comment is extremely important: “in a community people look out for each other, they understand the duty we owe our neighbours.” That is the bedrock of society. that is what we are about. Without that compassion and caring for one another, we are doomed. Yet people seemed to be too tired to care that a child was missing. A child who later was found dead. I’m still angry about what I read.

For as long as the links are valid, here are the ones from which I learned of this event: first and second.

Posted in Anger, Compassion | 2 Comments

Cancer Journal 26, 2019

Yesterday, during my visit with my oncologist, I learned that the inquiry from Caris Molecular Intelligence a few weeks ago wasn’t entirely about “future treatments” if cancer were to recur. The genetic tests revealed that I have a “60% positive PD-L1,” which “might” suggest that I “might” be a candidate for an immunotherapy that could possibly help prevent a recurrence of my cancer. The immunotherapy would involve intravenous injection, every two weeks for a year, of a drug called Imfinzi (a brand name for durvalumab). There’s no assurance my insurance company would pay for it, the doctor says, because I don’t quite fit the profile of people for whom the drug is recommended: that is, people who cannot be treated for lung cancer with surgery. But, she said in effect, “it seems like the drug works for people who are otherwise like you, so it makes sense to try it.”

Once I got home, I did some research. PD-L1 is shorthand for Programmed death-ligand 1, not a particularly cheery name for a protein for which I am 60% positive. I’ll admit, the descriptions of the protein, as well as its functions, are more complex than I was willing to attempt to understand. But the mere fact that I might be a guinea pig outside the scope of a formal study was a bit off-putting.  Oh, and there are potential side-effects to treatment with the drug aimed at addressing PD-L1:

  • Lung problems (pneumonitis)
  • Liver problems (hepatitis)
  • Intestinal problems (colitis)
  • Hormone gland problems (especially the thyroid, adrenals, pituitary, and pancreas)
  • Kidney problems, including nephritis and kidney failure
  • Skin problems
  • Problems in other organs
  • Severe infections

The PD-L1 protein disguises cancer cells from the immune system. According to the AstraZeneca Infimzi marketing site, the drug binds to and blocks the PD-L1 protein, thereby allowing the immune system to “see” and attack cancer cells. And, the site mentions, “There is a chance that IMFINZI may affect healthy cells, too.” Yeah. The side-effects.

Before I learned more details about the immunotherapy than the oncologist shared, I said I’d consider it if the insurance company would pay for it. Now that I know a bit more, I think I’ll pass. I’ll take my chances than my PD-L1 proteins might disguise future cancer cells from my immune system. I’m not beyond changing my mind, but for the moment, I think I’d rather minimize the chances of the kinds of side-effects this treatment might bring.

Just three more radiation treatments and two more chemo treatments. As of next Tuesday, I’ll only have one more treatment left: my final chemo. I am looking forward to the end of this process.

 

 

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The Break, Season 2

Last night, I watched season 2, episode 1 (and part of 2 before I dozed…not because it wasn’t interesting, but because I was absolutely worn out) of The Break (La Trêve, in French, “The Truce”), a Belgian crime drama. I absolutely loved season 2 and I expect I’ll find season 2 equally as compelling. It is, in parts, gruesome, bloody, and stark, unlike whitewashed dramas on American television (except American television is addicted to gunfire exploding in fountains of blood). But those elements are not gratuitous; they contribute heavily to the story and the settings. Now that Netflix seems to be working properly (crossing all ten toes and most of my fingers), I can watch stuff besides HGTV re-runs, which makes TV viewing much, much more enjoyable. Perhaps I could find other enjoyable stuff, but my efforts on regular cable have failed miserably. At any rate, the series focuses on Police detective Yoann Peeters, who has moved from Brussels to his small hometown (in the first season). The quiet little place experiences a horrible homicide (an EXTREMELY unusual event) almost immediately upon his arrival. The first season followed his investigation of the homicide, all the while addressing his own psychological challenges (among other side-stories). The second season opens with another horrific homicide, almost immediately pinned on an emotionally and intellectually challenged young man who has just been released from prison for an earlier homicide (which he probably didn’t commit). I’ll leave it at that. Superb series! I highly recommend it (so far).

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Keeping Secrets

Who in your sphere of friends keep secrets that, if  told, could break hearts, ruin marriages, destroy friendships, shatter families, or otherwise upend moderately tranquil worlds? Perhaps the person in your sphere of friends who keeps such potentially explosive secrets is you. What have you done, or even thought, that you would never want revealed, even to your closest confidant?

For some, the secret may be grotesque and horrible; a brutal murder or vicious attack that left its victim physically or emotionally devastated. For others, it might be a lengthy extramarital affair that ended but whose love remains bottled up inside. And for still others, it could be something simpler but just as impactful: theft of money from a mother’s purse or father’s wallet that would, if revealed, unravel familial trust; a wife’s well-hidden alcohol dependency that her husband thought had been conquered.

I have vague memories of reading about a “game” in which participants wrote their closest held secrets on a piece of paper, folded the paper, and dropped it in a box. The game leader then pulled each paper from the box and wrote the contents of the slip on a chalk board. The object of the game was to guess which participant wrote which secret. Obviously, I’ve forgotten elements of the game; no one would be willing to risk revealing their secrets in such a way. Although, perhaps it would work if the participants did not know one another and hid their real identities. I think learning the most intimate secrets held by strangers would be both interesting and cathartic. I suspect that learning those secrets might make mine seem less onerous, easier to carry. But learning others’ secrets would not free me to reveal my own. We hold our secrets as if they were deadly poisons; we think their release would surely kill someone, either ourselves or someone close.

It’s possible, of course, that I may be wrong about secrets. Maybe most people don’t have secrets they guard like the crown jewels. Perhaps I, alone, can remember things I want no one else to know. But that can’t be true, either.

That box into which people drop their secrets is appealing. I’m curious to know what strangers wrote on those pieces of paper. Knowing their secrets, though, would make them more intriguing. I’d want to know more about why the secrets are so private, why it is so important that they be kept. How did the events leading to the secrets unfold? Those questions are what make people so interesting. Sometimes. I suspect there are those whose secrets would be dull and uninteresting. I suspect some people live tedious, vacuous lives. Some people might consider mine as fitting that description. We don’t know what others face and, because we won’t share those secrets, we can’t compare our lives to theirs. Perhaps that’s for the best. We shouldn’t compare ourselves to others, only to our wishes and dreams. That’s enough, though, to hurl us against the edge of the universe and make us cry out in pain. This is going off-course, so I’ll leave it there.

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Cancer Journal 25, 2019

Nothing much new, except that painful swallowing continues. It’s possible, of course, that it could be far worse without the extremely inconvenient medication regimen after every meal. One of the medications, nystatin suspension, apparently is in short supply for some reason. I tried to get the prescription refilled yesterday, only to find that no nearby pharmacy has it. Finally, after some gnashing of teeth, a compounding pharmacy outside the west gate got my radiologist to agree to a replacement, clotrimazole. I haven’t taken the new stuff yet, but I know it’s different from the nystatin. For one thing, it smells like grape jelly, one of my least favorite odors on the planet. For another, it must be refrigerated.

If my calculations are correct, including today, I have only six more radiation treatments left. It’s my understanding that my painful swallowing may last three or four weeks after treatment ends. Or, according to what I’ve read of long-term side-effects, the pain could continue forever. I hope that’s not the case. I sincerely do.

My next chemo treatment is next Monday. The final chemo treatment will follow three weeks hence. There’s light at the end of the tunnel.

Posted in Cancer, Health | 3 Comments

Unbearable Mistakes

A quote attributed to North Carolina Republican Congressman Walter Jones, who died yesterday, saddens and moves me.

“I did not do what I should have done to read and find out whether Bush was telling us the truth about Saddam being responsible for 9/11 and having weapons of mass destruction. Because I did not do my job then, I helped kill 4,000 Americans, and I will go to my grave regretting that.”

Later, he told a reporter:

“I have signed over 12,000 letters to families and extended families who’ve lost loved ones in the Iraq and Afghanistan wars, and that was for me asking God to forgive me for my mistake.”

Some mistakes can never be undone. Their effects can be so horrific that to fathom how a person who makes them can live with himself. But people make such mistakes all the time. People commit murder in unchecked rages and, almost instantly, regret their actions. They want nothing in the world more than to undo what they have done, but it’s impossible. Regardless of their regret, though, our society demands some form of retribution. We demand extended prison time or, in many cases, a death sentence. Because, we argue, no matter how remorseful a person may be, the act of killing another human being is so horrible that only the most monstrous penalties are appropriate.

How is it that we cannot forgive a person who commits a single instance of murder yet we can forgive someone like  Congressman Jones, who admits to contributing to the deaths of thousands? Obviously, Congressman Jones did not intentionally kill those thousands, but his actions helped contribute to their deaths. How do we differentiate him from others? How do we permit ourselves to pity him and understand his regret, while maintaining our condemnation of the person who, in a blind rage, took someone’s life?

Lest it be unclear, I’m not arguing that we should offer blanket forgiveness and pity for murderers. I’m only asking myself how we justify, intellectually and emotionally, treating responsibility for the deaths of thousands differently than we treat responsibility for the deaths of individuals? How can I feel sympathy and empathy for Congressman Jones’ sense of regret and remorse, while allowing myself to feel no such emotional bond with the woman who, in a fit of rage, shot her unfaithful husband? Or have I simply conditioned myself to abandon my empathy and sympathy for the murderous woman because society has told me it’s the right thing to do?

I think the fact that people express deep remorse for their unforgivable acts is one of the reasons I long ago decided that I’m not only not in favor of, but actively oppose, the death penalty. That, coupled with the very real possibility of unjust convictions of innocent people, changed my mind. I still feel rage and anger and a desire for revenge against people who commit heinous crimes, but I temper those wishes with the knowledge that questions of guilt or innocence and real regret always are at play. My compassion for those judged guilty doesn’t compare to my sense of compassion for victims and their families, but it is sufficient to make me err on the sides of certainty and remorse.

Though I know very little about Congressman Jones (other than the fact that he switched parties from Democrat to Republican , that he regretted his votes in favor of the Iraq invasion, and that he was among those in Congress who pushed to rename french fries as “freedom fries” after the French opposed the 2003 U.S. action against Iraq), I feel empathy for the man. I hope he was able to finally believe, before he died, that he was forgiven.

 

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A Modicum of Control

Between unsuccessful attempts to fall asleep…and moments in which consciousness finally eluded me…last night, I escaped the bonds of rationality and reason. During those in-between moments when I was neither awake nor asleep, my mind took me to a point in the future when I will be utterly alone. It is at that point that I will be free to make decisions, if I am alive and sentient, unrestrained by the effects of my choices on other people. And that’s where my mind took me last night, half-awake and half-asleep.

In my fantasy, if that’s what my fugue-state was, I had sold everything I owned except for some clothing and a few personal effects. My most pressing thought was to make a decision on where to go—where could I go to start a new life with nothing chaining me to the person I had been before? I suppose sleep found me before I found that magical place, but I remember three places were on my mind: the Florida Gulf coast, the outskirts of Lincoln, Nebraska, and Costa Rica. What a bizarre mix.

What’s most odd about this partial-conscious dreamscape is that I was attempting to completely escape my past life. My intent was to cut all ties to the self that had existed theretofore. I was planning to launch a new me in a new place. That’s an absurd fantasy that a very small number of people ever try to achieve and fewer still actually achieve it. I wonder whether my escape from my past life was, in some Freudian way, actually an attempt to escape from my cancer. Despite my confidence that this cancer will be beat, I know it’s possible that it will return. So, perhaps, my effort to escape to a new place was symbolic of my desire to escape from the reality from which I know there is no escape.

Sometimes, I overthink things. I allow myself to delve into places in my mind that would best be left undisturbed. I should allow my mind to concentrate, instead, on taking my medications, eliminating the pain I feel when I swallow, and thinking of the real future over which I have a modicum of control.

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Questions of Privilege

Most people on Earth are “better off” in some way than at least some other people. Some have access to more food. Others live in more secure or better shelter. The surroundings of some are more reliably safe. Others can depend on a healthier or safer food supply. Some people have more money to buy a more reliably secure lifestyle. Others live in the lap of luxury and never want for any basic needs. Some people are isolated from physical and emotional threats that plague others. Unfortunately, a significant number of people live in constant fear, not only for their own physical and emotional safety but in fear of inadequate or unsafe food and water and shelter.

For each of those people, where does society draw the line between having too little and too much, in comparison to others? Does the person with a barely adequate supply of safe and reliable food have an obligation to share with others whose supplies meet neither measures? Is the person fortunate enough to live in secure shelter obliged to share it with those whose shelter is worse or less secure?

In each case involving people more fortunate than others, we can say they are privileged in some form or fashion. They live more comfortably than others, at least along a single dimension. Does that good fortune carry with it an obligation to share? Or, if not, does that good fortune carry with it a moral obligation to at least feel guilt for undeservedly having “more” or living in better circumstances? For the sake of contemplation, let’s assume that no one along any continuum has “earned” his or her place. Everyone has worked hard to achieve whatever he has. The “luck of the draw” has enabled those with plenty to acquire more than they need. That same “luck” has withheld largess from people who suffer from paucity.

The point of these questions, and this contemplation, is to frame ideas of obligation. What are we obligated, as humans, to do? And, perhaps as importantly, to feel? Should I feel guilt at my good fortune in comparison to a poor beggar on the streets of a village in an impoverished country? Does feeling guilt count against any obligations I might have to share my largess? Does simply recognizing my privilege count in any way and, if so, how? Am I under any moral obligation to minimize the extent of my privilege so that someone else might rise part way toward that privilege I once enjoyed?

None of these questions have “correct” or “incorrect” answers. They are just questions that merit some attention. Yet they “feel” like they ought to have correct answers. They “feel” like we ought to know when we have too much and, therefore, should share without expecting anything in return. But we don’t know. And that’s the source of guilt; not knowing how much we should share or, knowing, not sharing.

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Film Nibbles

I watched The Angel the other night, the true story of Ashraf Marwan, who was President Nasser’s son-in-law. He was also a special adviser to Nasser’s successor, Anwar Sadat, at the same time he served as an asset to Israeli Intelligence. I found the film fascinating (though motivations were a bit confusing from time to time), up until near the end. Somehow, it sort of fell apart late in the game, but I’m glad I watched it nonetheless and I’d recommend it. The film is based on the New York Times bestselling book, The Angel: The Egyptian Spy Who Saved Israel, by Uri Bar-Joseph. The actor who briefly played Muammar Gaddafi, Tsahi Halevi, was a very visible cast member of Fauda, which I just finished watching a few days ago.

Speaking of Fauda, I found both seasons  absolutely riveting. I sort of wish I’d gone back to watch season 1 again before starting season 2, as I was confused for a while, but not irretrievably so. I can’t say enough about how well the subtitles were done; I simply forgot I wasn’t watching it in English.

Speaking of foreign television series, season 2 of The Break will be available on Netflix on February 9. Season 1 of this Belgian TV series was fantastic. I can hardly wait to see season 2.

 

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Trouble in Iceland

My affinity for, or interest in, things Icelandic is evident in the fact that sixteen posts on this blog mention Iceland (seventeen including this one). It’s a disease, I think, this longing for immersion in cultures to which I have absolutely no connection and for which my fascination has no reasonable explanation. Today, that fascination and interest, legitimate or not, are being tested.  You see, I learned today that the country has an official naming committee that determines the acceptability of names which may be given to children. Really! As I started to skim the Iceland Monitor, an article on the subject attracted my attention. Or, should I say, the article attracted my immediate disbelief and disdain (combined, in an odd sort of way, with appreciation).  I’ll quote from the article:

The famous Icelandic naming committee which decrees which new given names in Iceland are allowed or not have said no to names Carlsberg and Danski…The middle name Carlsberg, of Danish origins does not comply to Icelandic rules of grammar and neither does Danski…Boy’s name Javi and girl’s names Kolþerna, Einara, Ásynja, Elízabet, Emanúela, Baldína and Natalí were accepted however.

Can this be real? Yes, in fact, it can be and is. Iceland established the Naming Committee in 1991 to determine whether new given names not previously used in Iceland are suitable for integration into the country’s language and culture. Obviously, Icelanders are cultural purists, which in many respects I find patently offensive. On the other hand, I can appreciate the desire to preserve and protect one’s cultural legacies. But to control the names parents give to their children? Hmmm. My immediate reaction is negative, but I have to consider that negative reaction in the context of my own evaluation of the Icelandic culture…viewed through the prism of my own biases.

The relative offensiveness (or lack thereof) of Iceland naming restrictions depends to a great extent on whether the restrictions lead to corollary debasement or derision of other cultural naming conventions (or, for that matter, other elements unique to other cultures). If the Iceland conventions do not have the effect of either degrading other cultures or holding Icelandic culture as superior to them, then the practice would not be, in my book, offensive. Odd, perhaps, but not offensive. But if Icelanders (or a subset thereof who hold sway with the Naming Committee) viewed non-Icelandic names as inherently inferior to Icelandic names, then the troubles begin.

I have to wonder whether anyone else, outside of Iceland, finds this topic even mildly interesting? Maybe my strange fascination with arcane trivia explains my relative social isolation. It shouldn’t be too problematic, though, inasmuch as my interest is superficial and short-lived. It’s not as if I drone on and on about Icelandic naming conventions and the extent to which they might suggest either covert or overt xenophobia. Hmmm. If I were to pursue writing fiction again (which I think I suggested I might or might not), a story line involving a Colombian xenophobe who detests Apache and Icelandic cultures might be worth exploring. Or maybe not.

 

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Cancer Journal 24, 2019

My radiologist resumed my radiation treatments today. I didn’t expect that he would in light of the fact that the pain I feel when I swallow hasn’t receded at all. He said “I hope the pain goes away after we complete all the treatments.” Yeah, me, too.

I lost a meager 4 pounds since last week, which was 4 pounds more than they wanted me to lose. I would have preferred losing 24 pounds, but that’s probably really pushing it in a week. I just finished eating several cookies and a couple of pastries, which probably will put my weight loss in the negative column for next week. That, plus the ice cream and macaroni & cheese that’s easier to eat than most other stuff.

Pain seems to be on the increase in my gut and on my skin. I’ll have to explore than with a doctor next time I see one. I’m surprised the next blood draw won’t be until a week from today. That will make it thirteen days between blood draws. I think they forgot one, but even after inquiring of the nurse, I was assured that, no, the schedule was intended. Except their original schedule, which remains on my portal, disputes that. Even after I pointed that out, the “nurse navigator” insisted the original schedule was highly tentative. Hmmm.

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Mental Sprawl

According to a news story I read a day or two ago, scientists or physicians or some other academically qualified researchers have determined that anger can be a symptom of depression. As I recall, the piece suggested that people who easily erupt in anger may be depressed. That seems to be the case especially when displays of anger burst forth against those close to them. And, it seem, it may be true for those who have a “hair trigger” that causes them to explode, then quickly recover. Reading the article made me wonder whether my life-long tendency toward spontaneous, but short-lived, gusts of anger may be symptomatic of depression, rather than an emotional system that never developed beyond the juvenile stage. I’ve long suspected, for a variety of reasons, that I may suffer from a fairly mild form of depression. But I’ve never shared that suspicion with anyone; certainly not with a medical professional who might be able to determine whether my suspicion is well-founded and who might be able to help address it, if it is. As much as I’ve always thought myself more intelligent than to stigmatize mental illness, I’m not so advanced when it comes to considering that it might affect me. Maybe I’ll overcome that embarrassing character flaw and actually look into it. Next month, I have an appointment with my primary care doctor. If I can muster my courage, I’ll explore it with him. The brief visit with him could become more involved than either of us planned, if I actually pursue all my questions with him.

Of course, I may be suffering from nothing more than hypochondria. But, then again, if I were to learn that a prescription anti-depressant can reduce or eliminate my propensity to erupt in unjustified anger at the slightest provocation, I may get even more depressed for having waited forty-five years to investigate possible solutions. But that’s not true. I have investigated solutions. I’ve read books on anger management. I’ve tried meditation. I’ve done all sorts of things that can, ostensibly, address anger. Zip. Although, I think I’ve improved dramatically since I retired.

I was never suited for a career so utterly imbued with stress as the one into which I fell. I would have been far better off as an academic or an electrician or an organ-grinder. Those careers, I suspect, have their own unique stresses. I can’t undo what I did for a living and I shouldn’t regret the years I spent doing it. Shouldn’t. It had plenty of upsides. World travel. Lots of discretion over my time (but lots of absurd demands on it, as well). There must have been more. I look back on it, though, and have absolutely no regret that I got out early. Early retirement was, I think, one of the best decisions I’ve made. I’ve been able to spend eight years, up until the very recent past, carefree and relatively healthy, enjoying my free time. Good call, John. Actually, I can’t claim full credit. My wife had a lot to do with it. A lot.

Back to the issue at hand, though. In spite of the potential that I might be forced to kick myself repeatedly for having failed to act earlier, I would be absolutely delighted to learn that my life (but, more importantly, the lives of people with whom I interact) might improve immeasurably if I were to regularly take a simple pill (though I have no idea what pill that might be). And, again, it’s not just the matter of anger. It’s the sadness, the pessimistic sense that there’s no point in trying to change the world, the feeling that my life ultimately just doesn’t matter. Maybe those things contribute to my susceptibility to certain music causing a flood of tears to flow. Or maybe that’s natural, but most men have succeeded in learning to control the spigot.  I would just like to feel generally happy. I do, I suppose, most of the time. But there’s always this underlying sense that it’s temporary, that happiness is an artificial condition we strive to achieve but one that can never envelope us completely for long.

***

I’ve written so little fiction lately that I wonder whether I’ve truly lost interest in it. I haven’t had any real impetus to write fiction for months. Oh, I’ve written a little, but it has been weak and uninspired and generally substandard fare. Maybe fiction isn’t the escape it once was, though I don’t know how to quantify just how much of an escape it was before versus now.  I am not going to berate myself (much) for steering clear of fiction. I have other, more pressing, things on my mind. Like cancer and the potentially long-term side-effects of its treatment.

***

I hear the wind outside my window. It’s fierce. In the pre-dawn darkness that’s just now giving way to dull grey light, I can see the trees sway and bend. Though I haven’t seen them fall, I know the ground beneath the trees is littered with dead branches that weren’t there last night. Occasionally, the noise of the wind changes from a roar to a high-pitched howl. Suddenly, the cacophony morphs into an eerie silence, as if the wind senses that it’s being heard and watched and, in response, it reciprocates by watching and listening. Today’s weather will change drastically as the morning goes by. Forecasts call for a 50 degree drop in temperatures by early tomorrow. The temperature now is 72 degrees. By 11:00 a.m., we’ll see it drop to 50 or below. Steady 10 to 15 mile per hour winds from the west-northwest and northwest will bring colder air with them, so that we experience freezing temperatures by bedtime. In the morning, I can expect to awake to an outdoor temperature of about 22 degrees. Ach. I prefer warmer climes.

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Silence

No matter where I seek it, I cannot find it. Silence. The absence of sound. There was a time when I could find it. But no more. Not since my heartbeat, with its drumbeat in my ears, began interrupting my peace. For months and months, I’ve heard my heart beat. Perhaps it’s a matter of wax in my inner ear transmitting the vibration from each beat of my heart to the tiny bones in my ear that manifest as sound. Or it could be something else. I don’t know. But I do know it is beginning to drive me crazy. It’s on my list of things to address with my primary care doctor when I go in for an appointment in March. If I don’t lose my mind before then. If I don’t stab an ice-pick in each ear before then, trying to put an end to the pounding, pounding, pounding in my ears. I doubt I’ll do that. An ice-pick in my ear sounds painful. On the other hand, the absence of sound “sounds” delightful. Silence. The absence of noise. The absence of sound. The absence of aural interruption.

The constancy of noise is not new. I’ve noticed it for months, if not years. I’ve wished I could flip a switch to turn off the sound of my heartbeat, my breathing, the sounds made by my body when I move my neck. I detect noise even when I blink. My upper eyelids slam against their lower counterparts, creating tiny explosions of noise that I feel and hear. I wonder whether I am alone in noticing the cacophony or whether others, like me, are embarrassed and afraid to admit to hearing those noises because…we might be judged out of our minds. I suppose we are. I suppose we are dangers to ourselves, what with talk of stabbing ice-picks in our ears to silence to sounds of our heartbeats. Only madness can prompt such thoughts. Or, perhaps, incessant noise.

Silence would be frightening now, I think. It would seem utterly at odds with normalcy. Silence, now, would seem sinister, as if all the attention of the world were directed at me, with no distractions. Maybe noise is like a protective blanket made of horsehair. It keeps us warm but, at the same time, it irritates the skin with a painful, ever-present reminder that warmth comes with a price.

On the one hand, sound is precious. I wrote recently about the sound a guitarist’s fingers scraping against the strings makes. But even that sound, if ever-present, can be maddening. Sound needs its absence, if sound is to be valuable and beautiful. If sound is ever-present, it becomes a fiendish enemy bent on driving molten spikes into one’s brain. And, then, when the spikes quench in cold water, the sound of  steam and boiling water give way to the cracks of shrinking metal and, finally, silence. Silence. Beautiful silence.

Quiet is serene. Quiet is calm. Quiet is relaxing. Yet quiet is impossible to find. It escapes into the loud screeches of huge black birds and the rumble of trucks rolling up and down the street outside my window. It disappears into the thump-thump-thump of my heartbeat. It withdraws into the hum of refrigerators and computers and the buzz in my ears that sounds like layer upon layer of the noises made by crickets. Silence is imaginary. Quiet is a supernatural tale, just a fable with no basis in reality. Silence doesn’t exist.

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Cancer Mythology

I’ve slept more in the past week, I think, than I usually sleep in the course of a month. That may be an exaggeration, but not much. I am in bed by 8 or 9 in the evening, up around 4 or 5, and sleeping in my chair before sunrise. It’s now almost 11:30 in the morning and I’ve just now awakened again. I  haven’t been asleep every minute since sunrise. But most of them. I was awake long enough to drink bottle of Ensure and take my medications. But just barely. I loathe this sense of absolute weariness. It’s as if I am wearing out like a pair of ancient shoes, their leather so thin that a slight motion in the wrong direction will rip the leather into shreds so delicate that nails can’t bind them to the soles. I feel so tired that I must have been forced to stay awake for a month but I know that’s not true. I should feel utterly rested after all the sleep I’ve had. But I don’t.

The pain in my chest, caused by my burned esophagus, doesn’t seem to be getting any better. Instead, it seems to be spreading and going deeper, like my heart is in the grip of a vice that squeezes with each move I make. I spoke to my doctor’s nurse a while ago. She advised me to continue taking the drugs intended to address the pain and to come in half an hour early on Thursday, before the scheduled radiation treatment, for an assessment. Perhaps the pain will have disappeared, or become more tolerable, by then. Perhaps all will be well.

I am not comfortable with pain. I’ve always said I have an allergy to it; half joking, half serious. Some people can tolerate pain; some can’t. I can tolerate it, but only during the course of complaining bitterly about it and behaving as if the pain is attempting to kill me. I suppose I dramatize pain. But  try not to. I try to cope with it and accept that it is what it is. That rarely works. I whimper, silently or not so silently, wishing and hoping the pain will take pity on me and will leave me alone. It rarely does. I can’t imagine how I would react to excruciating pain. I might tear my eyes from their sockets in an effort to distract myself from the agony. I realize that sort of behavior flies in the face of reason, but I am nothing if not reasonable. See, the pain drives me to distraction. I try to laugh but cough convulsively instead.

Today is, as best as I can tell, a gorgeous day. Blue skies, painted with a few white clouds, invite people outside to enjoy the warm weather. The temperature has reached almost 70 degrees. It’s the sort of day that healthy people rush outdoors to enjoy. But I remain indoors, warming myself in a t-shirt and sweatshirt because I feel a little too cold. I wish I were outdoors, sitting in the sun, enjoying the heat and the fresh air. But I’m not. I’m inside, shivering on occasion and angry at the universe for treating me the way it’s treating me today. Bastard!

My sense of humor is attempting to break out of the hard, cast-iron shell wrapped around my body, but it’s having a hard time of it. Why is that, I wonder? Could it be that my sense of humor is reacting badly to the multiple wounds on my chest and back and side? Could it be that laughter is cursing loudly, pointing at evidence of drunken scalpels behaving badly after a night directed to do bad things by wayward anesthesia drugs?

I think I need to go back to sleep. But I’d like to eat, instead. I miss foods that I dare not eat for fear of making my esophageal pain worse: jalapeños, Tabasco sauce, salt, and lemon juice. Instead, I am relegated to drinking 350-calorie food-substitutes, slurries that ostensibly will keep me from losing weight. They (to doctors and nurses who occasionally look out after me) want me to drink six of them per day. There is no way in hell I’m going to drink six bottles of Ensure in a single day. I might go for three. And, if I do, I will agree to cap them off with a half gallon of orange sherbet every couple of days. They want calories, I’ll give them calories.

I’d like to have a shower servant today, someone to gently scrub my skin, just hard enough to remove the remnants of the lotion I’m required to use to battle the “sun burn” I’m getting from the radiation treatments. After my cleansing, I’d like my shower servant to give me a pedicure and, once I’m clean and dry, to rub healing lotion on my back and chest. Then, a wash of healing skin-cream all over my arms and legs would be nice to help ward off the dryness that seems to be getting more and more pronounced. After I’m dressed in a soft robe, a nice glass of red wine would be nice. I am, begrudgingly, permitted one glass of wine per week. Yesterday would have been one week since my last very small glass of wine. My wife won out, though, by telling me I should wait for wine until some unspecified time in the future.  Yes, I should wait until I’m older, that’s it. I don’t believe for a moment that a glass of wine each and every night would be problematic for me. I think the doctors demand wine be eliminated only because they can get away with it. Perhaps they are in favor of prohibition. Or, worse yet, they secretly admire Donald Trump and his lifestyle. If that, they deserve to be impaled on a spike in his bollard wall. I wonder whether my contemplation of wine is making me into an aggressive drunk? That would be an interesting research project, wouldn’t it? “An Investigation into the Physiological Changes Wrought on the Nervous System by Contemplating the Consumption of Alcohol.” The Blue Laws would have to be revised to prohibit even thinking about buying alcohol on Sundays.

I guess I’ve successfully stayed awake for most, if not all, of the time required to write this incoherent screed. I’ll assume the content of what I’ve written can be attributed to some odd form of cancer mythology. Another possible thesis for one of my many master’s degrees.

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Street Scene

Whispers. Strained voices. Anxious sighs. Stifled sobs. The sharp staccato raps of heels pounding on the cobblestone street, their echoes remaining long after the tear-drenched woman rounds the corner. Long after the dejected man shuffles away.

Who were they, that couple whose urgent matters spilled into the street and captured the ears of people sitting in cafés, leaning against balcony railings, and watching from the dark shadows beneath the clock tower? What private pain burst into such a public display of heartbreak, such a ruinous end to what might have been a lifetime of joy?

Every couple sitting in those cafés heard the message that their time, too, could come. The women leaning against the balconies sensed it, as well. And the people beneath the clock tower cringed at the evidence that their own lives could shatter against the hard cobblestones.

All of them listening to the couple’s dissolution were strangers with no bonds between them but in those moments, in that street scene, they felt their lives bound together with steel cables. They heard the sounds of their own hearbeats slamming their dreams against the walls of their chests and they felt the inexorable sense of loss that never departs.

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Cancer Journal 23, 2019

It’s Sunday morning. I slept/dozed most of the day yesterday, waking occasionally long enough to eat a bit or listen to the radio. Janine drove in to Benton to do some shopping while I rested. Rested isn’t the right word; I collapsed, that’s what I did. Even though I dozed most of the day, I still wasn’t able to stay awake long after she got home. We had an early dinner, after which I went through my post-meal medication routine and then took a shower and went to bed. I awoke before 2:00 a.m., feeling like I’d slept far too long; my bones ached the way they do after spending far too long in bed (though much of my day wasn’t in bed but, instead, in a recliner). But, I tried to sleep anyway. I finally got up around 4:30.

I attribute yesterday’s monstrous dose of fatigue to Monday’s chemo; I don’t know what else to blame. I hope one day will do it. We have dinner plans tonight with neighbors, so I really don’t want to deal with another day of fatigue and painful swallowing again. I didn’t experience too much pain with swallowing yesterday, at least not all day long. But late in the day the pain was back with a vengeance. I’m tempted to try my medication routine without eating first, but I’m not sure whether that would be a wise move, so I guess I’ll try to follow the instructions. Damn. Damn. Damn.

I wonder whether the chemo and radiation are doing more harm than good? Some of the side-effects of the two treatments can be permanent, according to the literature. Permanent side-effects are “rare,” but not unheard of. I considered, seriously, not having any treatment other than surgery. That might have been the best option. Surgery was bad enough, but I think its effects have been exacerbated by five-days-a-week radiation treatment and the injection of cell-killing drugs into my bloodstream.  I have a fear that I’ll find myself so badly incapacitated by my treatments that I’ll be unable to act for myself. Being locked in a body that won’t function the way it was intended is a terrifying thought. I’m not Stephen Hawking; I am not suited to living only through my brain.

Until just now, it hadn’t occurred to me that the temporary pause in my radiation treatments has given me an opportunity I haven’t had for several weeks. I could take a day-trip (or two) during the week. I am not restricted by visits to the doctor’s office until Thursday. If I can persuade Janine, I might get out of town for a day or two. That would be a welcome respite from being tied down to the house and my surroundings. The key, of course, is whether my fatigue and trouble swallowing will just cooperate by remaining at bay for a short while. I’ll explore that tomorrow. Maybe. If I can cope with rain showers and daytime high temperatures around 70, I should be fine. And I think I should be fine.

 

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Music and Words

When you hear, on a recording, the sound of a guitarist’s fingers scrape the strings, you’re hearing a sound unpurified to an extent that all of the reality of the musician’s engagement with the instrument remains. The connection between musician and guitar hasn’t been bleached out of the sound. At least that’s my opinion, as a person who’s never successfully played a guitar or any other musical instrument. This thought came to me after I listened to Terry Gross interview Nicholas Brittel, a composer who scored several recent films. I’ve always felt that sense of reality when I hear the “musician’s noise” that accompanies real music, but I’ve never really thought much about it until I heard the Brittel interview. He spoke of asking a violinist to play very lightly, but with enough energy to have “confidence.” And then he spoke of hearing the sounds of the instruments and the sound of air in the room. That’s what triggered my sense of liking the sound of a guitarist’s fingers as they scrape the strings. And that’s the sort of thing that translates well into scenes in writing. Little aspects of an experience that help paint a picture that, without those elements, would be bland or lacking in some fundamental way. It’s not just true of writing, though. It’s true of life. I think we enjoy life far more when we pay close attention to its smallest intrusions on our consciousness, like the scrape of a guitarist’s fingers on the strings. Or, more commonly perhaps, the sound of one’s spouse’s rhythmic breathing or the background noise of a clock ticking (though few do that anymore) or one’s own heartbeat. I hear my own heartbeat, pounding in my ear, especially early in the morning.

For months, I thought I was hearing some odd “house noise” like a furnace clicking as its heat dissipated. But finally, I realized it was my own heart. It’s probably not a good sign to hear my heartbeat so distinctly in my ear, but I really have no idea how to explain the noise to my doctor. He certainly cannot hear it; only I can. He might think I’m mad if I complain about a noise no one but I can hear. And maybe I am.

 

 

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Cancer Journal 22, 2019

Apparently I misunderstood my doctor yesterday. He said, but I did not hear, that he wanted to postpone further radiation treatments until next Thursday. I went in for my treatment this morning and the radiation tech informed me that the doctor had delayed further treatments until a week from yesterday, thanks to my seared esophagus. So, I felt like a cretin, but actually was pleased. Even though this will delay completion of my radiation treatments by a week, I think I will be happier to know that my esophagus is healing. I’m continuing the medications he prescribed a week ago and I expect I’ll be fine a week from now. So goes cancer treatments.

With this delay, I have no treatments, no blood draws, NOTHING, until next Thursday. I may just relax and vegetate for the next several days. I felt absolutely drained this afternoon, so much so that I opted to let Janine go shopping, fill up the car with gas, and get the mail while I sat and relaxed in the car. And when we got home, I went to sleep in my recliner. I guess it’s either the radiation or the chemo or both, perhaps combined with stress of some sort caused by the whole cancer treatment process. I feel very much like I could sleep for two days right about now, but I won’t. I’ve made commitments. Though I realize I could, in a pinch, break them.

 

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Cancer Journal 21, 2019

The radiologist told me to keep following his drug regimen and to drink six bottles of Ensure a day. And to come back next Thursday and tell him whether the pain I experience while swallowing improves. Hmm. I was hoping for something a little more interventional and more likely to relieve the pain. But there you go.

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Cancer Journal 20, 2019

A week ago, I began experiencing pain when I swallow, thanks to (I assume) the effects of the radiation treatments on my esophagus. The radiologist prescribed some drugs that I take in succession following each meal: first an ounce of aloe vera juice, followed twenty minutes later by a teaspoon of Nystatin, followed twenty minutes later by a carafate tablet dissolved in 10 cc of water, followed by nothing by mouth for twenty minutes. I noticed no noticeable change until day before yesterday, when the pain got worse. Yesterday, it was much worse. I couldn’t finish lunch because of the pain, opting to choke down a bottle of Ensure, instead. Ditto for dinner. The pain is present event without swallowing; it burns in my chest, the level of pain changing depending on my position. Last night, I didn’t sleep especially well because the pain kept awakening me and/or keeping me awake.  As I type this, I’m taking a painful swallow of strawberry-flavored Ensure at a time for breakfast. No coffee, as the hot liquid hurts like the devil going down. Even the cold Ensure hurts with every swallow. Fortunately, today is the day for my weekly visit with the radiologist, so I hope he can offer options. Even swallowing water is hard and painful. This cannot go on for long or I’ll get dehydrated and starve. Thanks to my years of packing on excess weight, it will take far longer to starve than to become dehydrated.

Yesterday was my first phone call with the nurse navigator who was assigned to me to help me deal with cancer treatments. Despite the fact that the program kicked off more than half way through my treatments, perhaps the timing was good. I mentioned the swallowing issues and she said she would talk to the oncologist about them, though she advised me that the radiologist would be the first responder to that issue. She also said she would address the ongoing problem of schedules for my doctor visits, chemo treatments, and blood draws being shown on the portal calendar as “unscheduled.” We’ll see.

This business of pain in my chest while attempting to eat is bothersome. I guess I didn’t expect it, even though I knew it was one of the potential side-effects of radiation treatment. I hope today’s visit with the doctor gives me more than,”well, let’s see if this next options gives you any comfort.” I’m looking, of course, for certainty. I’m looking for results. I’m looking for things that probably are not guaranteed in the field of oncology treatment.

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Morning Babble

Our dinner last night met and exceeded our expectations. My dozen oysters on the half shell were enormous and very tasty. Janine’s dozen fried oysters were at least as good. The conversation with our friends was delightful and my Neulasta device did not intervene in any way. The New Orleans menu prompted me to suggest to Janine that we return next Tuesday so I can try some of the other items on the menu or, perhaps, the sampler plate that offers a little bit of everything (but not the oysters, if memory service me).

Learning a bit more about our friends through conversation caused me to recall an idea I had a while ago. That is, I’d like each member and friend of the church who’s willing to write and share a brief biography about themselves—where they grew up, what they did in their work lives, what made them decide to move to Hot Springs Village, what religious backgrounds they escaped from grew up with, how they define their political views (both from a social and a fiscal perspective), and any other interesting tidbits they think others might find interesting. I’m interested in this simply because I would find it intriguing to learn how people with quite different backgrounds happened to find themselves as part of a pocket of liberal and progressive people in the midst of the sea of rabid conservatives that is Hot Springs Village. I envision this collected biography to be available only to members and friends and, in some fashion that I’ve yet to clarify in my head, made private so that the identities of the writers would not be readily available if it were to be circulated outside the sphere of members and friends. That might be tough. I’ll have to give it some more thought.

I got up very early again this morning, even earlier than yesterday when I got up around 4:30. Today I sprang out of bed at 4:00, after having gone to be early, around 10:00 or just a bit thereafter. I’m not quite sure what’s  responsible for these earlier-than-usual arisings, but I rather like to be up and have leisurely time to explore the web, write a bit, collect my thoughts, and reheat the cooled coffee over and over again. I really should drink it while it’s hot, but the burning sensation in my esophagus is still with me so I let it cool, and then it’s too cool. But I’m up and thinking. That’s not always good, but today it is. Today’s thoughts are generally positive.

Shortly after I got up, I read that an Israeli company claims to be completing development of a cure for cancer that should be completed within a year. It sounds quite promising, but it also sounds like its availability in the general marketplace (if it’s really as claimed) will be years off. Oh well, if it’s real, in the years to come, many hundreds of thousands (or millions) of people my well live without cancer that they otherwise would have had to faced.

Last night, I watched several more episodes of Fauda, the Israeli-made drama depicting the two militaristic sides of the Israeli-Palestinian conflict. I’m addicted to it and, with every episode, I’m more comfortable that I’m watching a foreign language (Hebrew and Arabic) film that’s dubbed in English. Being able to watch multiple episodes, connected via Roku without interruption, is evidence that the problems I’ve had all along are, in fact, attributable to the Suddenlink-branded TiVo device. I’ll have that replaced in the near future (when I no longer have to deal with radiation treatment every weekday).  Oddly, I don’t recall what I had been watching before Fauda that, eventually, I just gave up on. I’ll have to probe my mind to recall it; I got so frustrated with Netflix stuttering and stopping that I limited my television viewing to news programs with Lester Holt and Judy Woodruff, supplemented by mindless home purchasing/improvement shows on HGTV. With Roku, I think I can return to some real variety, even before the TiVo device is replaced.

No long after I got up this morning, I whipped up a couple of servings of steel-cut oats that, I hope, will be ready, only needing to be warmed up, by the time Janine awakes sometime after 7:30 (my guess). It’s been ages since I made steel-cut oats for breakfast and I miss them, as does Janine. She’s the one who suggested it. I make mine with a mixture of water and almond milk (it does influence the flavor), along with a tad of olive oil in which to flavor and warm the oats, and dried cherries for flavor. I added a pinch of salt and about an equal amount of brown sugar, then brought the mix to a full boil, when I turned off the stove and covered it. Normally, I would do this the night before and let the oats “cook” overnight, but this time I didn’t, so they may not be truly cooked by the time Janine arises. No worries; I’ll just simmer them for 30 minutes or so and they will be ready. She’ll be happy with that.

Personally, when I cooked steel-cut oats more frequently, I enjoyed a savory and meaty version of my own design even more than the slightly sweet one. In the savory one, I omitted the almond milk in favor of water alone and did not use sugar or dried fruit. Instead, I used crumbled sausage (just a bit) and, sometimes, diced veggies (e.g., carrots, potatoes, whatever). When the oats and accompaniments were finished, I dressed my bowl with a bit of soy sauce and sambal ooleek. I guess it’s a riff on congee, using steel-cut oats in place of rice that’s cooked until it dissolves.

After today, I will have only ten more radiation therapy sessions to go, assuming the doctor makes no adjustments, which I have not reason to believe he will. Two-thirds of the way through! My chemo session day before yesterday has not yet had any significant ill-effects (save, perhaps, for the extended sleep time that afternoon and evening). Knocking on wood that it will have none. We shall see. Only two more chemo treatments left. I’ll be done with them by mid-March. But there will be immediate follow-ups with blood tests, etc. By late March, perhaps, I’ll be free of this stuff and, with good fortune, will be able to start recovering my strength and abilities to do things more physical, like stripping and painting my deck. If the boards have not rotted by then.

I’m tired of writing meaningless drivel this morning. I’d rather write riveting fiction or non-fiction that a reader simply could not even consider putting down once he or she started reading it. But I’ll write neither. Instead, I’ll go check on the oats and will sneak in to take a shower before my wife awakes, hoping the light and the noise in the bathroom don’t waken her.

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Putting Things in a Different Perspective

After my radiation treatment today, I visited a friend who’s in the hospital again after a couple of hospitalizations over the past year.

His first hospitalization came last February after a “routine” colonoscopy that wasn’t routine, after all. During the procedure, the surgeon perforated his bowel. My friend didn’t know anything was wrong until later than night when he felt pain that was anything but normal. Following emergency surgery, he was released a week later and recuperated at home over the course of several weeks.

In December, he was put in the hospital for what the doctors thought was pneumonia. They kept him there through Christmas; he was released, I think, on the 29th. He seemed to be improving over several days, but then had difficulties for several more days. After a period of steady deterioration, he was sent by ambulance back to the hospital on January 25. He doesn’t know how long he’ll be there, but it will be at least several days.

The problem isn’t simply pneumonia. It’s pneumonia resulting from complications with pulmonary fibrosis. That is the scary part. He doesn’t expect to be able to get off of oxygen. He has decided to abandon his plans to build a deck off the back of his house. He just seems really reconciled to the fact that his disease will severely restrict his activities and his comfort going forward. I don’t know enough to argue with him, nor would I even if I did. I don’t know when his pulmonary fibrosis was diagnosed, but I get the impression it was quite some time ago. I think he didn’t believe it would progress by this time.

When I got home from the visit, I looked up the prognosis for pulmonary fibrosis. The “typical” prognosis is that patients live on average of three to five years after diagnosis.

My diagnosis and treatments don’t seem nearly as onerous this afternoon as they did this morning.

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Cancer Journal 19, 2019 and Dinners and Netflix Entertainment

Yesterday, the second chemo treatment was administered. It’s a long process, beginning with “backwashing the chemo port,” as I call it. Actually, it’s just cleaning the port and, I guess, ensuring that the contents of the needle plunged into it will flow properly. I felt the nurse stab the needle into the port this time as if a carpenter’s trim nail had been hammered, somewhat gently, into my chest. It felt like the nail made it only part way into the two-by-four trim beneath. 😉 Actually, it wasn’t bad, just an unexpectedly sharp but quickly passing pain.

From there on, it was the “usual,” as if I know what usual is after only the first treatment three weeks ago. I took a pill, an anithistimine I think, and the nurse began the rather tedious process of preparing my body for the onslaught of poisonous chemicals.  I really should document each pouch of liquid they pour into me, but I did a poor job of it yesterday. Maybe next time.  To the best of my recollection, she pumped me full of saline solution first, followed by steroids, followed by something else, followed by something else, and then capping it off with a vile mixture of carboplatin and alimpta. She cleaned the stab wound in my chemo-port, covered it with a band-aid, and then went off to find the Neaulasta, the device attached to my body to deliver a dose of drugs that will fend off infection and boost the white blood cell count (that the chemo drugs reduce). This time, I opted to have it attached to my belly, making it easier for me to check to see what the blinking lights on the device are telling me, rather than asking Janine to stop what she’s doing to check. I was concerned about whether the removal of the Neulasta device would interfere with plans for the next night (tonight), when we plan to have dinner out with friends. Based on what the nurse told us, it shouldn’t. The device should inject me sometime well before 7 and I should be able to remove it afterward.

Our plan was, immediately after the chemo treatment, to go visit a friend who was just admitted to the hospital with pneumonia two night earlier on an emergency basis.  Before the treatment was complete, though, he sent me an email telling me it wasn’t a good time, courtesy of drugs he had been administered and the flurry of activities around his bed. We agreed I’d stop by the next morning (this morning) after my radiation treatment, if he was up to it.

Speaking of dinner, as I was a paragraph or so ago, we plan to go to dinner with friends this evening, early. These are the same friends with whom we had dinner a couple of nights ago (our minister and his wife and two other friends from church and the writers’ club). During that dinner, the male component of the nonministerial couple mentioned that a restaurant on the periphery of the Village is celebrating Mardis Gras with what he described as a spectacular Louisiana menu. Among the celebratory menu items, he explained, were ENORMOUS oysters on the half-shell, delivered daily as far as I can tell, from New Orleans and environs. I’ve very rarely (once) had oysters on the half-shell since moving from Dallas. I love oysters. And jambalaya. And gumbo. And all foods from in and around New Orleans. Before the conversation ended, all our calendars had been adjusted to account for our plan to eat dinner together tonight. It will be an early dinner (we’ll meet at 5:30), so we should be home by or around 7:00, when I will remove the Neulasta device from my gut and will dutifully take the drug regimen (a series of three drugs, separated in twenty-minute intervals) designed to minimize or eliminate the burning esophagyeal pain caused by my radiation treatments.

Yesterday afternoon, after we got home from the chemo treatments, I unpacked the Roku Premiere and set it up on the television I watch (my wife has her own in the room we call her “nest”). The purpose of buying the Roku was so I could (I hope) eliminate the stuttering and stopping of movies and series I want to watch on Netflix. I got Roku set up and working just fine, but either the chemo treatment or the fact that I didn’t sleep well the night before or both conspired to quell my television thirst. I went to sleep in my chair, awakened only to the call of dinner. After dinner, I tried again ever-so-briefly to watch television, only to awaken well after 10:30 to discover my wife had already gone to bed.

One day, though, either while I’m in the midst of cancer treatments or after I’m done and feeling “normal” again if that feeling ever returns, I’ll spend time watching films and series I think will appeal to me. I am not committed to watching anything all the way through, though. If I like it, I will watch it. If I find it boring or otherwise unappealing, I won’t. So there you go. As for what I plan to explore on Netflix in the not-too-distant future, they include:

Fauda (season 2), Breathe Normally, Black Earth Rising, Occupied (season 2), Borderliner, Ozark, Close, Deadwind, Minimalisim: A Documentary About the Important Things, 1983, Justice, Roma, When Heroes Fly, Innocent, The Paper, Trotsky, Tabula Rasa, El Ministerio del Tiempo, Peaky Blinders, Wild District, Mad Men, Weeds…there are more, dozens more.

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Just Asking the Question

I read this morning that the Postmaster General blamed the massive and growing deficits of the U.S. Postal Service on a business model mandated by law.  Postmaster General Megan Brennan said. “The flawed business model imposed by law continues to be the root cause of our financial instability.” I think she has a very good point. She runs an organization that is restricted by law from adjusting to a rapidly changing business environment. Railroads suffered from operating as though their environment did not matter when, in fact, it did. They almost died as a result. Passenger rail, as much as I hate to say it, effectively did die in most places in the U.S.

I wonder what other institutions might be at risk of becoming archaic in the absence of change? I wonder whether, for example, the structure of our “democracy” in the U.S. might be at risk of succumbing to its own obsolescence if we, collectively, don’t make some hard decisions about its structure and operation? We treat the Constitution as if it is inviolable, a sacred text that is not subject to significant change. We’ve amended it, but we’ve never considered replacing it. Admittedly, the risks of replacing it or, even, subjecting it to massive revisions are great. Recent calls (that grow louder with every year) for a constitutional convention are based on making changes that would force the country on a radical shift to the right, removing many of the protections now in place. That’s dangerous. But is it possible that, even in the face of that risk, we need to consider looking at the rules that govern our country with a new set of eyes?

Do we want to be in the position of looking back at our missed opportunities and saying, “The flawed business model imposed by our Constitution was the root cause of our  instability and ultimate demise.”?

Just asking the question.

 

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Bidirectional Exchange

Daybreak is a special time, but so is nightfall.
Both allow us to peer into the universe from
different angles, watching time unfold like
a flower blossom, unveiling secrets made visible
only to those who expend the energy to see them.

If something or someone is on the other side of daybreak
and nightfall, I wonder whether they, peering into
the secrets unveiled by unfolding time, see us and the
secrets we unwittingly share by revealing our curiosity
and opening ourselves to the unknown?

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